hi i have a 14 month old daughter who has severe birth defects such as agenesis of corpus colosum, dermoid sinus on nose, raised upper pallet, tongue tied, a severe heart defect( closest defect they can compare her to is truncus arteriosous) and organ deformities ....they believe she has a chromozome defect however all test have come back normal, now they are sending a blood sample to a high tech lab in texas to retest her sample... i was wondering if anyone knows of a syndrome that she may have, or possibly give me some hope that they know a similar child to her that survived...they are trying to make me sign a do not ressitate order and i can not do it... please if anyone can give me some advice or a little bit of hope thank you