We can find no real info about this condition. We were told that our relative inherited it, but atypically, it has not manifested itself until now in mid-life. How does one test for it? Can others in the family inherit it? How is it treated? Is it fatal? Our family member almost died from it 2 weeks ago-although it was a complicated situation-so it is not totally Polyclonic gammopathy's fault. Is there a support group and/or website? We can find practcally zilch about it on the internet. We were told it is rare, although none of the rare diseases websites have it. Thank you.
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