I'm writing on behalf of my 19 year old son. He started taking Isotretinoin (Accutane)in April of 2007. He was on it for at least 2 years.
A year ago he confided in me that he was impotent. (How difficult that must have been for him to tell me...) He had a normal healthy sex life before this medication. We are in the process of having things checked out.
The first urologist basically did a prostate check and told him it was in his head. He has always mantained that is was not in his head that something wasn't "right". He's gone through a horrific year wondering what's wrong with him. 2 months ago I couldn't sleep and started doing research on the computer. It is the Accutane! He isn't the only one. I have bookmarked blogs and have discovered that there are many young men out there like my son. This is such an unreported side effect because it's such a sensitive issue. This is life changing...this is something young men should not have to deal with....Since my discovery 2 months ago we have another Urology appontment in Oct and I plan on having my son tested for everything. I only pray that this will not be permanent. I would appreciate any help or suggestions for us to deal with this. MOMs! Don't put your sons on accutane!
Thanks for your time...from a very worried Mom. ***this post is edited by moderator *** *** private e-mails not allowed **
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A year ago he confided in me that he was impotent. (How difficult that must have been for him to tell me...) He had a normal healthy sex life before this medication. We are in the process of having things checked out.
The first urologist basically did a prostate check and told him it was in his head. He has always mantained that is was not in his head that something wasn't "right". He's gone through a horrific year wondering what's wrong with him. 2 months ago I couldn't sleep and started doing research on the computer. It is the Accutane! He isn't the only one. I have bookmarked blogs and have discovered that there are many young men out there like my son. This is such an unreported side effect because it's such a sensitive issue. This is life changing...this is something young men should not have to deal with....Since my discovery 2 months ago we have another Urology appontment in Oct and I plan on having my son tested for everything. I only pray that this will not be permanent. I would appreciate any help or suggestions for us to deal with this. MOMs! Don't put your sons on accutane!
Thanks for your time...from a very worried Mom. ***this post is edited by moderator *** *** private e-mails not allowed **
Please read our Terms of Use
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So what happened later on. Did your son recover? hope he did. I am facing a similar problem
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search for accutane sufferers forum in google. You will find others suffering from this.
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There are plenty of us unofortunately doctors are still unaware. We have to cure ourselfs, no one else is helping.
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REPORT IT! REPORT IT! REPORT IT! Whatever you do make sure this gets reported to the FDA, or whatever regulatory agency is in charge in your country. Bypass an unaccepting doctor and report it by phone or online if need be. Accutane ruined me at 18 years old and I have had 3 women leave me over the sexual dysfunction.
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