Has anyone a liver hemangioma and any symptoms

Hello everyone, not sure if anyone is still on this board or not. I recently had a giant hepatic hemangioma found measuring approx 16.8cm, it is centrally located on my liver, I also have multiple others on both my right and left lobes. I was told that the larger one will involve removing most of my liver. I am curious if there is anyone that faced a similar situation and if you could tell me what the surgery involved? My primary care dr is currently working on finding a surgeon to do this, he sent me to a general surgeon and they refused to do it due to the complexity. 

Yes after Lyme diagnosis 15 years ago now have 5 liver hemangiomas and chronic cough does anyone know where in east TN a doctor experienced with this? My present doctor blows me off. Thanks

Hello , I hope you feel better after you surgery , I have the same problem 5 hemangiomas very big in size in the right side of the liver and the doctor tolled me that no surgery can help my case and in case of liver failure I will need a liver transplant.

Why would you tell people these do not cause pain - that is absolutely nonsense and untrue. Many of us who have them DO have pain and lots of it!

Wow I have known about my Hemanginonea for years it was originally 3,2cm and is now 5.9cm and am suffering exactly the same symptoms as you all. I am also having problems with bile reflux and a pain like something is getting caught under my ribs. I am so tired and gaining weight at a rapid rate. I am going to insist on seeing a specialist.

Well I am a 26 year old Female and I have a Hemanglomia on my right Liver the size of a golfball and its been bothering me... I to have been having symptoms like diarrhea and sharp pain in which I was told it shouldn't bother me. I have not had my gallbladder removed because it is functioning fine its just my Liver.

I've been having the same symptoms for months as well just not feeling well nausea vomiting occasional diarrhea last constipation and now extreme headache and achey all over they been telling me nothing was wrong finally I had a cat scan done showed something on the liver MRI confirmed I have a 5 centimeter cavernous hemangioma on my liver. After reading other posts from other people now know I wasn't crazy. I myself am wondering what can be done now?

Hi KAthy read your post whatever became of your situation did you have surgery, if so where, what was recovery like. Hope you have some good news

Hi,

I'm from Scotland and after similar histories to everyone here I was recently diagnosed with multiple small cysts, a 4cm simple cyst of no significance, a 2.5cm haemangioma and a 4.8 uncharacteristic lesion which is 'most likely' and adenoma involving the gallbladdder bed.

I was given a copy of the actual report as I was a seeing a private gastro for a previously booked endoscope which found no problems save a small polyp (treated separately so now waiting on NHS gastro).

I am suffering all the same pains, knife like pain in the back, indigestion and horribly arm/shouder/armpit ache.

I am now left to wait & hear from the NHS gastro as to what happens next if anything.. I'd be really interested to hear from anyone who has had similar. My particular concern is that the adenoma is noted as 'most likely'...

x

2 weeks ago I went to my doctor after suffering from sharp stabbing chest pains underneath my right breast over a 15 hour period of time.  EKG was normal.  Besides chest pains, in the last couple months I have had boughts of dizziness and nausea, and a soreness when I completely exhale.  I am a 42 yo female, 5'8" and 145 lbs.  I work full-time outside the home, have 2 tweens and get plenty of exercise.  My doctor thought I might have pleurisy (even though I haven't had a cough or lung infection) or pulmonary embolism and ordered a chest CT scan. 

After studying my chest scans, the radiologist ordered more scans of my liver which showed a 5 x 4.7 cm (the size of a plum) anomaly on my liver, which he though was a hemangioma.  The radiologist called it an anomaly, the nurse called it a lesion, and my doctor called it a benign tumor.  My doctor told me some people are born with them and they never grow.  However, after re-examining a CT scan from 7 years ago, the tumor does not show up on my scan.  Which means either it wasn't there or it was too small to detect.  She then amended her answer and said that the medical community was still learning a lot about hemangiomas and that a very small percentage of people with hemangiomas will have growth.

2 days ago I was sent for a SPECT (nuclear 3D imigining) scan, which confirmed the diagnosis of hemangioma.  The location is posterior right lobe lateral.  My doctor stated that the location made sense regarding my chest pain and has referred me to a GI specialist.  Now just waiting for my consultation.        

Hi kami27nokr,
I was "accidentally" diagnosed as the result of preparation for an unrelated surgery several years ago. I suspect (but will never know) that mine stems from blunt force trauma I incurred decades ago in an ATV wreck. It was about the size of my fist - at first. I could feel pain in my right side when I inhaled fully, and could feel the lump after my GI showed me where it was. He told me similar things to what you learned. He initially started monitoring it every six months, reducing to annual after the first two visits showed no change. The last time I saw my GI he said it had gotten quite a bit smaller. Now, neither feel it in my side nor feel any pain when I inhale deeply.In the last couple years I've lost a bit of weight, toned up my 50-yr old bod and started adding cinnamon in my coffee after reading it would reduce my blood pressure (Which it did). I don't know if any or all of those changes are responsible, but the point I wanted to make was it got better on its own, maybe with help from me getting in better shape (all I did was start walking a couple miles most days). I hope my long-winded reply eases your concern some. Chances are good it will turn out to be nothing you need to worry about.

did you have the liver resection. Can you tell me where did you have it done, i.e. doctor, hospital, and how are you doing after the resection.

Thanks for sharing

I was just recently diagnosed with a liver hemangioma and my Dr. told me to stay acetaminophen all together. He suggested Aleve (but in moderation). I would suggest giving the list of pain meds to your doctor and have them let you know what you can/cannot take.

I meant stay away from acetaminophen. Sorry :)

I thought I had a lung problem (possibly cancer) because of a 2 month dry cough, tightness in my chest and pain in my ribs when I cough. I also did poorly on a breathing test. I had a ct scan for my lungs-it showed my lungs are ok but I have a 3 cm cyst on my liver pushing on the diaphram that they said could cause my symptoms. Now I need to see what they can do about it-I am sick of this daily cough disrupting my work and feeling like i'm about to have a heart attack.