We have a 4 year old with this and we've decided no surgeries. The white limo went away around age 1 with no leaking and now there's the smallest little bump. A few months ago, a tiny "crust" formed in it, like if you picked a zit and it scabbed over a little (so maybe it leaked and we didn't see it?). Then after a few weeks it fell off and we are left with a barely noticeable small bump again. We are definitely planning no surgeries!!
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It's been a year since my son got sclerotherapy - 1 (!) simple injection - by Dr. Huy Do at Stanford and his cyst is completely gone as checked by CT scan. I know I've posted this more than enough now, but please contact either Dr. Huy Do (Stanford and the Children's hospital accept ALL insurance - we have Covered California) or Dr. Shiels at Ohio Childrens hospital and your child can have an easy injection and have the problem taken care of once and for all. Surgery may leave a few cells behind, which then regenerate, the injection kills all cells and nothing regenerates. At least give these doctors a call and hear what they have to say! Surgeons love to operate and don't even want to look into non-surgical alternatives, so your surgeon is not going to support you with your search for other options. KARIN
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Hi! My son also has the same thing but now its swelling like a size of a egg. And its red. I'm very worries about the condition of my son and i dont know what i am going to do.. do you think it is infected and need to undergo surgery.? And he is only 2yrs old..
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Hi Kenya,
Our daughter is now 4 1/2. I think our experience has been different, as we never had any surgeries. It was never serious enough to get that far. It has never gotten bigger nor gotten infected. It's still noticeable (strangely, she noticed for the first time just yesterday!), but still fairly flat with a small brown dot on top.
I wish you the best!!
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I do have the same pin hole on my lower right collar bone since birth. But now that I turned 18 i seldom squeeze it than before. And i later on found out that it has hair in it and I plucked it off. Now it's a bit swollen for a week
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Im currently having that small bump on my pin hole at the lower right collar bone. It started to swell when I plucked a hair from it. What can I do?
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I'm experiencing the same thing and there's very little information about this... how did everything go with yours?
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My baby has been diagnosed as having a branchial cleft cyst and it got infected 2 weeks ago. The doctor need to drain the pus and gave antibiotic to remove the infection. But, today, we noticed that the swelling has gone bigger, but no redness like when it got infected. He told us that we need to wait for another six (6) months to schedule for surgery to remove the cyst. Is this correct? The fluid from the cyst hasn't been drained, only the pus.
Please, if a doctor is reading this message, I need your advise how my baby can get through this and the correct procedure on dealing this type of cyst. I am quite nervous and worried for my baby.
Please, if a doctor is reading this message, I need your advise how my baby can get through this and the correct procedure on dealing this type of cyst. I am quite nervous and worried for my baby.
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I have severe headaches after Rathke's Cleft cyst surgery. I had surgery a few months back, had no problems, but now my headaches are back. Is this normal?
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