Has anyone a liver hemangioma and any symptoms

Hi,
I have been reading all these posts as I too was told following a scan that I had hemangiomas in my liver. Actually they turned out to be metastases from neuroendocrine tumours in my pancreas.
These are slow growing tumours and often missed over years by General Practitioners. My initial symptoms were pain left hand side, my GP sent me down the Gynae route ending in a hysterectomy. But eventually a gastroenterologist performed a biopsy on these Hemangiomas and they turned out to be NETs. I sincerely hope none of you have this but its worth looking up to see if the symptoms tally. GPS hide behind the "rarity" of NETs but actually it is the second most common gastrointestinal cancer after bowel. Trouble is it is inaccurately recorded. Did you know Steve Jobs had Neuro endocrine tumour (NETs) cancer? Good luck and as I said sincerely hope this is not what you have.

There's highly highly highly unlikely that the 1.74cm hemangioma is causing any of your issues. I had two hemangiomas with the larger one being 16x7cm!! Doctors still weren't sure my pain was caused by it. One hesitantly suggested surgery but after researching it, I decided against it. My pain was worst in the early morning after laying on the bed for a few hours. But it would soon go away after standing for a while. Anyway, to make a long story short, within 2 years the pain went away on its own!!

Good luck to you!

I'm 47 years old I have had low and upper back pain for over 1 year. I have gone to the doctor were they did test and said it was low back pain and sent me to a pain clinic to receive shots. Now in the last year I have gone to the doctor for blood in my urine. were I was givien pain meds. Now these last 2 I started having blood in my urine again. They run blood work and a CT. Were the did not see any probablem with my kidney or bladder but they found a 4cm Hemagioma.... my question is can that be the reason I have painful back pain and and bleeding when pass urine?

Hi is this still an active forum?

Any updates on your condition?

It's 2017, here I am feverishly turning the internet upside down for liver hemangioma cures. I recently had an US. Looks like I might have a 3cm nodule which looks like a hemangioma. I do have irregular menstrual cycles. I believe my hemangioma is caused by estrogen. I just had a CT done and awaiting results. My mom died of liver cancer 3 years ago so I am vigilant about my liver health. I recently did liver cleanse before the US because initially I was thinking of gallstones. I did not produce any. So now I'm at a crossroads. I am searching for people who had these issues and would like to share their experience especially if they were able to shrink or get rid of their hemangiomas. I am taking supplements, Milk Thistle and Dandelion. I drink beet and apple shakes (kale, bananas,carrots). I also take apple cider vinegar daily. My symptoms are right shoulder blade pain, right upper quadrant pain radiating to the ribs sometimes and lower back pain right side.
I hope to hear your stories and hope you all had some success stories to share!

I have the same symptoms for over 6 years now, vomit every time I brush my teeth, feel sick all the time, my hemangioma is 5cm X 9cm. always in pain , cannot sleep properly. Take supplements and a greens shake every day. Was told by a liver specialist that hemangiomas are not painful and wanted to start me on antidepressants. Said not to come back unless I turned yellow. Needless to say have never been back to a doctor about it. Have recently started to vomit blood. Just trying to learn to live with pain and open to any suggestions.

Did they rule out a Mast cell disease or Dysautonomia?

Hello all, Since my girlfriend had a 10cm rapidly evoloving hemangiom and had to be operated.. because of debilitating pain I have done some research and it seems sorafenib(Nexavar - commercial name) is the drug that will stop and regress giant hemangiom growth, yes thats right it can shrink it! 
Hope this information arrives in time to help you.

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I also have a Giant Hemangioma. An embolization to block the blood flow was performed in Indianapolis in Feb. Loved my Doctor. We are hoping that the Hemangioma will start shrinking. I continue to have digestive problems which I'm sure is not only from the pressure on my other organs but also from the gallbladder. Going back to Indianapolis next week to see if the embolization is still working and discuss our course of action. My research has not identified a cause nor cure. Finding the right doctors to answer your questions is key since we are few and far between. Good luck.

Would like to hear how things have gone with your liver hemangioma. I have one about 8cm on my left lobe. My main issue is that I would like to get pregnant since I have no children yet! I'm only 29 years old and I'm in constant pain in my upper left abdominal quadrant...has anyone experience pain where the hemangioma is located? I have noticed that the pain get tougher when the period is due.

Better to exercise in a soft way ( train but don't strain). Walking is much better then running not only for the liver but also for your knee. Try to split the exercising into am time and pm to reduce stress on your hemongioma.
Good luck!

You are singing my song. I have known I have 4 liver hemangiomas since 2001. Three were smallish, one was 4 cm. After my last (6th) child was born they checked (2004) to see minimal growth (largest was now 5 cm) with a plan to check every three years or so. I did my best to put it out of my mind as the drs indicated they would just keep an eye on them. Over the ensuing years I have had super sensitive digestive issues with occasional stabbing pain under my right shoulder blade. They never checked them again and I never asked. Last June (2016) I have an excessive uterine bleeding issue for which I had an MRI and was put on HRT; the big one grew and was now 9 cm. I was told that HRT can cause hemangiomas to grow, but since I had been bleeding excessively for over a month they believed I should stay on the HRT. I made it 27 days before the stabbing pain, lack of appetite, feeling full after a few bites, so tired I could barely function forced me to stop the HRT. MRI in July (2016) showed the biggest to be 13 cm and covers almost all of the right lobe of my liver; the others had grown as well. August 2016 I underwent a 6 hour embolization procedure of the largest 2. The pain has been aweful, it changed from throbbing/stabbing pain to throbbing/stabbing/grating (like you are rubbing sandpaper over an open wound). Repeat MRI at 3 months, no change. Had to have a hysterectomy at the 6th month mark because they couldn't stop my bleeding and obviously couldn't give me HRT. Repeat MRI at 9 months, no change. The Interventional Radiology (IR) team has been great. They told me the embolization might not work the first time because the tumor is so huge. I was disappointed there was no change, but at least they stopped growing!! Now, I am scheduled for a microwave ablation in Mid July 2017.
My goals/expectations:
1.To be safe from the very real danger of rupturing
2. To be out of pain
3. To get back to my normal activities
I trust the IR team to do what they do best. I have lived long enough to know sometime we just have to accept things, but I am hopeful the ablation will work. I believe it is better than removing the right lobe of my liver. They only thing I would have done different would to have insisted on getting the hemangiomas looked at every few years as was recommended. Would the outcome been any different? Doubtful. I will try to update after the ablation to give my accessment. I hope my experience has been helpful to someone. Reading these posts has been an encouragement to me. Paying it forward
Blessings to you all.

Hi
I had been diagnosed with multiple small haemingionas many years ago. I had the same symptoms as you describe and after an ultrasound and cat scan and MRI have been diagnosed with a very large 12cm haemingiona. i was told they rarely grow but after reading a lot it seems many do. I am waiting to hear whether I am a candidate for embolization as well or surgery. I hope this works for you and you regain your strength. I have not been to the gym for a few weeks as I also do not feel 100% and hope some medical intervention will fix me.
Take care and hope you feel well soon.

I was also told they rarely grow but here we sit. I have had two embolizations this year. Unfortunately the first one did not phase my hemangioma. Still waiting for the 3 month follow up visit in the hopes it has starting shrinking. Stay strong. Both my procedures went well and I hope yours does also. It is considered an out patient procedure but my Dr. admitted me for two nights after the second one to monitor me. They were much more aggressive the second time around. Good luck and keep me posted on your progress.