I just had my surgury 4/27/11, total colon removal with just enough colon remaining to attach to my rectum. Beside not being able to figure out what I am doing as far as eating, I have sometimes unbearable pain in my incision, my rectum itches like crazy after every bowel movement which is very watery. On top of everything I am all alone and have fell into a deep depression of despair. I want to get out but I just don't feel like it. And OMG when I sit in a normal way like a chair or couch my incision hurts sooo bad I find myself having to lay down or or stretch my body out or stand up. Can anyone send me some encouragement or advice cause I don't kn whats going on with my body now. Hungry but I can't seem to eat or maybe I'm just too scared of what happens next. Can someone give me some encouragement or advice? I need it! PLEASE!!!!!!!!!!!!!!!!!!!!
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It does take time, too much actually BUT non the less it does get a great deal better. It has been 8 months for me, I am almost 100%. (even better)
I finally am able to eat most everything. I do find that my food has less time to digest therefore my stools are full of my last meal. Small price to pay. I had 18" of my lover intestine removed and had the large incision which was, to me, awful. The staples pulled and were so painful for 3 weeks before they were removed. Laying on the floor is a great idea have something close and sturdy to use to get up. The incision is annoying, it will get better, just take time. I used vitamin E oil over the staples, approved by my surgeon after they were removed to keep the scare/incision area soft I used Aquaphor Healing ointment. I also use, my choice, Mederma scar gel..cause I want to.
The pain will lessen, promise. I can't comment on the amount of lower intestine (colon) you had removed mine I 'm not a Dr. Recovery is a slow and tedious process. Be kind to yourself, allow yourself time to heal most of all don't lift anything until your Dr approves it. I waited 8-10 weeks before I even thought about it. I did over do once and really really set myself back.
Chew your food A LOT, almost liquefy it if you can. It is best for digestion and gas. Drink water for constipation, if you have that come up.
Eat small amounts of food every 3 hrs. Stay positive....
Keep writing on this site, there are some great people out there that will add to your request for help.
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I had my colon removed last Oct. 5 in were left. A foot of small intestine removed also. Stayed 7 days in the hospital did not want food just ice chips for 7 days o I really lost wt. came home at 120. Real pains I am not going to say it went with no pain. At this point I am so much better. but have learned what I can eat and when. Morning are the worst with bms. At first carrots and mashed pots. Activea is great for what is left in my body. Please feel free to ask me anything since I have been thru som imbaress moments. You will do fine it takes times do not be hard on yourself. good luck
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I wrote as my subject : Encouragement
I have found that small meals and often are the only way to always feel good after eating. No cheese, no fried foods included potato chips is best to feel good. Some veggies cause awful gas so be careful of this, raw:Cauliflower, cucumbers, broccoli and BEANS to name a few. I eat plain fat free organic yogurt as a rule with honey. Not sure about Activa, that too has been proven to be just a yogurt now and advertised as such.
Nuts and popcorn are tough, I can eat them but they don't totally digest. So wait on those until much later.
I drink V8 to get my veggie and V8 with the fruit mixture. I also take vitamin suppliments just in case.
I wish you well and an easy recovery for your husband most of all that the removal of his cancer a complete success. Remember to remain positive every day/month gets better. After about 8-9 weeks I was able to say "wow, I feel noticeably better today." Now, after 8 months I am really great. I hate the incision still, it is ugly and light red. But, I also know that this too will take time to fade. I am not being unrealistic I know it will be there but my life was saved by this surgery.
I find walking is terrific it helps digestion and so does simple stretching. Laying on the floor putting your arms over your head and relaxing.
After surgery for weeks I placed a hot/warm hot water bottle on my stomach this soothed the pain and discomfort.
I had my third colonoscopy, CT, blood work up and all is good, no signs at all of of cancer or polyps. Next follow up this month, not looking forward to that. My surgeon is not very gentle I have to share.
I am running again and enjoying physical fitness and healthy food again.
Reminder: Please be patient, take it slow, relax read a book and wait for your body to recover from MAJOR surgery.
Stay in touch.
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I am pleased to hear your Dr is trying to keep you positive, I want to reply with my experience. If you have the long incision, mine was approx 8", I want to strongly suggest you reschedule your trip. The care of the incision and real caution needed during the healing process doesn't lighten for months, for me 4-5 months. The ability for you to be able to sit for such a long flight, bent in 1/2 will be extreemly difficult and uncomfortable. The bathroom visits on the aircraft too could be an issue. Walking in Italy will require a great deal of resting throughout the day, some days where you may not want to get up at all. I have been to Milan, Florence and Sienna the cobblestones were beautiful but, very uneven. If you were to jar yourself while walking it could set you back, making the trip home even worse.
The high fiber diet after surgery, in my experience is a no no. Remaining on mushy over cooked foods will be the best. Over cooked carrots with honey was really a treat. Soda crackers, cream of rice cereal was also good with sugar (substitute) and cinnamon. Jello, pudding and sauted' apples in butter and cinnamon comforted me. I drink organic soy milk which is terrific. I would suggest no apples, banana, raw veggies, these were a huge negative. No beans of any kind, includes hummus. Definitely no cheese. Wheat noodles with olive oil, salt and pepper was a dinner. The food in Italy shouldn't cause you an issue but ,the trip, the visit while these and the return home, let alone if there are complications concern me personally. If your bowel became an issue i.e. stopped up, bring a laxative of some kind which then will be another bathroom issue.
I ate a couple prunes every day after 3 weeks, Dr's request to keep things moving gently. That suggestion, I can only assume worked.
Next month, August will be one year since I had 18" of my Sigmoid removed, after a polyp was removed with 75% cancer. I still can not have cheese, uncooked brocolli, cauliflower, beans (in excess) popcorn and a few other things, yet! I remain positive and encouraged with each day.
I lost 15 pounds at first and wish I could have kept it off but, with only able to eat foods that work i.e. carbs, the pounds came back. I walk and lift smalllight weights everyday now to get my muscle back after months of light work. PLEASE DON'T LIFT ANYTHING FOR 6-8 WEEKS. I can run again which was a blessing for me.
It is a long process, don't rush it. Don't go to the gym for at least 3-4 months, when you do go it will be the tread mill only. I did some very light leg weight lifting although, some still stress the stomach muscles. Reminder: this is MAJOR surgery and requires the time to heal inside and out properly! Be patient.
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The sugeon removed 1 Metre from my colon by laparoscopy, I recovered remarkably quickly, went into hospital on Monday and was home at 1900hrs on Wednesday the SAME week! The surgeon put this down to the fact that I was relatively healthy, none smoker, non drinker, just a few stone overweight. I ate whatever I wanted, whenever I wanted, don't get me wrong... my bowels were not the same as they were pre op, and I obviously did not expect them to be! I was going to empty my bowel much more frequently, at least 5 or six times a day! There was no discomfort or pain either, now just over a year on my bowel is just as it was before, going once a day regular as clockwork. (no complaints about bowel at all)!
This now leads me to explain my reply to this forum, since my operation my sexual desire and erections seem to have suffered and upon looking at forums like this I find that they are "side effects" of this sort of surgery, as a man I will openly admit that I am highly embarrased to go to the doctors and explain my symptoms, but my wife is now becoming suspicious and thinks that I may be having an affair (IF ONLY!!!)
Has anyone else had these symptoms? Has anyone else had successfull treatment? Is there any treatment?
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Basically, allowed food list is as follows: Enriched white bread or rolls without seeds, White rice, plain white pasta, noodles and macaroni, crackers. refined cereals such as Cream of Wheat, Pancakes or waffles made from white refined flour, Most canned or cooked friuits without skins, seeds, or membranes. Fruit and vegetable juice with little or no pulp, fruit-flavored drinks and flavored waters, Canned or well-cooked vegetables without seeds, hulls or skins, such as carrots, potatoes, and tomatoes (leave out the seeds!), Tender meat, poultry and fish, Eggs, Tofu, Creamy peanut butter- up to two tablespoons a day, Butter, margarine, oils, and salad dressings without seeds.
Mayo clinic info also includes helpful typical menu for breakfast, lunch, and dinner. My own personal favorites going down well at this point are: Toast with margarine and applesauce, one veggie pattie for lunch, and white rice mixed with Wolfgang Puck's canned "Old Fashioned Potato Soup for dinner. Best of luck to you.
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