Heavy neck pressure, headaches, hypertension, muscle tone on one side of face.

I suffer from severe pressure in my neck, and it is associated with nightly headaches, hypertesion, loss of muscle tone in one side of my face, thingeling in my thoracic spine, arms and legs. In the past I was diagnosed with papiledema as a result of psudo tumor cerebri. Now, despite the ill feelings, and the inability to hold my head up without support, doctors tell me that there is no papiledema, but there is a possibility that there is still preassure from the cranial fluid. The optic arteries are filled with fluids, but I am not willing to go through any more spinal taps. when I lift up my head, it feels as if it is falling off, and when I get tired, the head is shaking. There is no indications of a stroke even though the symptoms point to one.