Couldn't find what you looking for?

TRY OUR SEARCH!

I have Pyoderma Gangrenosum that is Rheumatoid Arthritis related...
Have been on chemo since Oct. '8... this is an extremely rare disease...
I found 1 post from 2006... am looking for anyone with this disease...
Peace to you all...

Loading...

I'm really sorry to hear that you're suffering from this disease and I'm sure that it's very difficult for you. Can you tell us what you're looking for and what you'd like to talk about? I don't suffer from the disease obviously but I would like to offer my support if at all possible aso let me know what it is you'd like to discuss and maybe we'll find something to talk about. I can also do research for you if you like. Keep me posted, okay?
Reply

Loading...

"what you're looking for and what you'd like to talk about"
This is such a rare disease I'd just like to know someone else with it...
In RA this disease is incurable, in Crohn's & other conditions it's cleared
up with a few weeks of steroids... the pain is one thing, life long dependency
on steroids and chemo bother me as I'm diabetic and now insulin dependent,
but the other option is amputation... if it gets into my organs then death...
There are only 3 chemo's that can be used to put PG into remission,
I'm on the 2nd and it's spreading again...
I have 4 excellent Dr's, but would like to know someone going thru
the same thing, this is a truly lonely disease... Most Dr's never see a case
of it in their entire practice... My RA Dr is the go to Dr in our region for PG
and I'm his 5th patient in 33 years... He does follow the treatments from
Duke, UVA, John's Hopkins, etc...
My Dermatologist puts steroid shots into my "bad" wounds on a regular basis,
there are over 500 wounds {non-bad, for want of a better term} on both legs,
pea to quarter size...
"do research for you"
I'm pretty good at research, but thank you...
I thank you for your kindness...
Peace to you bluedog...
Reply

Loading...