Hi, I've never done this before but at this point I'm willing to try anything.  I'm 27 and when I was in 3rd grade I had both of my kidneys shut down several times. It was awful and I had the worst doctor who thought I was lying until they failed completely. I've experienced pains and issues ever since, but have a dysfunctional family and was/still am afraid to go to a doctor when I know something is wrong due to being called a liar. 

The last 3yrs I've been experiencing such weird changes with my body. I've always had pains but now there are new ones. My hands and feet are like ice are like a gray?purple? But my legs are also. I have been having horrible headaches, scar and bruising more then I use too. Random wounds and getting wounds easy. Plus everything takes like FOREVER to heal(not to mention getting a flu shot and started like super bleeding-same guy has done it for years and same way). Horrible episodes of nausea/fainting but I know I can't puke. Awful taste in my mouth, I have no energy and my legs are like tired? Peeling nailsand this weird lump on the back side of my neck, are those even related? Constant UTI- never had a test where one wasn't apparent. I don't know i just want to lean on something any chance at work or sit-and that's not how I was raised. So add in the emotional part of feeling like a loser.

i could go on and on about all the weird things I know are related, thank god I'm able to pass small kidney stones basically, I had them when I was 6yrs old. So I have an extreme high pain tolerance and fear of looking like a baby.

Only reason I went so into detail about some of the stuff is because I dont want to seem like I just don't care and that's why I didn't go to dr. I actually went in because I can't tell a plain UTI just when it becomes a staph/kidney infection and over extreme pain(like kidney stone pain) when I would have a bowel movement which sometimes could be weekS!! And I under went a CT and my dr found hydronephrosis, narrowing uters with the right having an obstruction, bladder valve reflux..umm the blockage is like right under the kidney and everything backing up..alil over 30% right kidney alil over 60% for the left functioning. 

My frustration..Im flipping miserable and a referral was sent to UW Madison, WI and it's been 2weeks and haven't heard anything... I'm like dying emotionally due to the fact I'm losing physical strength and my memory is like getting really bad..seriously it's like not even funny anymore. I just feel like I'm being a baby and I'm like hovering over my phone...I have no info or knowledge on what they are thinking of doing..

Anyone have any comforting advice on how to be more patient or help myself be ok with the fact I feel like I'm falling apart and 6days a week working...but I just want be in bed.. I don't talk about it with anyone besides my husband. I live in a small town and I don't want/need people talking about me. I know it's a long posted but I don't know if someone could really understand where I'm at emotionally without the "short" version. My husband and our kids make life worthwhile And make me so happy...I'm just dragging..not like I hate my life or depression... I just want them to call..just a time frame..let me know they got the referral.I know that there are so many other more urgent patients..just a time frame..weeks..months?

itd give me that little bump because I'd know where the half way point is. Sorry I wrote a lot please don't critize me on that..


i hope oped everyone had a great holidays. Thanks for your time.