I talked with my neurologist, and he said that I have palinopsia, but I can not find anything on it online about it. Does anyone else have palinopsia? If you do, has any medicines helped? I am told this is permanent, is that truth?
Loading...
My neurologist says I have palinopsia too. He also says that the images I see that aren't really there are from palinopsia. It can be an object, a person, or just about anything and he says you can see again, as an illusion, anything that you've seen before or anything like it. Sorry, I can't help you much and there is very little about palinopsia on-line. Here's what I found: "Palinopsia, is a persistent visual sensation after the object has been removed from the patient's visual field. These events have more an illusory than hallucinatory quality, and are frequently associated with either parietal lobe pathology or as a component of a migrainous aura…”
Loading...
Persistent palinopsia started last November when I started seeing trails behind moving objects. To see what I see, set your mouse settings to "display pointer trails.: I see it always. Nothing seems to make it better or worse. It made me a bit queasy at first. Now it is my constant companion. I could learn to live with it, but....
By February, 2007, I suddenly developed severe photophobia with intense eye pain...which invariably leads to a killer ache above my brow. It has been with me daily, ever since. It's not brightness, but light change which hurts me. I find bright sunny days and fluorescent lighting only mildly painful, while a single low light...even a nightlight...will send me screaming. It feels as if I have sprained the muscles responsible for constricting my pupil. Immediately after being exposed to a change in light, I will feel a cramp in my eye. The cramp is most severe in the eye that is closest to the light source. The headache is always over the affected eye/eyes. One thing of interest I found by accident...the pain is relieved by having my eyes dilated. It seems that removing my eyes ability to adjust to light relieves the pain.
I've been checked by a neurologist....who sent me to a sleep specialist, and an ophthalmologist...who sent me to a neuro-ophthalmologist...who sent me to a different neurologist...who sent me to a retina specialist...who sent me back to the neurologist...who has just sent me to an immunologist and an endocrinologist. I wonder who they'll send me to?
I've had 3 eye exams, an MRI, EEG, and an overnight sleep study, all with normal findings.
By February, 2007, I suddenly developed severe photophobia with intense eye pain...which invariably leads to a killer ache above my brow. It has been with me daily, ever since. It's not brightness, but light change which hurts me. I find bright sunny days and fluorescent lighting only mildly painful, while a single low light...even a nightlight...will send me screaming. It feels as if I have sprained the muscles responsible for constricting my pupil. Immediately after being exposed to a change in light, I will feel a cramp in my eye. The cramp is most severe in the eye that is closest to the light source. The headache is always over the affected eye/eyes. One thing of interest I found by accident...the pain is relieved by having my eyes dilated. It seems that removing my eyes ability to adjust to light relieves the pain.
I've been checked by a neurologist....who sent me to a sleep specialist, and an ophthalmologist...who sent me to a neuro-ophthalmologist...who sent me to a different neurologist...who sent me to a retina specialist...who sent me back to the neurologist...who has just sent me to an immunologist and an endocrinologist. I wonder who they'll send me to?
I've had 3 eye exams, an MRI, EEG, and an overnight sleep study, all with normal findings.
Loading...
Hi! I just created a new website palinopsia.com
It's for those who are suffering from and/or interested in palinopsia and other visual disturbances....or "superpowers" as I like to think of it.
Paula
**edited by moderator**
It's for those who are suffering from and/or interested in palinopsia and other visual disturbances....or "superpowers" as I like to think of it.
Paula
**edited by moderator**
Loading...
i too have been recently diagnosed but do not understand duration and frequency normalities as I do not always have the colored after images but intermittently with certain stimuli. is that common for this disease ? I would like to know what i can do to lessen frequency and if it is safe to continue my normal activities. i have not driven for several months and it is very life altering as i don't know how safe it is. the symptoms are only in the right side but puts additional stress on left eye. please let me know your experiences
Loading...
I've been working on a simulator for Palinopsia on iPad (I have Palinopsia) which I used it in a recent performance: http://cmr.soc.plymouth.ac.uk/alexiskirke/insight.htm
Loading...
I have been suffering from these visals for about 14 years now, its only been in last few months that ive been learning about palinopsia and also hppd, i felt relieved knowing there was a name for something i have been suffering with for many years and just thought i was going mad, Doctors treat me like im crazy i actually went to the doctors today as the eye hospital wrote to my doctor and said they think i need a psychiatrist which made me feel i was a joke to them, i said to my doctor today im fed up of doctors brushing me to one side and i'd like to know why i have these visuals, so she is sending me to see a neurologist. so fingers crossed that gets me somewhere, im just so glad i can go on sites like these and i know im not alone or going crazy, also alexisk im really interested in talking to you i have just gone on the website you provided and was amazed by what you have done its exactly what i see, my symptoms are visual snow after images (which can last for days) trails, different block colours (mostly green) also get flashing, like if i was to look at black writing maybe against a white back ground it flashes, when im tired it gets worse or when im stressed lack of sleep always makes it worse or even to much sleep, I'd love to hear from people who suffer with palinopsia i want to learn more about it, thanks for listening and hope to hear back from people :D
Loading...
Trudia, I have just begun my research into palinopsia as it appears my 11 year old as it. She has after-images that leave her very anxious and stressed, and hers are worse at night when it's dark. She also has visual snow. This all started about 18 months ago. I'm glad to see that you saw a neurologist who is familiar with it. Taking her to see one is our next step to rule out any diseases or brain injuries that we may unaware of.
Loading...
Hi I have had this for 15 years. I'm happy to talk with you about it.
***this post is edited by moderator *** *** private e-mails not allowed **
Please read our Terms of Use
Loading...
I have had it all my life.antidepressant mirtazipine and venlafaxine has helped to the point i almost dont notice it
Loading...
Hei, do you mean the antidepressants treated the Palinopsia? Do you still see them when you do not take the pills?
I have had trails in my vision for almost 1 year now. Have checked my eyes and brain MRI whih all came to be normal. I do not know the reason for my Palinopsia.
I have had trails in my vision for almost 1 year now. Have checked my eyes and brain MRI whih all came to be normal. I do not know the reason for my Palinopsia.
Loading...
just one update from me, I do not notice the things in my vision anymore. So, my guess is that I was noticing it only when I was in a bad and stressing relationship with my ex in that time. Now life is perfect, no stress, and my vision is perfect now. So, remove stress reasons in your life to get rid of that symptoms.
Loading...