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I would like to hear from people who suffer from arthrogryposis multiplex congenital, if there are any present on these boards? I have been experiencing severe movement limitations as my condition progresses, something that doesn't make life any better. I am wondering if any arthrogryposis multiplex congenital patients have managed to find a solution for this, and if you have, whether you would please share it? I am open to any kind of treatment, even experimental or alternative. Thank you so much in advance for any help!

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I don't have advice but wanted to give you the Arhtrogryposis Support Group website in case you haven't found it....

www.amcsupport.org

Best of luck!

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