My daughter was diagnosed in 2009, people dont understand. I did find a story called the spoon theory ( something like that) google ir, it is a very good story that will help those around you better understand. Also, as for medications, she has been on many. Since she also has a host of mental health issues, anxiety, adhd, ocd, she was prescribed adderall for the adhd. This actually helps tremendously with her pots. I did read that some dr's are prescribing stimulats fir pots.
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I am not a medical profesisional, just a patient. I have just this week been diagnosed with csf leak due to a fall injury at multiple sites in my spine. I was diagnosed with inappropriate sinus tachycardia 2 months ago. I got a stress test and 24 holster done to diagnose, you should ask for this. I had no problems getting prescribed a Beta blocker, however it doesn't solve everything but does give relief. So far no doctor can tell me the calf leak definitively caused the tachycardia. However, I never had this before. My intuition tells me it's all connected. Don't stop advocating for yourself. You know your body best, get 2nd opinions and demand testing. Ct myelogram revealed my leaks. Keep demanding tests till you get your answers. God bless!
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