Light headed, headache, spacey feeling. Tons of tests done, no result.

Interesting reading. I too understand what everyone seem to be going though. I thought it was stress from being unemployed for over a year and just started a new job. I'm am currently seeing an ENT specialist. My problem seems to start in the afternoon when my energy level starts to drop. I notice it more on the second half of my 12 hour shift. On the third day it really starts to come on sooner. I have increase my aerobic exercise, and been working on eye and neck exercises, and shoulder scrugs (got from ENT specialist) to improve the brains ability to adjust to balance and motion changes, it also helps to release tension in the neck area. It has helped a little. Have been thinking of visiting my Chiropractor to get an adjustment to as it seems to start around the neck and base of the skull. Some days the headaches are worst than others. I have notices when I don't keep myself hydrated enough I headaches get worst.

I don't have a solution, but reading all these posts is helping me collect information to find some of the commonalities.

At least now I don't feel like I'm alone. It is the feeling of being off balance, or feeling like I might pass out that has restricted my enjoying myself when going out. I'll keep reading these post and post anything I find that helps.

Thanks for you for sharing your experiences and recommendations.

I am really happy to have come across this. I have been encountering these symptoms for a few weeks now. I visited my PCP this week and had blood work done. The only thing they reported was that my cholesterol was slightly high. Everything else was normal though - thyroid, sugars, kidneys, everything. I just can't figure out what my deal is. I was thinking maybe I was pregnant but I just don't think that's possible. I've taken tests and they've come back negative, but maybe too early to tell at this point, who knows? For me, it also seems to happen when my energy level starts to drop and then just gets worse from there. I am in the process of planning my wedding and things at work are crazy, so maybe this can be attributed to anxiety & stress. I am changing my diet and beginning a regular exercise regimen, so maybe this will help...

Hey y'all.

Wanted to give you guys an update. I saw a psychiatrist (spelling?) and she said what everyone else has been saying, its all because of anxiety. She gave me some breathing exercises and a kinda of mantra to say to myself when I start to feel these symptoms coming on. I have been trying them for a few months and I'm happy to say that its working! Seeing these techniques work has made me 'turn the corner' on this and I'm happy to say that *I* now have the upper hand!

To all those suffering, give this a try it may help you: if possible go to a quiet dark place and lay down. close your eyes and relax. dont just tell yourself to relax, really do it. feel your body go limber and take deep breaths and think to yourself "I'm having an anxiety attack. My mind is making me feel funny, but there's nothing wrong. I'm going to lay here and take deep breaths to calm myself and these feelings will subside and eventually go away."

For me, after doing this for a few days I felt the feelings coming less frequent. Its as if, now that I have a way to beat it, it "knows" it cannot affect me.

Hope this helps. Feel better!

HI everyone! Reading everyone's similar symptoms almost brought me to tears...my husband thinks I'm crazy because I'm CONVINCED I have MS but the MRI/MRA and CT are all negative. My labs are "perfect" yet I still have the same exact symptoms that all of you are experiencing. I have an appointment with a Neurologist at the end of the month...all of this has been a huge strain on me and has caused me a great deal of anxiety. The missing words, memory loss, spacey feeling and coordination problems are the most frightening. I just want some relief...I'm so frustrated...and tired ALL the time. I think I'll make an appointment with an ENT but I feel discouraged and pessimistic...It's nice to feel like I'm not alone and that I'm not going crazy...

Well first of all its nice to know im not alone when it comes to these symptoms. the "spacey", dream like state, light headedness, cloudy mind, and as one of you put it, like smoking your first cigerette buzz (perfect analogy for what i feel btw) are my biggest issues. As well as not feeling sadness when it should be present, but the temper can be there. I dont get headaches or vertigo or any sort of pain though. I have seen a couple of "doctors" who dont seem to care much and just want to move me in and out of the office. I have been prescribed xanax and zoloft for my so called anxiety/stress (by 2 different doctors). I don't get much relief from them except for being in even more of a cloudy state. I used to think it was the smoking that was possibly cutting off oxygen, but after i quit even months later the symptoms still continue. As far as i know i dont have a sleep disorder, i always get atleast 8-9 hours of sleep(maybe to much?). I changed my diet around a little, stopped eating sugar, drinking more water, and so on. I am 23 and have had this feeling since atleast 17 from what i remember. My job has me pretty active although when i get home i admit im on the computer all night. I also starting exercising more still no change as of yet.

Something that i found interesting though is when i drink alcohol i tend to get drunk off of like 1 or 2 drinks and it hits me fast(anyone else?). Also I will admit that i was using cocaine and percacets not to long ago and both seemed to have me in a more "normal" mind set. obviously no one should try this i just found it odd that cafeine/redbulls/ect don't do a thing in that sense. And no i do not do drugs now and didnt do them in the early years of these feelings.

I too have thought of seeing a chiropracter, because i know for sure i have terrible posture for one lol. and some guy at a carnival gave out free exams and said i had pinched nerves and other problems, but thats coming from a carny. if anyone goes this route please let me know if it helps in anyway.

I also almost never want to do anything outside of work, i sit home on weekends and just lay around at night. i question that it could also be depression although i dont feel sad just tired and tired of feeling like this. Any feedback is greatly appreciated

I am reposting a very long answer from another thread that may have some bearing on what you are experiencing.
Bottom line is ... you may want to give some thought to the possibility of a fairly recent phenomenon: Electromagnetic Sensitivity. More and more folks are finding it affects them. The good thing is, there are things you can do to test yourself to confirm it or not.
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I have to share our story in case it helps a few or even one of you, because I totally sympathize with your pain. I wish I would have found this info years ago, so I feel obligated to share. I've been trying to figure out what has been making my son feel "like c**p" for years. This is a long story, because it turned out other family members were experiencing different symptoms, all from the same source, and I wanted to include the whole sorded story!

It really started when Jay was about 11 - he was suddenly having great difficulty focusing, needed much longer to complete tasks, was always tired, and had severe stomach aches. He saw a Pediatrician who also happened to be a Psychologist - she dx'd ADD - "but with something else going on here". Later she added that he had "puberty-onset dairy allergy/sensitivity". Never once did she say anything about anxiety. Allergy testing showed no allergies, but he stopped dairy anyway and we tried an elimination diet - no real help. Tried ADD meds for awhile - helped focus somewhat, but side effects were way too scary and other fatigue and stomach issues still present, so stopped meds.

Fast forward a year - we do a major renovation on our house. Jay also gets orthodontic braces. Within about a month, he starts having intense pain and pressure in the backs of his eyes. Most of us might refer to it as a headache, but he insisted it was the backs of his eyeballs.

His PRIMARY symptoms/complaints: Pain and pressure in the backs of his eyes, 24/7 ; brain fog - with great difficulty concentrating and poor memory; dizziness; exhaustion, even after 10 or 11 hours of sleep; overall aches and pains for no apparent reason.

His SECONDARY symptoms/complaints: stomach pain; sore legs or weakness, numbness, tingling in legs and arms; lack of coordination/clumsiness; overheats really easily (this is when he feels the worst - so exercising is difficult); nightmares/night-terrors and even sleepwalking; depression; "floaties" in vision.

Coincidentally, at this same time I started having severe and frequent heart palpitations, which were paricularly bad during PMS time. I would also get weird tingling in my head, chest and arms and feel "buzzy" and anxious (not sure how else to describe it). My husband developed painful arthritis, high blood pressure, started having chest pains and was just always extremely agitated and moody. I'll come back to this later.

We started by asking the Orthodontist if there might be a connection with Jay's braces causing this excruciating eye pain, and he had never heard of such a thing, so we moved on to every specialist under the sun. He saw: Allergist (again, no allergies showed up), Opthamologist, Optometrist, Neurologist, ENT, Physiatrist, and others that I can't even remember at this point. They checked everything: eyes, thyroid, sinuses, all major organs, he had a CT Scan, an MRI, and every possible blood test you could think of. Of course I was searching online endlessly for "eye pain, braces, fatigue" and not coming up with any answers. We tried massage, chiropractor, naturopath, elimination diet, accupressure (which, incidentally, was the ONLY thing that provided any relief - if only for a few hours!) By this point, my son was 14 and so frustrated with no-one being able to figure out what was causing his pain that some of the things he was saying were verging on suicidal. So into the ER I took him - and I'm sure you can ALL guess what we were told ... of course they said he has an ANXIETY DISORDER!! At first I thought, ok, that's a new one, maybe that explains it. So I read all the literature they suggested and that I could find. I went to parent seminars and support-groups. I came to the conclusion very quickly that he probably DID NOT have an anxiety disorder (although I could tell from what I'd learned that others in my family probably did!) ... but not Jay. His NEVER-ENDING PAIN AND FRUSTRATION caused the anxiety, not the other way around, dammit!!! Grrrrrrr....

So then we're back to suspecting the orthodontics, and counting the days till they came off. He was devastated when the braces were removed and it made not one bit of difference to his pain, immediately or over time.

The other odd thing that we noticed was that he would feel worse at certain people's houses, in certain classrooms at school, or even in certain stores. He would be running with his gym class and feel pretty good, and then get to a certain point along the route (always the same point) and feel like he'd been hit by a truck, his head was in a vice, and his legs would seize up. WTF??? The only place he discovered where he felt really good and symptom-free was when he was up in the mountains away from everything, or out in our boat fishing in the ocean.

At this point I also clued into the fact that we had done a major renovation to our house at around the same time his symptoms started - I wondered could we have installed some material that's been making him sick? I sought out and hired a professional Building Biologist to come to our house and test it. She ran the full gamut of tests and we ruled out toxins from building materials. She did find a very small amount of mould deep in our crawl-space, but we don't think that is an issue. She concluded her testing by checking for sources of electromagnetic radiation ... and she showed me the off-the-charts reading coming off her Gauss Meter when held up against Jay's Sonicaire toothbrush plugged in and charging in the bathroom. The one he started using when he got braces. The one he still uses even after the braces are off. She tells me there are advocacy groups trying to have these toothbrushes banned. Then she held her Gauss meter up to the DECT 6.0 cordless phone in Jay's room, next to his bed. She said some people really suffer from Electromagnetic Hypersensitivity, so we may want to try removing any electronics from his sleeping area first and see if it makes a difference to the way he feels.

So we took everything out of his room that night: Cordless phone, wifi-enabled laptop (which he would shove under his bed), PS3, tv, clock radio, everthing. When Jay woke up the next morning, he said it was the best and most refreshing sleep he'd had in 4 years, and he could "hardly feel any eye pain at all". And another interesting tidbit: our dog and 2 cats ALL went in and slept in his room that night - they had NEVER, ever done that before! Hmmmm...

I started researching this unheard of phenomenon of "Electromagnetic Hypersensitivity" (EHS), and I was shocked to find that the list of symptoms not only matched Jay's, they also included the heart palpitations and other symptoms that me and my husband had too. It is believed that there is often some kind of trigger for those who are the most sensitive, and in Jay's case, I believe it was putting that highly-radiating toothbrush into his mouth full of metal twice a day. So things were starting to fall into place now. When we did our renovation, we installed wireless systems everywhere - with those DECT 6.0 cordless phones in almost every room, and of course a wireless router. This router, which we found out are hugely radiating, sat on our main computer desk, so we were sitting within a meter of it. But what about all the different locations where Jay felt the sickest? Turns out the places he felt the worst had the most electronics and WiFi, or concentration of cell phones (he's never had one, thankfully). And the runs in gym class where he'd suddenly get debillitated? The class was running right by a bank of cell phone towers. In most classes he would be surrounded by 25 or 30 students ALL with cellphones in their pockets.

We removed our cordless phones and went back to stricly corded. We planned to go back to cabled internet as soon as we could (it was going to be expensive to rewire our house). I conducted my own "blind test" one day to see how much the router affected Jay. He was sitting at the computer desk working on his grade 11 Math. He was struggling, confused, collapsing on his papers and gripping his head where it hurt. Without him knowing, I unhooked the router and he was honestly like a puppet being pulled up by strings. He suddenly understood the math and started working furiously on it cuz it suddenly made sense, and he was so happy. After about 10 minutes I secretly plugged it back in, and right away he collapsed back into a confused heap. WOW. We have since done a few other similar tests to prove that we were not imagining something that wasn't there, and we were convinced. We booked the networking technician to come in and rewire us asap- no more wireless anything for us! After it was done, not only did Jay feel quite a bit better, but my heart palpitation problems (which I'd been put on medication for) virtually stopped, as did the weird tingling/buzzy feeling. My husband's arthritis calmed way down, the chest pains stopped, and his agitation was reduced by about 90%. Although Jay was feeling quite a bit better, it turned out that he was also suffering from Obstructive Sleep Apnea and huge tonsils all along, which we are presently dealing with. That part of the story I will leave out for now, but I do believe it is all connected.

I could literally go on for hours about all that I've learned about EHS, and provide hundreds of links ... but I know I can't do that on this forum. EHS is an official medical disability in Sweden, where they've done some of the most thorough research. Ironically, Canada (where we are), the US and the UK have some of the highest (worst) "safe level" microwave radiation standards in the world ... the levels that we are "allowed" to be exposed to here are 1000 times higher than what's allowed in China and Russia, for example. The signal strength of all this electrosmog is increasing every day, because the regulations are a joke. This is Big Business folks, and changing the system is going to threaten a LOT of people's livliehoods.

Some of you have said a few things that made me wonder: ie "always feeling sick within an hour of getting to work" and "symptoms suddenly started in the subway" and "I felt better after being away from the computer for a few days". You all have technology in common, and a lot of you said you are around the same age too. Are you aware of where cell towers are in relation to where you live? Are they on the roof of the building you live in, work in or go to school? Did you know that property owners are paid thousands of dollars (ie $10,000/month) to allow those almost unnoticeable transmitters on their roof? You shouldn't be within 500 meters of them, and 1 km is safer. Does your neighbour in the next apartment have a wireless router within a few meters of where your bed is? If you start paying attention to where you are and what's around you when you feel the worst as well as the best, you will know quickly if this is what is contributing to your ailments. We found out too that one of the worst radiating items in our home was the XBox 360 and it's wireless controllers ... which amazingly radiated the same amount whether it was turned on or off. So to be safe, unplug electronics when you are not using them. Getting undisturbed sleep is the #1 thing you can do, cuz if your sleeping poorly your overall immune system takes a beating. So DON'T sleep with your cellphone next to your head. We have all started either texting or using speaker phone IF we have to use our cellphones. We've now met many people who are feeling lots better after testing themselves. One person stopped having seizures after removing Wifi from his house - he couldn't believe it!

I'd be really interested to know if this helps any of you! Send me a private message if you want more info or links. Feel better soon!
JM

I have the same syomptoms as you have. I have gone to MRI, and EGG and everything seems normal. So, I had counslor suggest me go to neuropsychology, which I've never gone to. I have these symptoms since middle school. Now I am 22 years old, still going through unkown. However, they found that I have seaziures that I am suppose to be on med. However my counslor wants me get into futher medical attention. Just doing MRI and EGG dosen't always show the answer. I am really hoping that nurospycology will figure what's wrong inside of the brain. I have been spacy almost two months, headache, short breath, weakness,tired, all I want is sleep. My freind notice when I have a symptom of seaizure, I act very different,talk different, not able to concentrate at all. It's like being out there and can't get back to yourself untill you get over with seaziures. I hate seaziure that make me feel tired, and major headaches, that all you want is sleep. Plus, can feel the overloaded activity behind my head that it feels like it was too much electricty. For example, I can't be excited or my brain feel funnym or I can't handle kids screaming, high activity, or laughing or lights. It's very fustrating and I understand that some of you going thougth the same thing. Yes, there's a medication that can help your brain chemical imbalance. That's all I can say. I have been very patient, and yes I have an anxiety, and I have difficulty breathing as well. When I go futhermore with my medical attention, I'll let you know.

I have the same symptoms too... same thing, tests come back normal and they say it's anxiety which I have a hard time believing. Was the MRI just of your brain? I'm thinking of going in and asking to have an echocardiogram, although my ekgs were normal. That's something you might want to look into because it could be mitral valve prolapse or something with the heart.

I just happened to come across this, and its amazing that I have felt the same thing since the begining of the year. I went to the ER the first time it was SOOO bad, I had a feeling that he thought I was lying, or something... I wasn't. He checked thyroid, blood counts, every blood test they can do.. I passed. I had an MRI, passed that, hearing is great, and even passed the vertigo test (they thought it was that)... I gave up on going to every doctor I come across because they all say the same thing.. I just dont know. I thought maybe it was the weight I put on, but I've lost twenty pounds and its still there. I tried the chriopractor, she said it wouldnt be from my back/nerves so I saw her for about three months to adjust my back anyhow.... It is a very scary feeling when it occurs. kind of makes everything blurry, and the room spins. the light headed, dizzy feeling makes me feel like im going to pass out. Im glad im not alone though, but obviously we all annot find a reason, or a cure. my god help us all, because even if no one understands us. Its a very scary, unpleasant thing we're dealing with.

I don't know if my situation is exactly the same, but, from time to time, An excerpt from a tv show would come into my head, I can never remember the except, but sometimes I can remember the show, sometimes I try to remember what show or program it was. this is sooo strange and I am afraid, I do not want to go without a diagnose as it just might progress to something very harmful. I spoke with one doctor, (not my primary doctor) an she asked if I was the type of person to analyze things, yes, I am, but I do not see how this can cause the problem that I am experiencing, it's not like I analyze things all day, every day. I would feel very light headed or spacey. I do not have to be doing anything particular, can just be sitting at work, driving, or talking and it would just come to my mind, At times it is heavy and at other times it is very faint. I may not be describing it very well, but then again, it is so strange this is the best I can do. does anyone have any idea what the heck this can be. I am really afraid.Code:

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Just to add a bit more to the inquiry, forgot to mention that the light head and spacey feeling comes at the same time as the excerpt from a program comes all the time, it is such a bad or scary feeling I want to cry

ask a doctor about behcet's disease right away!!! this goes for anybody else with these symptoms! it's a rare disease but is misdiagnosed all the time!. Hope Everybody feel better soon! GOD BLESS!

I am experiencing the same feelings. One day I woke up up and felt like I had a tired, spaced out feeling that has not gone away. I have been dealing with this for the past two weeks. It is not so bad in the morning, but gets worse as the days moves on and then gets better at night. I do not have a lot of other symptoms, no fever, no pain, sleeping pretty good. I have had bloodwork, checked out O.K. I am having my thyroid tested next week. I sort of hope I get an answer. I have never had any anxiety issues although I did have some discomfort in my upper stomach this past summer, but do not know if they are related. Any help would be appreciated- I want my life back

Hello,

A lot of these symptoms i have had now for about 2 months, i am on thyroid medication for life as i have had a thyrodectomy operation and am being treated for depression.Been told i also have thyroid eye disease... No one mentions on the woman side of things if their periods stopped. Basically i have a thumping pain in back of head, periods stopped, sicky feeling, motion change a lot ( sorry about that bit of info ) had a few glasses of wine the other day for a wedding reception and spent 3 days in bed afterwards constantly being sick and not able to hold anything down. constant pain in back of neck and light headed feeling. All i keep getting told is it is to do with depression and more pills prescribed. I hate feeling like this... :-(

I have the sever lightheadeness with pressure much like everyone as described here. My neurologist has diagnosed me as having Simple seizures and placed me on dilantin. Within 4 day or me being at a theuroputic level all symptoms stoped! Then after a couple months we decided to stop the med and see what happed. Within 3 weeks it was back. Ask your doctor if they thinkk it may be a rare type of seizure. Hope this helped.