After having my daughter I've experienced random symptoms which have progressed into very painful symptoms. I am undiagnosed and any ideas or recommended tests or doctors in southern CA are greatly appreciated!
Symptoms:
Persistent herpes outbreak on lips (on antiviral on and off 8 months)
Burning lips throat
Force feeling pushing down on me all over body
Severe headaches
Photosensitivity with rashes all over but not every time after going in the sun. Biopsy showed chronic inflammation with RARE eosinophils on neck
Pressure in head with chronic neck pain
Teeth even hurt
Bones burn or feel hot
Numbness in back of skull and ears and parts of body
Burning cigarette stinging sensations
Nerve pain - stab, electric, tingly, shooting
Right bundle branch block
Severe hair loss
Hemiagoma in liver found when mildly elevated level of albunim tested
Blurry vision
Burning lungs and burning nerve sensations throughout body that feels like a lighter is taken to my nerves
Dry mouth and nose and ears and skin - 1 mm in tears
Mild protein in urine
Low potassium
Decreasing IGA levels and deficiency
Tested for and negative for:
Lupus
SLE panel
Lip biopsy for Sjogren
EGD for celiac and whipples disease
Lyme
Blood urine and stool culture
CSF normal but had severe reactions thereafter with intense pressure in head and had to lay down for days afterwards
MRI of brain but going to request of spine soon
Diabetes
PCR of serum
Parovirus B19, EBV, CMV current infections negative
CRP and sed rate normal
Function of kidneys and liver normal
X-ray of lungs
Ct of head and upper neck for enlarged nodes normal
CBC with differential
Growing up I was constantly on antibiotics and sick with bacterial and viral infections. When I was 21 on hot day at water park subsequently got huge staph infection all over face and had more difficulty fighting infections since. Husband tested house for mold with home depot kit and was normal and do not have any signs of mold in our home. Had to take prednisone bc I was overreacting to all foods and couldn't eat anything (ie metal taste in mouth after eating almonds, vomiting and nausea and pain after eating).
Doctors have tested and it keeps coming back normal. Doctors first think lupus with all my symptoms but sed, crp, and antibodies are Lalways negative. Please advise.
Loading...