I just want to let everyone know that I have vericose veins in my uterus. I have had pain since I was a child, I am now 29 and after years of searching, going from doc to doc, I finally found out that I had something called Nutcracker Syndrome which is a clinically manifest variant of nutcracker phenomenon, renal vein entrapment syndrome, or mesoaortic compression of the left renal vein. It results most commonly from the compression of the left renal vein between the abdominal aorta (AA) and superior mesenteric artery (WIKIPEDIA).
This causes secondary symptoms. For men it's veriscosity in the testicles, for woman in the pelvic. DOCTORS USUALLY NEVER CHECK FOR THIS!!!! I did my research and made them check me despite their claims that I didn't have it, but an MRI confirmed it. I am getting surgery to fix this on 30th of June 2010!!! So before anyone removes anything get checked for this especially the 15 year old boy. Just thought I would warn you all! !
This causes secondary symptoms. For men it's veriscosity in the testicles, for woman in the pelvic. DOCTORS USUALLY NEVER CHECK FOR THIS!!!! I did my research and made them check me despite their claims that I didn't have it, but an MRI confirmed it. I am getting surgery to fix this on 30th of June 2010!!! So before anyone removes anything get checked for this especially the 15 year old boy. Just thought I would warn you all! !
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I was just diagnosed with Nutcracker Syndrome of the left kidney. I need to know it there any doctors that do surgery for this type of disorder. Please send me a note back if you do. I need to find the best one...I live in Georgia. Please help. THanks.
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Hey there. I had major surgery for it. They rerouted my renal vein completely so that it would no longer be compressed by my abdominal aorta and mesenteric artery. Some woman get minor surgery and put a stent in their renal vein to open the compression. The only problem with this is that there is a possibility of it moving. I chose the major surgery because I hope to have children someday, and with the stent, I believe my doc said it would move w pregnancy. I live in San Diego Ca, and my surgeon is a Vascular Surgeon. His Name is Dr. Ralph Dilley and is located @ Scripps Green Hospital in La Jolla, Ca. If I were you I would contact- Department of Vascular Surgery, Georgia Baptist Medical Center and ask if there are doctors there familiar with this condition. Unfortunately, our condition is so rare that there aren't a lot of doctors who have performed surgeries for it. I believe my doc said I was his 1st or 2nd patient with this condition, but he had like over 30 years of vascular surgery under his belt. For vascular surgeons it is not that difficult to perform NCS surgery... I hope this helps some. Please don't hesitate to ask me more quetions. I am happy to help.
Cristina
Cristina
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Thanks to both of you. I have been reading and reseaching and have made contact with Mayo Clinic...they answered me back very quickly and I am getting my referral sent up to the doctor...Dr. is very helpful and now I feel very comfortable. I am 49 so I do not have the same worry about having children. I have a daughter that has cerebral palsy and still living at home and my husband has been diagnosed with Parkinson's Disease in his early 40's so he is also at home. I work full time and I am very busy as you can imagine. I did not want to do anything local because it is so rare. I appreciate all of your feedback.
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I have a big suspicion I have had this since childhood (many years ago) due to my dysautonomia. Can anyone give me ideas on testing? My doctor is reluctant to do a venography. When they do an ultrasound or ct is doesn't show up because I am lying down during the test. I cannot sit or stand because this makes this condition unmanageable. Any ideas would be greatly appreciated!
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Has anyone else with Nutcracker Syndrome had recurring urinary tract & kidney infections along with their left flank pain? My daughter also had proteinuria, and hematuria.
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I am scheduled for the transposition surgery after an embolization that didn't resolve the issues. How long were you in the hospital and how long did it take you to recover? I am stressed out about what this is going to do to my abdominal muscles and the scientific evidence is so poor that I may be doing something drastic that ultimately has no benefit.
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I will just say that my daughter had two transposition surgeries & STILL HAS NUTCRACKER!! I personally would not do it. I do not believe that there is enough information out there yet as to the success or failure of the transposition surgery. Check for kidney ptosis. That is my daughter's next step, however she is pregnant at the present time.
Best to you. Keep reading blogs pages. The patients with this condition all seem to have recurrence of the problem. Take care.
Best to you. Keep reading blogs pages. The patients with this condition all seem to have recurrence of the problem. Take care.
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Hello! I have nutcracker as well. I also have infertility, so it was encouraging to hear that your daughter is pregnant. I am about to undergo IVF treatment and wondered if your daughter had any issues with being pregnant and the nutcracker?
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I was just diagnosed with nutcracker syndrome but the pain is on my right side instead of my left. Has anyone heard of this happening before?
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I was just told that I have nutcracker syndrome as well..but I was doubting the diagnosis as being the root of the problems I've been having since the pain has always been on the right side.
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Well, so far she is doing fine. Since she does have Mixed Connective Tissue problems, too, and a high ANA (anti nuclear antibodies), they are having her take an 81 mg aspirin everyday, and she will need to have monthly ultrasounds. She is 21 wks along, and their doctor is trying to determine if she is a high risk pregnancy or not because of the Nutcracker. We will keep you posted. Wish you the best with getting pregnant. And just to encourage you more, my daughter had a low egg count because of all the radiation that she had leading up to the diagnosis of Nutcracker, which they can't seem to correct surgically, so she was very blessed to become pregnant. Keep your head up...with God...anything is possible!!!
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Hi-I was just diagnosed with nutcracker syndrome as well and my pain is also only on my right side. I was diagnosed after I went to the hospital having what I thought was an appendicitis or kidney infection. I will go see the vascular surgeon next week. Have you had any gastroentestibal pain?
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I do not believe that my daughter had gastrointestinal pain with Nutcracker. Not sure if you have read a lot on Transposition surgery but two attempts were unsuccessful for my daughter. Just wanted to let you know.
Hope all goes well for you.
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Hi just wondering if you had any clarification in your diagnosis with the pain on your right side vs the left? Did u have any other symptoms and what was the result? I have the same
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