Has anyone heard of Eosinophilic Esophagitis

Yes. My son has been diagnosed with it just recently. Once a very rare disease, recent years have seen cases in North America more than tripple. Essentially, it is an allergic reaction to foods within the oesophagus.

It is treatable, with a number of medications and if need be elemental diets and the slow introduction of food types until the allergin is detected.

I am 26 and have recently been diagnosed with a very bad case of eosinophilic esophagitis. I have asthma, severe environmental allergies/very minimal food allergies, am recovered for 7 years of 3 years of bulimia, and was a social smoker 3 - 7 years ago. It is interesting to me that my condition is so severe at this time due to my history. I am sure the severity of my condition is due to a combination of all of the above precursors to this condition. I am sure my asthma and allergies is what put me at most risk. As allergies are the only thing presently in my life to trigger such symptoms, I am having a difficult time discovering the causes. Doctors have included an ENT, gastrointerologist, and allergist that have given me different and contradicting information. I am continuing my personal research and seeking professionals to get to the bottom of this. I have always known I have suffered from severe mold allergies. Does anyone have experience with this and thus are extrememly triggered by foods such as cheese and yogurt? Any information is appreciated.

I have a son that was diagnosed with EE several months ago, he just turned 18 months. It has been a very hard battle. We are struggling with the disease every day. I get more and more concerned everyday when I read about all the other families living with this disease. There is no gov. funding for this disease and that is very frustrating. I want to be able to tell my son that one day they will have medicine that will fix all his problems. My husband and I have submitted a project for EE research to American Express. The project is up for nomination as we speak. The more nominations we get, the better chance we have of receiving the money. The money will be given to the APFED organization for more research on EE. *****. Pass on the message to anyone you know that will also help.


**edited by moderator**

I am the mother of a 14 month old beautiful little girl. EE has consumed our lives since her birth. she has asthma, allergic rhinitis, acid reflux, bilateral ear tubes as well as severe allergies. she is allergic to milk, soy, eggs, nuts, seafood, and wheat. as well as dustmites and dogs. she currently is on 10 daily maintenance meds and has been on an elemination diet of these things and drings the elemental elecare. elecare contains a small percentage of soy, therefore i have to dilute her elecare with rice milk and we are stuck at a very small 18 lbs. 2 of the daily meds contain some sort of steroids therefore, it is going to stunt her growth. i hope this helps anyone who we possibly can. the dr's are very frustrating but we've found ourself under a wonderful allergist, a dieticin that's 2 hours away, a gi that's 4 hours away, an ent, and a pulmonary dr. good luck to all those who EE consumes your life. stand strong and continue to fight.