6 years after BiLateral Tram flap, increasing pain, Back pro

hi rose,

my internet provider is comcast
add my user name and that together

let's talk

hi let's get some sort of movement started
i use comcast as an internet company
put my user name with it---
and let's talk

i have a family member who might write a big article about this

I am searching for a Dr. who would be able to do plastic surgery/hernia repair of tram flap procedure with scar tissue. My stomach is huge with hernia - my waist is a size 16 and the rest of me is a size 12. My stomach bloats up after eating a small meal and I cannot breathe from the pressure on my lungs.  I've been everywhere and had parathyroid surgery, heart surgery (they said I had blocked arteries but I find out later they weren't blocked but the Dr. put in stents anyway).  No one can seem to figure out how to fix my stomach?  Can anyone help with a referral in Florida?  God bless all my sisters going through this.  I've been living with this mess for 9 years and searching for help.

 

thank you,

Shar2730 - you may contact me 

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Hi,

Do you have Mesh?

hi everyone

i have a friend in washington dc who had sensory neuropathy and radiculopathy for 16years here is an extract from his blog

"My name is Robert Root and I started using ***** supplement on 4/25/12, within 5 days the results I experienced were shocking to say the least. After 16 years of pain from sensory neuropathy and radiculopathy I am experiencing less pain and better coordination so rapidly it makes me gasp with joy. I sleep better, have less stinging sensations, the numbness fading in my toes, and my muscles stiff and aching anymore. If you live with chronic pain I urge you to look at ***** supplement as a viable alternative to dangerous and often addictive prescription medicine.The doctors told me there was no treatment for neuropathy, the neurotin medication called Gabapentin barely took the edge off of the pain for about 6 weeks than quit working altogether."

as for myself, when i was very young,i had had gone fishing with my dad and had a fishing accident landing on my spine, which resulted in sciatic pain, i had upteen xrays of my spine and saw so many doctors, who all told me ,"i need spinal surgery", which i was scared to proceed which could also lead to paralysis waist down

even though i was very sceptic about this supplement and i couldnt buy the supplement where i live as i live in malaysia i started taking it and found relief its been months since i had the chronic pain

the person who suggested i try this product. i know his wife (pamela) had problem with her hip and knee, with very severe chronic pain and was supposed to have surgery to get it fixed, with this supplement, it has changed her life completely here is part of her email to me

" I have joined a military special ops work out gym. Friday we did 500 squats. (No weight) They got pretty shallow in the second half, but I still did it! If you remember I have been diagnosed with 2 arthritis' and told I needed a knee and hip replacement. I have an xray that shows my knee bone on bone. I'm even doing lunges for the first time in 15 years, literally."

its not a medication, its not a pain killer medication which will give you temporarily relief. its a supplement which starts repairing on a celluar level and it works,, trust me it works,,and it works fast



i know i am not allowed to post email addresses or telephone numbers or product names on this site

look me up on facebook....we could talk in detail



warm regards

caesar desouza malaysia,,,

Caesar,

Are you selling ASEA.

I found your website.

How dare you post in this site. You are selling ASEA - which is nothing more than a Dietary Supplement.

Do you think we are stupid at this site. HOW DARE YOU, HOW DARE YOU, YOU ABSOLUTE LOW LIFE.

WHAT YOU ARE SELLING IS LIKE GOJI AND ACCAI ETC.

GET OFF THIS SITE YOU PREDATOR. YOUR STORY ABOVE IS UTTER RUBBISH.

Rose

This is what helped me when I felt this exact same way, I understand. I researched someone that did myofacial release (a form of slow movements in area of scar tissue) this helps improve circulation, and helped slowly release scar tissue. I did have to have hernia repaired first, and then had to wear a support band across my abdomen so I wouldn't have such pressure. I also had shortness of breath because the muscular areas were so tight, and shortened. My stomach was also pushed up because the muscles distorted this and I could hardly eat. I also had to take care of myself, take classes (warm water therapies) to help my body deal with the intense (physical and emotional stress) I also had to take care of my health with healthy choices to keep additional weight off or it would have been even more difficult to breathe. keep your faith and trust we find hope in one another!

I agree we all need to be cautious when reading posts. However, some things may be helpful to others, yet if someone is selling a product for personal gain, that is another. We are looking for things that have helped us along the way, yet it may not be helpful to some. Let's move forward, keeping aware, and being hopeful that perhaps one thing may help another.

We need to contact Liz Collin, WCCO, a local station here in Mpls, MN They did my story and need to hear
from more of us. Contact station, mention my name she will know the story. More needs to be told!

Hi Rosek,
Im not sure if I have mesh, don't think so, because I have a large hernia the size of a loaf of bread on my right side. My original plastic surgeon said he would put mesh in to hold the hernia, then when I got ready for the surgery, he cancelled my pre-surgery appt. and declined to do the operation. His office didn't give me a reason.

I can't even get into the Spandex anymore, my stomach is too huge and hurts too much. I was thinking about making a appt. with Mayo Clinic to see if they have any suggestions. Thanks for your concern.

regards,
shar2730

Hello fellow breast cancer survivors and current warriors of living post-TRAM flap. Like many of you, I am glad to find I'm not alone. I had bilateral TRAM in 2005. I was a mother of a 1 year old and an 8 year old. I was 35. All i was thinking at the time was--I HAVE CANCER? I, too was mislead by an inexperienced surgeon who made a "tummy-tuck" seem like the consolation prize to cancer...when at the time, I'm having to make life and death decisions about chemo and treatment and mastectomy--SURE, a tummy tuck? I'll take it. He told me my life would be totally the same--i will be able to do everything i could do except the only thing I'd never be able to do is a sit-up! Wow. What a joke. Yeah, I can't do a sit-up, but I also can barely sit, lie down, stand up, cook, clean...without having extreme pain in my lower back, hips, sides, etc. I've been to multiple physical therapists and it only made it worse. Most of the medical professionals don't even know this surgery exists--let alone a successful approach to helping patients like us to cope with life without ab muscles. It's devastating. I would definitely be interested in some sort of class action suit or contacting media, etc--mostly to get the word out about how uninformed doctors are about moving muscles! I would NEVER ENCOURAGE anyone to have this surgery. It's the main regret of my life and there's no undoing it :( That's the story that needs to be heard. Feel free to email me Shaunaconnweller@yahoodotcom

Hi,

This is really a reply to EVERYONE.

It breaks my heart to read both the new and old stories. Everyone had been through so much fight cancer only to have there lives ruined by TRAM FLAP.

I to would never recommend this procedure to ANYONE.

HAD MY DOCTOR TOLD ME ANY NEGATIVES ABOUT THIS SURGERY I WOULD HAVE RUN SO FAST.

ALL I WAS TOLD WAS THE SAME AS EVERYONE ELSE === YOU GET A TUMMY TUCK AS AN ADDED BONUS====

WELL I WOULD RATHER HAVE MY STOMACH BACK AND HAVE MY IMPLANTS BACK RATHER THAN LIVE THIS LIFE THAT I AND SO MANY OTHERS HAVE NOW.

I EVEN WROTE TO DR OZ, NO REPLY, I HAVE WRITTEN TO THE DOCTORS ON SHARE HEALTH AND SO MANY OTHER PLACES AND GUESS WHAT ===== NOT ONE DOCTOR HAS REPLIED, NOT ONE=======

I do not have a husband nor a partner and have now accepted that I never will. How can i open my self up to a relationship if I cannot move properly, look deformed and am in pain. HOW?

So to everyone here, it is hard to stay strong, and I read with sadness everyones pain and search for answers, but I will remain hopeful that one JUST MAYBE ONE DOCTOR OR PERSON WILL REPLY TO US WITH AN ANSWER OR SUGGESTION TO HELP US ALL.

I FEEL WE CAN ONLY COUNT ON OURSELVES,

LOVE AND PRAYERS TO ALL

ROSEK

This is Bonnie, I would like everyone to post about how this has affected your life. Did you lose your job, how did it affect your family, did you have health insurance, costs? This is horrifying to see how we have had to survive as a result of this. For me I lost my business that I loved. I had extreme difficulties in daily functioning to this day. Accumulating health issues as a result. My husband then filed for divorce, leaving me without a home, borrowing money just to live. I live in below poverty level, need food assistance and the list goes on. Including the devistating judgment from a local judge in family court, that had NO idea what I deal with on a daily basis. This is a nightmare, not my choice and yet I cannot keep going like this. These stories need to be told, perhaps some good will come out of it!

Bonnie

I would love to join or organize a movement to stop tram flap surgery. I to am a victim - when my doctor suggested it , it sounded so great. I had the surgery nine years ago in South Florida. For the first four years things were good. But for the last four years I have suffered like everyone else in these posts. Huge stomach and I am only a size 8-10. I can't eat more than a few bites and the stomach gets bigger, heartburn, gas and awful back aches right behind the ribs. It feels like I have a huge tumor in my stomach much of the time. I keep looking to see if it can be reversed but haven't found that answer. I would give up the breast just to have the relief.... I hope we all will be able to find someone who can help us lead a pain free life.

Hi Bonnie, In reply to your post. Yes I lost my job, I did an interview and my story was published on a site I never thought anyone here in this country would read, but I was wrong. Someone read and told someone else etc and then my employers read it and because I stated in my interview that I fee I am just sitting around waiting to die I was deemed a mental health risk and released from my job. So please be careful about doing interviews if and what you say. Of course my employers called it downsizing and I received a payout but that did not last long. My left in 2010 for reasons that I am sure many women here understand. Intimacy became an issue, I am also very self conscious about how I look and how some areas feel. Mentally I am so tired of everything and that includes life as I dont really have a life. Many friends have dropped off along the way, I cannot do a lot of the things I used to be able to do prior to this so called amazing breast recon surgery/tummy tuck. My body is odd shaped now as it was sewn so tight that over the yeas of having to stretch it out well it looks weird. Yes back pain all the time and yes when I eat even just a little my stomach bloats out of proportion and it makes if difficult to breath and the list goes on. I live a frugal life with no excitement and not much to look forward to. For me when I am out it is so hard seeing so many happy women with their partners enjoying their lives knowing mine will never be the same and that at my age 53 I really cannot see myself find any man who would accept me and all my troubles. i do not have children maybe that is a good thing, I am lonely most of the time and in a way my escape is enjoying certain TV shows that allow me for at least a small amount of time to forget my life. I do not mean to sound so bleak and this is just my story and my feelings. I have a sister who cannot understand how I feel or what I went through and my Mum is 82 and has her own health issues. As for health insurance, well as no doctor will state that these problems relate to the Tram Flap, they will not pay for anything. I have swollen joints, back aches, limited movement etc and the best I can do is Physio treatments - and whilst I may feel a little better for one or two days my body quickly goes back to post op conditions. So to sum it up. my life is just based on existing, with an occasional laugh but more tears than anything else. I do not think about the future, I cannot see a reason too, I like most live from day to day. 

 

Rose