6 years after BiLateral Tram flap, increasing pain, Back pro

SORRY to hear that most post here were a constant battle with tramsflap surgery...mine was performed in Oct 2012...IT HAS BEEN 9 WKS NOW AND IM VERY SORE ON MY RIGHT SIDE WHERE HE THREADED MUSCLE FOR RECONSTRUCTIVE SURGERY.... I DO H AVE SOME CONSTANT SORENESS IN TORSO AND MIDLINE OF CLEVEAGE IT FEELS LIKE A CONSTANT PULL. IT DOES NOT MATTER WHAT TIME OF DAY IT JUST HAPPENS !!! I DID PACKING FOR 3 HOLES 3X DAILY...NOW IM ON SUCTION PUMP 3WAYS...MY DR. SAYS TO ALL LOOKS GOOD/ BUT I DONT FEEL THAT GOOD AND I TOLD HIM SO...I GO BACK IN 4WKS TO MY DR...ILL KNOW MORE THAN... IM ONLY PRAYING THAT THIS PAIN IS NOT CONTINIOUS,,,THANKS FOR POSTING ...

Mihah please do not fret. This will get betteer I promise you. The pulling and tightness sensation will go away. It does take time so be patient. You will learn to get around these things. One thing I learned is that I just cannot wear tight or even snug pants of any kind. My surgery was 8 years ago and even now if I wear any tight pants for more than a couple of days in a row I get discomfort. I buy all jeans with spandex now as wll as pants with spandex in them. The back issues have resolved and I find that sitting for long periods of time is the culprit. Stay positive and focus on your wonderful flat tummy and great looking breasts. You will be fine.

In reply to the above.

I am glad to read that your pulling and tightness went away. However for me 4 years on and years of therapy etc there has been no improvement and never will be. There are women here at this site that are 5,10 years plus still unable to move properly, suffering severe back pain, stomach problems and mesh problems, so I feel it is unfair to tell Mihah that all her issues will improve in time. WE are all told that by our Doctors and if that were true Why are WE all her looking for help. I am sure you meant well but false hope is the worst hope you can give some one. Maybe she will improve and I will pray she does, but for a lot of us we are still cursing the day we did this operation.

I completely agree. It has been 14 yrs for me, June of this year. I am disabled by this procedure. For me, I have deteriorated as time has gone on. Had multiple problems. My breast which seemed to be ok at 1st, now looks like a shriveled artichoke. I have a limp from left leg. Muscle seems to be tighter, or shorter on side with tram in breast. I take a medication for stomach spasm. I'm not sure of spelling but I think it is "Baclofen" 10 mg. it sometimes helps when I get that excruciating pain in upper and lower abdomen. Which feels like a (and looks like sometimes!) alien in there. I truly don't understand how this has not come to some boards attention. Which would either screen the woman as best candidates for this procedure. Found out, I have many conditions that would have discouraged surgeon, (and me!) from this operation. I feel it should of come to someone with some medical authority, to at least find out, (do research?) to find out how large a percentage of us had successful outcomes. I feel completely abandoned by the medical community. At least as far as guiding us, or giving us some sort of direction to go in for even just pain relief. Godbless.

have a Merry Christmas, as pain free as possible for all of us! And happy healing to those most recently affected. Those who r still fighting the battle, my prayers are with you.

take care, 

Amanda L.

We need to increase this awareness of the lives this procedure has ruined. I agree what they tell us is the process, was NOT what happened. They do not realize that when such a travesty is done to the body, other areas do have to compensate. I am attempting to have a news office bring this out in the open.. so the more we can have come to this site, the better. Blessings to you as well, take care. We will continue to provide HOPE!

Hi Bonnie,

I dont know if you have heard of a lady by the name of Jane Akre. She has a website which breaks stories about medical issues such as Mesh. You may wish to contact her as i am sure she would be happy to hear your story and discuss publishing this topic with you. I have included the site and I hope it works as I am not overly great with computers. Jane is a lovely lady who goes out of her way to help people inflicted with issues by the medical community. She lives in Florida I hope this helps.

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I DID NOT JUST HAVE JUST TUMMY -TUCK...I HAD TRAMSFLAP RECONSTRUCTIVE SURGERY WITH THAT...I WAS INFORMED THAT I WILL BE IN SOME MODERATE PAIN, WHICH I AM.... IM RE-ADJUSTING TO ALL THIS AND I STILL GET OUT AS MUCH AS POSSIBLE...I HAVE DAYS THOUGH, IFEEL LIKE : IM FEELING SO GOOD, I DONT WANT TO RUIN IT/ SO I STAY IN BED....LOL...I LEARNED NOT TO OVER DO IT...ON MY RIGHT SIDE IS MESH DR. USED FOR SUPPORT ...HOW ONG DOES THE SORENESS LAST FROM NOT HAVING A MUSCLE? I KNOW ABOUT THE TIGHT PANTS.OMG! THAT IS THE TRUTH ABOUT SPANDEX ...IVE BEEN WEARING THEM FOR 9 WKS NOW!!! AND WILL AS LONG AS I HAVE TOO!!! I HAVE ABOUT A YR TO GO YET,,,BUT THE BIG PART IS DONE ON BREAST....THANK-U FOR YOUR INSPIRING WORDS, I LEARNED THE SITTING FOR TO LONG IS WORSE TOO!!! GOOD ADVICE, I LEARNED IT TOO...

Wow! Sounds like you don't even need to be on this post! Sounds like things r going well for u. Unlike many of us. You sound like you r having typical post surgery problems. I was under the impression, this particular post topic was for woman who have been suffering multiple problems, and long term effects from poor outcome from this procedure. Good luck. My problems got worse as time went by. Hope you have better luck than those of us who have been suffering all these years. Have a great New Year!

A. Lord

I am attempting to connect with Jane Akre. I believe someone needs to hear these stories and expose
this. The lives of many have been ruined by this tram flap procedure and everyone is ignoring the
horrifying results. This needs to be exposed by someone who can see the injustices done.

Hi Bonnie,

If you have any problems please email me at

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 and I will send you her details.

Yes all the doctors just ignore all our issues and symptoms. You are right they do not realise that when they move things and remove things to the degree they do, it has to have an impact and if done incorrectly well, we are those women.

Best wishes to all.

Rose

Hi,

 

I am a little confused.

Am I not permitted to give either my own personal email address as a reply to someones message?

Also am I not permitted to give out an email address of a journalist who is helping women all over the world with medical issues

 

Can someone please clarify the above. 

 

Thanks

 

Rose

I completely agree! How r we supposed to gain support or find help. If we are unable to obtain resources, or each others email? Perhaps the administrator, or moderator could respond, and give us some direction or advice about this?! I'm sure ALL OF US. Dealing with this, would greatly appreciate any help given?

thank you,

Amanda L.

dearest Mary, your story sounds very similar to mine. Especially All the pre conditions you had before surgery, developing into much worse chronic conditions. This was almost 14 years ago! Needless to say, things have only gotten progressively worse..... You are in my prayers.

Hi Mandaamea45

I did not read the terms and conditions whenI found this site, I guess because I was so elated to find a place where I did not feel so alone anymore.

I thought this site was meant to help all of us in ways we may not be able to help ourselves. I thought the whole idea of this site was where we all could share our stories and more importantly share the names of possible Doctors who can help us or things to try, I dont know, I just assumed this was a site that gave us some chance of finding a resolution to all our similar problems along with maybe find a journalist to help get our story out there.

So is this site nothing more than a place where we can all tell our stories and nothing more. Is this what this site is. We can all share our woes but if there is someone who has been helped by a Doctor are they not aloud to tell us. Or like this journalist, are we not allowed to share that.

I am really really confused because if this is a site that is nothing more than "tell your story" but offers no help via feed back from other women then I dont know what to say to that except what a waste of a resource.

Am I the only one thinking this.

Anyone have opinions, suggestions anything. I am listening and wanting to find a solution so I can get my life back,

Rose

SUSAN: I HAVE RECENTLY READ YOUR POST ON TRAMSFLAP SURGERY....IT IS INTERESTING AND VERY SAD ALSO TO SEE HOW SOME HAVE WENT THRU MUCH PAIN AND DRS HAVE NOT HELPED AT ALL CONCERNING THESE MATTERS ...I WAS CURIOUS TO KNOW IF YOU HAD EXPERIENCED PROBLEMS WITH SIDE WHERE THEY TOOK MUSCLE?  I AM VERY NEW TO ALL THIS SO I WOULD APPRECIATE ANY FEED -BACK...I UNDERSTAND WHAT HAS HAPPENED TO SOME OF THSES WOMEN HERE...AND IT SADDENS ME TO THINK WE TRIED TO IMPROVE OUR LIVES...CAN THEY DO A MRI ON MESH IMPLANT TO SEE HOW FAR IT HAS SUPPORTED AREAS OR IF IT IS DOING WHAT ITS SUPPOSE TOO?    I WILL TRY AND REMEMBER TO ASK DR ABOUT THIS TOO....AGAIN, BEST WISHES TO ALL OF YOU WHOM ARE STILL SUFFERING THRU ALL THIS...HOPEFULY ....THERE WILL BE A SOLUTION...  ALL OF U ARE IN MY PRAYERS...MIHAH.

SO WHAT U ARE SAYING IS : IF MY SEVERITY IS NOT SEVERE ENOUGH TO BE POSTED THEN FOR ME NOT TO POST...I CLEARLY SEE THAT YOU WANT TO HEAR COMPLAINTS OF SEVERITY WITH SURGERYS AND WANT TO CALL IT AS U READ IT....NOT ALL PEOPLE ARE LIKE YOU AND THE TIME FRAME IS NOT THE SAME EITHER... I HOPE THAT I HAVE BETTER LUCK ALSO....I PRAY FOR AL OF YOU...GOODNITE...MIHAH