my husband has had daily dibilitating headaches for almost 2

I am @ a loss and I am now coming to the net to help try and get answers. My husband has had chronic dibilitating headaches for almost 2 years now. Now he is out of work on DB indefinitely. He started having seizures which they later classified as pseudo seizures, they found he had low spinal fluid and had 2 blood patches for that. He has chronic nosebleeds that were supposedly linked to uncontroled high bp, but after about 4 new meds, finally settling on Bystolic, his bp is in control, but nosebleeds still occur and headaches are so that he can't have any physical exertion or he will pass out and have a "seizure". Been through 3 neurologist who all think they know what is going on and don't want to really listen to what he has to say. Needless to say, they haven't come up w/ a reason why after almost 2 years no one can find the answer to his headache problem. Add to that his family doc has cut him off from pain meds stating this could actually cause his headaches. I believe this could be the problem as he actually used to be addicted to pain meds. But you can't tell my husband anything, b/c as he states, "none of you have ever felt the kind of pain I am experiencing, so you don't know how bad I need the medicine". To his credit, he is right, we haven't, but we can't get him to understand that he has to get off the pain med a while to see if the doc is right. Anyways, the chronic headaches are taking a toll on our relationship and his w/ the kids as he constantly takes his pain out on them. He steals my pain meds for my chronic lower back pain and leaves me w/ nothing just so he can dull his headache pain. He has started having hallucinations and we joke of a 2nd personality b/c he does mean things and causes ear shattering fights and NEVER remembers them (or so he says).

Is there anyone out there who has experienced something similar or some Doc out there who may have an insight to our plight. The marriage can't take much more of this. I value my vows, but I don't know how much longer I can deal w/ him stealing my pain meds and leaving me in pain because he is soley concerned w/ his. I am afraid to leave him alone w/ my kids b/c I don't know what he will do that he "don't remember".

Please, someone, tell me you know something.

Sincerely,
frustrated wife