I was diagnosed with McLeod neuroacanthocytosis, on Friday and was wondering if there is anything I can do to help relieve the pain of my blood burning? It usually happens after I get chest pains it's a hit and miss. I feel relief when I don't get the seizures after the chest pains then some times I don't remember much of anything. I've had my mom count the seizures and the most I get is 9 in a row. I go to the ER. But they can't do much for me. It's so scary and I'm only 30. This will be my life basically? But it starts off chest pain seizures then burning blood some times so bad I cannot moved and will last for hours. My doctor said it'll get worse as I age. I've never been lucky in my life and now I get this.... sorry I'm a bit sad right now.