Has anyone a liver hemangioma and any symptoms

I have exactly the same symptoms; none of the doctors have ever related them to my hemangioma.

I have exactly the same symptoms; none of the doctors have ever related them to my hemangioma.

Hi . i was just interested in your post and wondered how u were getting on. I developed pain in right rib area last may. ended up having ultrasound in july. told i had lesions on liver. course i thought the worst. Pain continued. Had MRI with contrast in August. In september i got results. told i had stone in gallbladder and 3 lesions on liver. largest being 4.8cm. Pain has got slightly worse and more frequent during everyday in last 6 months. Doctors advised to have gallbladder removed as was source of pain. In Jan this year i had lap choley. But since recovery from that i soon realised that the gallstone was not source of pain. It is infact the haemangiomas. I have seen photos of them... three are on the top of the liver. approx 1.4-3cm in size. and once large haemangioma positioned under the liver close to where the gallbladder was. Have you had any treatment or further investigations. ....... My surgeon suggested i have a repeat scan in about a year to check on growth of the large one in particular. The pain is uncomfortable and irritating rather than unbearable. Is it best in your opinion to leave well alone ?

I have to start from the beginning.  Three or 4 years ago I noticed a tingly sensation on my right side just below my ribs.  I didn't think much of it as it went away.  It would come back, and again it would go away.  Then about 2 years ago I began to get the pain, and in two occasions I went to the emergency room were they told me it was gas or gastritis.  I hooked up with an liver doctor who did an endoscopy and a colonoscopy one right after the other, and the only thing that the procedures showed was that I had gastritis.  I had an ultrasoud which showed 3 liver hemangiomas.  One small one on the left lobe (1CM) and two on the right lobe approximately 2 by 3 centimeters in size. I also had an MRI to confirm the ultrasound.  Doctor, surprise, said the hemangiomas should  not be giving me pain!  All this time I have had the pain on and off, depending on the hour or what I have eaten.  Of course, beer or alcohol is completely out of the question as it goes directly to the liver!  Anyways, he ordered more blood work which came back normal.  Yesterday I also had an CT scan, and tomorrow will get more blood  work per his orders.  I do recall cornering him and asking again if the hemangiomas were causing the pain, which he replied with a shrug, and I asked him if he did the surgery, to which he replied that I would be referred to UCI in Orange County California.

Right now as I'm typing this ((PM)  I can feel pain radiating to my backside, just above my kidney,this alongside the pressure below my front rib cage.  So I will see the doctor sometime next week to get the results of the blood work and CT scan. As I understand, there's a procedure called laparoscopic radiofrequency ablation that has been successful in these cases.  I will mention it to him.

Most of the symptoms all of you have described I have had, or are having. 

I have just been diagnosed with a liver haemangioma and lyme and I have these symptoms apart from elevated blood pressure

Was just given the news today. Have been nauseas and vomiting this past spring. Lightheadeness and foggy brain. At times, thought I was pregnant but wasn't. Had a bout of diarrhea and at the same time a very severe brain splitting headache which I thought was due to upcoming AF. Was left with horrible hemorrhoids. Morning of hemorrhoidectomy, did a fleets enema and had another explosive headache. While recovering had horrible URQ pain on pain meds! (Not the dirst time fir pain, but the wirst yet.) US showed gall bladder fine but noted a 3cm hema. Have many of the same symptoms. Dizzyness, fatigue, muscle pain all over (fibro) IBS, URQ pain comes and goes but isn't because of fatty foods. Wondering if fibro diagnosis is really the hema. Also have just begun having sudden onset migraines that feel as though my head will explode. Especially related to loose bms. MRI/MRA LP and CT scan of brain are clear. Have had six live births and may be peri menopausal. Wondering about the estrogen tie-in. Wondering if others have suffered the splitting head migraines especially related to loose BMs. And wondering if people who have had some procedure done for their hema, if there has been a marked relief in the symptoms mentioned in these posts. Did it help? Are you better all around?

Do not take anything with aspirin in it.The Hemangioma is full of blood vessels and clots and could start to bleed.

I found out 10 years ago I had a giant hemangioma on my right left lobe and a small one on the to of the right liver. After having pain for years and dr's saying it is nothing a dear friend who was a cancer surgeon had me to come to the cancer center and have some tests run. When the tests came back he sent me straight to the hospital.I live in Beckley WV where there are view good dr's.I was sent to UVA then Duke.Both told me I had to have surgery because it could burst at any time. I went home because they gave me a 50% chance of surving the surgery.I started studying and became part of a liver tumor site.Someone saw my post and said go to UPMC and told me the name of the dr. It had been 2 years since finding out about the hemangioma.I actually sent a email to Dr. David Gellar who was over the liver resection team.I heard from him the next day and was in Pittsburgh a week later. He said he had never had a person die from doing the surgery so I had it 10 days later.He cut me from the breast bone to my side.He removed 3/4 of my liver.I was in the hospital a week.It was a long recovery but I did recover. Last year I started having pain in my side again and something was poking out from under my rib. I have developed fatty liver disease.He put me on a low fat diet and I have been doing ok.I still do not take anything with asperin. Make sure you go to a University hospital and do not let them tell you that you can't feel it.I always felt it. If you have any questions you can ask me. Susan

i have been diagnosed with a haemangioma on my liver also and suffer from the same symptoms as above. the doctors dismissed me saying it was nothing more than a birth mark! a birth mark that hurts like hell??? i've seen 3 Dr.'s and they r all very dismissive :-(

wat are you supposed to do when your body is telling you something is wrong and the doctors are telling you your fine?

what is consider huge?

Go to UPMC liver cancer center website, look up David Gellar,should be a contact email address. Send him a message concerning your pain and hemangioma.He will help you.

The size of a softball. They took my whole right lobe out.

Hi Smed,

I was wondering how your surgery went as I also have a 10-cm,centrally located liver hemangioma. I am weighing surgical options. Did they do a central resection or remove a lobe? How have you been since?

Lisa S.

I have been in pain for months that started as upper back pain and then shoulder neck and thoracic. I could hardly breath for months and have been light headed because of it. My liver is enlarged and I have a 14 and a 6 centimeter giant hemangioma. I have not had the MRI yet and do not know the final diagnosis. These symptoms seemed to appear out of nowhere. The only thing comfortable is laying down. I have been an extremely active person with playing tennis and weight lifting and now in the past 5 months I am turning into a couch potato. I sure hope they can fix this. The pain I have experienced has been so horrible child birth didn't hurt that much. The question that I have is... If it is something that I have had all my life why is it now starting to hurt so much? If anyone has had surgery please keep posting the results. I know I can't live like this the rest of my life. That embolism with alcohol thing sounds like an experiment. My Dr. says they can shrink it but didn't say how they will be able to do that. It's been two weeks since I found this out and I have been trying to find out as much information as I possible can.

Have you ever been tested for Lyme disease? Igenex Labs in Paulo California is a great place to start. Trust me, most normal physicians DO NOT want to look into it for political reasons...But there's lots you can do.