Hi, I'm 27 and I have not had the surgery yet! I was worried about the pain I would feel after.
I just want to know if you guys or anyone that has done the surgery would have prefered to not have had it done???
I am seriously contemplating getting it done but if I'm gonna be in the same or even more pain then I really dont want to take the risk, Should I???
I just want to know if you guys or anyone that has done the surgery would have prefered to not have had it done???
I am seriously contemplating getting it done but if I'm gonna be in the same or even more pain then I really dont want to take the risk, Should I???
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I had spinal fusion for scoliosis ~6 years ago, I'm 24 now. The doctor thinks my pain is a result of hardware poking at nerves. Physical therapy has done great things for me, they helped me work on my posture, build muscle, and gave me exercises for keeping my spine loose. I am amazed that physical therapy after this type of surgery is not standard practice.
Also, a good physical therapy office might suggest manual therapy where the therapists move your bone structure around (or at least it seems like thats what they are doing). My pain has decreased only slightly. However, I feel much more confident about the future. My main goal at this time is to not let things deteriorate too bad, I have a long life ahead of me. 30 minutes of good exercises and stretches every other day is not a lot of time, and it very well could prevent some major problems in the future.
Also, a good physical therapy office might suggest manual therapy where the therapists move your bone structure around (or at least it seems like thats what they are doing). My pain has decreased only slightly. However, I feel much more confident about the future. My main goal at this time is to not let things deteriorate too bad, I have a long life ahead of me. 30 minutes of good exercises and stretches every other day is not a lot of time, and it very well could prevent some major problems in the future.
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I just saw the post above the one i just posted (24 y/o with scoliosis)...
Only your doctor knows. For me, the surgery was a miracle and the complications I experience now are nothing compared to what would have happened to me had we let the spinal curve continue to get worse.
I still play a whole ton of sports. I just have to take it easy sometimes and deal with the pain, especially from impact sports or when I play bball outside on a concrete surface.
Only your doctor knows. For me, the surgery was a miracle and the complications I experience now are nothing compared to what would have happened to me had we let the spinal curve continue to get worse.
I still play a whole ton of sports. I just have to take it easy sometimes and deal with the pain, especially from impact sports or when I play bball outside on a concrete surface.
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I had scoliosis surgery when I was 10 years old. While it corrected it for a while, I have since developed lordosis. I have upper and lower back pain. I agree with what someone posted earlier in this thread. Go get checked out at the Dr. things change and your rods might need to be taken out. The pain could be nerve related or muscle related. I know that I am planning on going back to see the dr. I've reached my limit with this pain.
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Quote: I'm sorry you are having such back pain! My daughter had her first scoliosis surgery in 2008 and she did fine until about the end of 2009 when she began having sharp pain at the top of her scar and in her right shoulder blade. We went to her doctor several times complaining and even asked for x-rays which he chose not to do. Finally he did one and said that the rod was beginning to poke through her skin due to the fact that they made the rod slightly larger than her frame in case she grew. He said this was normal and all he had to do was cut a small hole at the top of her back and cut it off. He said he could do it in office. He still couldn't explain the shoulder pain and did not want to do an mri.
We were totally disgusted with the doctor, actually we never liked him because of his poor bed manor but he was suppose to be the best.... finally we asked to see the doctor who had seen her the first time to look at her and believe me he became just as disgusted with the other doctor too after he seen her x-ray. While he agreed with the other doctors finding, he also noticed from the x-ray that the other rod (she had 3) had went into her shoulder blade muscle! We knew something had been wrong because of her pain but she also had a hump on that side of her shoulder blade. So she had surgery to remove the rods in November 2010. Because the former doctor did not put another rod in at the very top of her back where she also curved this doctor had to put a new rod in to try and straighten the top up so now she has a smaller rod at the top. He also straightened her shoulders up because she slumped on one side which the other neglected to in the first place.
My daughter still has a large hump on the right side of her back and her shoulder blade is all the way out to the side of her back, we don't know if this was caused by the rod or maybe it was just her anatomy, we asked her doctor about it the other day when we were in his office but he did not have a real answer for us. He said that some people just have a reaction to the rods so they usually take them out as soon as the bone has healed, he said he could take out her rods as early as next summer. So now I am looking for answers because I know that taking the rod out is not going to move her shoulder blade back, it couldn't be that. I am thinking I am going to have to take her to an orthopedic doctor since it seems like this would be an orthopedic doctors area of expertise but I don't know. I do want to say though that taking out the first rods did give her immense relieve so for those of you who are experiencing the same problems may ask your doctors if that might be possible in your case. I hope this helps!
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A good chiropractor might be worthwhile. I posted earlier about how physical therapy worked decently for me. Chiropractic is a completely different story. I had A LOT of stuff out of alignment, as you might imagine. These 'out of alignment' vertebra can pinch nerves and cause pain. I have a pain spot in my upper left back between the shoulder blade and spine. After some analysis, the chiropractic office found that I was pinching a nerve that led directly to that area. It's too early to say whether chiropractic will work in the long run but I believe it will. I've gone in with bad pain in that spot and left with it feeling great.
That being said, we are not the average client and getting adjusted scares the c**p out of me. Talk to your doctor to see if he thinks it would be appropriate, some people might have too much rod such that there is no area available to work on. If you do decide to move forward, stay away from offices that have a strong sales pitch. I went through 2 offices before I found one I felt comfortable in and I'm so glad I did. They have been around for 30+ years and seem much more learned on the science side of things.
Another quick note: they should NOT be adjusting vertebra under the rod by hand, there are tools that apply specific amounts of pressure if you really do need to get in there. My chiropractor adjusts my neck and lower back, and uses specialized techniques in the middle. An example of one specialized technique is when he puts me in a specific position and has me take deep breaths... in that position, the breaths are all that is needed to make small adjustments.
So that's my experience with chiropractic so far, I'll post again later to update everyone on its long term effects for me.
Take care and remember to do your exercises/stretches!
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I am having scoliosis surgrey in novmber in 2 weeks i am 12 i have a 50 degrees curve and one in my lower back and uper back i just found out thanks for the info:)
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I 67% curvature and had my surgery in 1989 in Childers hospital in Los Angeles. I had bone graph done to fuse the spine. The surgery was a success and I no longer was hunch back and grew a few centimeters. I always noticed I couldn't keep up at the same pace as others. In my 20's my health began to decline. I had extreme pain in my lower back while pregnant. Also my right leg would just give out ( from my right very low back is where bone was removed for the fusion). So every now and then I would have to help my leg I to the car or take it out or swing it to get it to start walking. I am now 35 years old and feel old. I have tried acupuncture therapy, I got worse. I was not able to move my neck for more than 3 days. I have to sleep with the flatest pillow....on my check...with half my body on a body pillow and half of it off. I use a heating pad before bed on my lower back to relax it but can't sleep on my back or my sides because my arms fall asleep. I can't sleep on my stomach either. I don't walk nor exercise as I feel bone on bone contact and grinding with each step I take in my lower back and they sometimes get "caught" and I lose function in my right leg. I have severe joint pain and can relate to the neck and shoulder pain. I don't know if it's from years of compensating for the limited mobility or what. The only form of exercise I was getting was roller skating. I would use ice packs on my lower back and hip but this year I am not able to do that. I don't style my long hair as I can't raise my arms either. I wake up with numb toes and heels, unable to move my right foot. I get up from my chair at work often just to find I can't feel my feet. I'm a little afraid of what the future is going to look like for me. So far the last 15 years have been nothing but terrible and painful.
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I had an operation too over 10 years ago. Through lots of trial and error I found medication that helps; I hope my experiences can help you ***this post is edited by moderator *** *** web
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I had the surgery 2 years ago, when I was 13. The doctor said it was successful. The pain lessened 3 weeks after the surgery and now I am feeling more pain then ever before! It's been about 2 years and feeling more pain in areas I didn't know the surgery would even effect much. (my ribs, hips, and shoulders) I've told my mom plenty of time. So when she finally took me to get x- rays. They found nothing wrong. The pain is getting worse. I don't know if this is normal or not. Right now, I'm taking pain relievers and using heat packs, but that can only last me for so long!
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I like a few others on here had my surgery 4 years ago when i was 13 and my surgery went very well. i had two curves, a 67 degree in my lower and a 60 degree in my upper back. For the past year i have had constant pain in both my lower back and between my shoulder blades. i still cannot sit or stand for very long without feeling discomfort. I play water polo and swim and am physically fit but still have a lot of pain. ive found that puttng a heating pad or hot towel on your back helps relieve some of the pain and streching before and after you sleep helps a also. The doctors have not been very helpful in giving me any help to get rid of the pain.
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Sorry they removed the link above! What I did say on there, was I also found pain happening about 10 years post surgery (had the surgery when I was 14). After much effort, we have isolated that there is nothing wrong with the surgical implants, but the pain is caused by back spasms, caused by the fact your spine is curved and it was designed to handle a certain load when correct and it won't ever if it isn't entirely straight (which it will never be).
After much trying for several years with various doctors and manipulative therapists and a consultation with the surgeon who basically told me I zwas hallucinating it all, I have found a solution that works for me - I take an anti-spasm pill (nZ = Norimin) AS soon as I start to feel tight, then having a good night sleep, it cures the problem! I now don't get in "crisis mode" which would see me go from a 1 to a 10 on the pain scale and barely able to function. If that doesn't work, I then have another antispasm pill and anti-inflammatory pill (nz = naproxen, high dose) until it goes away. I used to go see a manipulative acupuncturist osteopath at least 8 times a year for this kind of crisis pain and I haven't had to see him for over a year! It's not that I don't get pain, but now I can deal with it myself. I hope posting this here helps out someone in the same position, as believe me, I feel your pain!
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I also had back surgery for scoliosis. I do have 2 metal rods down my back that start and the back of my neck and end at my tailbone. I had them put in when i was only 11. That was in aug 29,1996 in springfield mo. I really didn't start having any really severe back pain until a week ago. It hurts when i breathe laydown to sleep. sitt or evenstand. i have tried over the counter medicine and even mexican medicine and so far none have worked to stop the pain; but only to mask the pain. The crazy thing is that when im laying down to go to sleep it feels like there is an air bubble there that moves when im laying down than it moves.
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Hi, I had my spinal fusion surgery when I was 16 and I'm now 20. My doctor told me not to be too concerned with any pain for the next 2 years while it heals but I've always had intense lower back pains. Sometimes when i lie completely flat on the ground it would help. The cut was made from my side instead of from my spine so they had to go through my ribs and deflate my lung to get to my spine. M lung id fine but my rib isn't really where it should be but apparently it's nothing major. The reason I'm mentioning this is because that last 3 months or so, instead of the lower back pain I'm used to I've been getting pain all over my back as well as around my scar and rib. Now I've also got stomach aches but they all seem to be connected to each other depending on how I move. The lying down which would give my back relief before seems to have the opposite effect now. I can't fall asleep because of this until the early hours of the morning an then I wake up a couple of ours later because of the pain. If it were a now and then thing I might be able to cope but it's been persistent these last few months and has been interfering with my everyday life. My doctor can't seem to figure out what's wrong which really concerns me. I've been taking painkillers but they havent been working very well. Has anyone ever had something like this? Any suggestion for relief from the pain would be helpful thank you!
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Hi,
I had a spinal fusion surgery in 2001 in Zürich (CH) and I never had any problems until a year ago. Since a year, I have many problems in my upper back (shoulder blade, neck...). The pain is really very deep and when it arrives I'm completely "handicapped" in my daily actions (wash teeth, face, hair styling, dressing...). It begins always in the same point and diffuses to the rest of the back.
Each time I need 1-2 or more weeks to calm the pain down. I already tried everything: analgesics, muscular relaxants, physio, massages, chriropratics... but nothing is really effective (the relief is only temporary). I also do a lot of exercise (Body balance by Les Mills is wonderful!) but if I cannot go to the gym for few days I'm immediately blocked.
The surgeon told me that a screw is the cause of my contractions in the shoulder blade area. He suggested me to REMOVE THE ENTIRE RODS. He assured me that now the back is stable and I can continue living normally without rods.
Did someone have a similar surgical operation to remove the rods?
I had a spinal fusion surgery in 2001 in Zürich (CH) and I never had any problems until a year ago. Since a year, I have many problems in my upper back (shoulder blade, neck...). The pain is really very deep and when it arrives I'm completely "handicapped" in my daily actions (wash teeth, face, hair styling, dressing...). It begins always in the same point and diffuses to the rest of the back.
Each time I need 1-2 or more weeks to calm the pain down. I already tried everything: analgesics, muscular relaxants, physio, massages, chriropratics... but nothing is really effective (the relief is only temporary). I also do a lot of exercise (Body balance by Les Mills is wonderful!) but if I cannot go to the gym for few days I'm immediately blocked.
The surgeon told me that a screw is the cause of my contractions in the shoulder blade area. He suggested me to REMOVE THE ENTIRE RODS. He assured me that now the back is stable and I can continue living normally without rods.
Did someone have a similar surgical operation to remove the rods?
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