The consequences of choroid plexus cyst

Has any one here had a amnio due to cpc diagnosis and found that it proved their were further problems

thank u for all the good words on here our baby has a brain cyst too and you have all given us hope that everything will work out fine. im going to speak to a genetic counselor this week about what all this means and i am refusing an amino because the chances of losing the baby are higher than the baby having tri 18

ours is an isolated cyst so I keep praying everything will turn out okay

thank you for all the support

When I was 16 weeks pregnant with my little girl they told me the same thing. They had me terrified I was 19 thinking I would have a down syndoromed or maybe much worse baby. They wanted me to do an amnio and consider terminating the pregnancy if there was something wrong with her. The chance of losing the baby was much higher than the risk of the cyst not going away if I did the amnio. I refused to have it and now I have a very healthy 4 year old little girl. The cyst went away at 28 weeks pregnant. I'm not saying that all cases will result in the same as mine. But the best advice I can give you is say some prayers and have faith that god will not give you anymore than you can handle.

I was just wondering about that! I have spent quite a bit of time searching on the net everywhere and I have still not found a single testimony of someone whose baby had CPCs and turned out actually developing T-18... I guess this proves how rare the occurrence is.



Our lvl-II ultrasound is scheduled in two weeks and we are not in the least bit scared.

You are right and thank you so much for pointing that out! I feel so much better now. Its 3am and I couldnt sleep until I read everything I could about it.. and you pointing that out is making me feel more assured that its nothing major to worry about.. I guess I just need to relax enjoy this pregnancy and just wait for my 30 weeks and pray that the cysts will go away.

I am 21 weeks pregnant and at our 20wk ultrasound they discovered two CPC's. I went from picking out names, picking out paint colours to wanting to crawl into a hole and hide. My life just came to a screeching halt.

After having read these posts, I do feel somewhat better. I go for a level 2 ultrasound next week and I am terrified. As a mom you just want your baby to be perfect.

This is the most horrible thing to have to worry about during a pregnancy. I have two beautiful healthy boys at home, this is my last and I was trying to enjoy it.

I wish the best to all ladies having to go through this.

I have a perfectly healthy 10 month old boy at home. Early on in the pregnancy, he was diagnosed with CPCs but there were no other genetic abnormalities. Later in the pregnancy, the CPCs were no longer present. He was born with no issues and we seen nothing in the past 10 months to indicate there are any problems.

I just wanted to offer reassurance to other parents who may be going through what we went through when we first found out about CPCs.

I'm glad to hear that he did not end up with any issues so congratulations to you. Tank you for posting on your experiences!

Hello All!
I hope this site is till around and I hopefully may get some more replies! I had my life stop yesterday....we went for our ultrasound this last Tuesday 27th and were so happy to learn we are having a girl. So Friday (Yesterday) comes around and I get the usuall call from my OB office (they always call after to update me and tell me everything looked great on the ultrasound) Anyway, I knew her voice sounded weird as she was saying the usuall "everything looks fine" I was waiting for a "but" and it came. She then told me that they found a CPC in our babies brian and "Not to worry" YA RIGHT! How can you tell an expecting mother not to worry! This is my 3rd pregnancy and I've had 2 miscarriages....so we are so happy we've gotten this far! Now to learn this! I was FREAKIN out and called to schedule the ultrasound with Maternal Fetal Medicine, spoke to their nurse 2 times who really didn't give me more answers and then they got the doc on the phone to answer my questions. It was then she mentioned Trisomy 18 and freaked me out more! I've already done the genetic testing and they all came back fine.....long story short I called my OB office again to ask the nurse more questions and they eventually had my doc call me back to call me down. She said not to worry everything else looks fine so far blah blah blah. It's great to hear that and all, but now I have to wait until next Tuesday to go in for the ultrasound. I'm trying not to worry and have found great reassurance in this post, but still can't get it out of my mind! I don't think Tuesday will get here fast enough!!!!! I'm so scared! They never mentioned amnio to me so maybe that's a good sign??? I'm only 27 so not in the high risk ages yet.......not sure if that's why they didn't???
I'm happy to hear about all these cases turning out great, but still in the back of my head am worried sick. I haven't had the best of luck myself with health things and hope this doesn't turn out bad!
I'm trying to tell myself it just means were going to have a baby Einstein since the other moms mentioned their kids are advanced :-)
Did anyone take medications during pregnancy? I read online about what causes the cyst, but want to know if it's something I did???
THANKS FOR YOUR REPLIES!!!
Worried :-(

I'm 26 years old and at 19 weeks my regular ultrasound showed a CPC and my feelings were much the same as many of the other women who have posted on this forum. My doctor made it sound like that was a very bad thing, she even chided me for not having had the genetic screening tests done earlier in my pregnancy. But all the reading I've done has shown that the risk of Trisomy 18 is so small it's almost not even worth worrying about. And in fact my baby has no other problems and is likely very healthy; a targeted ultrasound confirmed this. The doctor still wanted me to do an amnio, but I was like NO THANK YOU, WE'RE DONE HERE. I completely agree with the women who have said that they didn't want to get an amnio because the risk of miscarriage is MUCH higher than the risk that there's even anything wrong.

I am personally horrified with the state of medical science today. I can't believe so many doctors have the gall to recommend termination for a problem that is resolved naturally 99% of the time. It may not even be a problem! (Read the 2007 post from the woman whose son is extremely gifted...) Have doctors forgotten what miscarriage is like, what abortion is like? For anyone who has experienced either of those things, I'm sure they will vouch that it is painful, that it is emotionally taxing, and that healing comes very slowly. There must be a hundred women who have posted on here, all of them finding out that their babies are perfectly fine. Just think if all of those women took their doctors' advice and terminated their pregnancies! How many of you would have depression? How many of you would be unable to conceive again? This is just wrong. Doctors think it is so easy to heal from things like that---they think you can just get rid of this pregnancy and get a new one. They are wrong. Do not let a doctor talk you into anything so destructive and irrevocable just because of a blip on a 19-week ultrasound. Babies have to develop and have to be given time. It's funny: when I went in for the targeted ultrasound they thought my main OB doctor was nuts for wanting them to look at the heart this early on. At 19 weeks a baby's heart is still not fully formed. GIVE IT TIME!

Sorry to rant and rave, but I'm just disgusted with doctors. Early on in my pregnancy when they wanted me to get the genetic screening done, I read their information pamphlets and their claims of an 80% accuracy rate of detecting Down Syndrome. 80% my ass. Only about 30% of women who are told their baby might have down syndrome in this testing actually have it---the rest are all false positives. The 80% number comes from that smaller portion of babies who were proven to have it. They don't count all the false positives when they write up their pamphlets and cite their statistics, because if they did their accuracy rate would look a lot weaker, like 5% or less. They are marketing with information that is distorted beyond all truth, and in my book that makes them frauds. They may not see it this way, but doctors are not always good scientists---especially when they are so willing to jump to conclusions before all the evidence is weighed. Doctors have become self-made eugenicists... it makes me sick. Before they recommend termination to couples, they should really examine the scientific bases for some of their beliefs about CPCs. If a CPC does not in itself mean anything bad, and millions of babies have it with absolutely no detriment to them, doctors need to change their approach and scientists need to study these results and realize that it's pointless to keep scaring couples with something that is very likely natural and very frequently occurring.

To all the women who have posted or read the posts on here, you're doing the right thing. Educate yourselves and don't just buy into the population-control propaganda. This is only the first of many battles you will have to fight for your child's life and well being. Don't throw in the towel now. Give it time.

I am 19 weeks pregnant, have three healthy and very bright children aged 7, 9 & 10 yrs. My ultrasound at 12 weeks and blood result came back with a 1/100 chance of Downs baby being born. The result was due to a high level placenta hormorne being present, however the OB specialist said that as the scan was normal (so far) and the blood work should have another hormone really low to be Downs, he advised us to wait until we had the next scan before we have the amino done. He felt it would be a genetic defect over placenta being damaged from tumours, another pregnancy etc.
Two weeks later at 3.30pm we had our next scan, where by 4.15pm a referral was made to the Head OB at Hospital for high risk pregnancies and I get the call the next day.
I was in another city starting a 2 million dollar contract for my business when my midwife called to say that I should postpone my next two weeks and come home and "deal" with my situation. I asked her to tell me what was going on and she said all she can say is that I need to come home and see the doctor that she could not talk with me about the results and it would be dealt with quickly! And hung up. Leaving me stunned. It took three more hours before it sunk it that the telephone call had happened. I then became beyond upset. I arranged to get the next flight home and try to sleep, waiting until 9am when I could call my doctor. Called the doctor and the secretary told me that an appointment had been arranged for the following Tuesday (it was a Wednesday morning). I was furious, so I called the doctor and demanded to know what was on the scan. He asked what did I know (I was calling him on his personal mobile that I got from a friend who works at the hospital) I said not much. He said the baby has larger than normal rivers of fluid through the brain and that this could be normal and disappear. However in my cause with the other markers (blood tests at 12 weeks) he felt it more evidence than soft signs and said he could discuss no more over the telephone as I would need to have questions answered.
So I have to wait another 3 days before I can find out what was on the scan in detail with possible outcomes and then another two weeks before the amino results come back to confirm or prove false the markers.
I am trying to be positive but it is like a broken record in my head going over all the little details that I have been given and trying to make sense of what it could be.
I can't sleep, I am praying all the time for God to provide relief from the stress and peace that it is in His hands and for a miracle if the results are negative. ARGHHHHHHHH.
We will not terminate whatever the results.

The result of my wife's ultrasound was that our unborn child had bilateral choroid plexus cysts and had an aberrant right subclavian artery. Acc to what i've read, taken alone these markers do not indicate a high risk of down syndrome, but anyone know what is the risk of downs syndrome with these two markers? We have not decided to do an amniocentensis. We had some first trimester tests such as nuchal translucency (NORMAL) and nasal bone (NORMAL). My wife is 31 years old.

i just had a follow up ultrasound at 30 weeks after learning my 20 week u/s showed bilateral choroid plexus cysts, the results today showed that they have resolved! i;m an ob nurse and the majority of choroid plexus resolve if there is no other signs of concern>
hope this helps somebody else. don't let the diagnosis ruin your joy of pregnancy:)

Choroid plexus cysts can be normal. Both of my boys had them but were ultimately completely normal.

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Thank you to all the parents for sharing your story and to keep hope alive.  I am currently waiting my 2nd ultrasound in about 4 - 6 wks so I have many more sleepless nights ahead until we find out if these issues get resolved.   Please keep us in your prayers.  thank you.