SNAPPED MY FOOT OFF FROM MY LEG.VANDERBUILT SAVED MY LEG BUT I HAVE TO HAVE ANOTHER SURGERY.AND U
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I was diagnosed with RSDS in 2004. Part of my saving Grace is that I'm a nurse sometimes, it's a curse. With the help of all the same Specialists that cared for me for over 10 yrs through a wide variety of meds & procedures the condition finally became manageable. After a major surgery to my neck I relocated 6 months post-op that was miles from my home to say with my son and his fiance to finish my recovery. as it turns out it was the worst mistake of my life. how they provide care here is not the same as they do where I'm from, it's not even close. I now have my family physician who is the only one that prescribes medication trying to back me off of a couple of them at a time. These are maintenance medications that were fine-tuned by 4 of my specialist's after a 12-day stay in the hospital. Since my Dr is doing this without any regard to my well being I've had two of the worst Falls that I have ever had since being diagnosed with rsds. the last fall resulted in me having rotator cuff repair in my left shoulder. I have no idea what I am going to do to have continuity of care and I am so afraid of being set back and lose my ability to care for myself. those of us have this condition know all too well that it can move anywhere there's an injury or surgery. I'm also a retired competitive athlete I have had multiple surgeries to the r knee which just happens to be the joint that triggered RSD, both shoulders have been operated on, my neck has been operated on with four screws and a plate, my lumbar spine I fractured two vertebrae apparently from always falling but landing on my butt. so basically I am at risk for RSD to go anywhere in the body it really wants to. The doctors up here I think it's all in my head and that I am more worried about losing my controlled substances than I am about my physical well being. this couldn't be so far from the truth. I am scared to death of not being able to get up out of bed and I live alone. I am 53 and do not want to end up in a nursing home
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