Hello,

I’ve been first diagnosed with sarcoidosis in 2009. and at that point it was only in my lungs. I underwent the treatment with biologics and things seemed to get better at my each check up until the last one, two months ago. PET scan showed sarcoidosis has started to affect my heart and I was diagnosed with cardiac sarcoid. I went through another round of biologics and am scheduled for another one, but my rheumatologist - even though he isn’t telling me directly - doesn’t seem to be optimistic.

If anyone on here could be honest with me and tell me - how long can I live with cardiac sarcoid, assuming that sarcoidosis doesn’t affect any other organ?