mixed connective tissue disease and life expectancy

Guest over a year ago

I was diagnosed 4 years ago, although I am sure that I have this my entire life. I have changed everything in the last four years and am feeling so much better. I don't eat processed foods at all. I eat very small meals and drink a lot of smoothies, which are easier to digest. I avoid the sun and keep a regular sleep schedule. I practice meditation and yoga for stress release and joint pain. I avoid gluten and eat organic. I exercise at least 4 days a week although I stick to walking, ballet, barre and yoga, which are easier on the joints and my breathing. I feel really good. Much better than I did before I was diagnosed. I am taking 200mg of plaquenil and amtriptyline. The only real struggle are daily headaches. Good luck and don't worry, the stress is the hardest part to control, but worrying will only make it worse!

Reply

Loading...

Guest over a year ago

I have MCTD. My doctor gave me information on the disease by a published scientist that has been studying this disease. The medical website, (Wolters Kluwer health). I wish I had that information but I don't know myself. But, this website says, between 5-15yrs after diagnosis, depending on the severity and course of treatment. I hope this helps.

Reply

Loading...

Guest over a year ago

Hi Sandra I have recently been diagnosed with MCTD I am very scared . How are you count and what medications are you taking ? Are you able to lead a normal active life . Right now getting up from the toilet bowl is even a challenge for me .

***this post is edited by moderator *** *** private e-mails not allowed*** Please read our Terms of Use

Reply

Loading...

Guest over a year ago

Hi all, I'm 29 y/o and was diagnosed with having MCTD about 2 years ago. I never heard of this disease before so I didn't know what to expect. I feel down every once in a while bc I don't feel as if the ppl in my life truly understand what I go through at times. During my flares, I can't even get out off bed to take my children to school. I wish there was a group around me that I can talk to that suffer from the same illness. I certainly plan to try my hardest to live a full long life. (:
All these posts help, thank you all.

Reply

Loading...

Guest over a year ago

can you inbox me or let me know where you go...UTMB is near by...

Reply

Loading...

Guest over a year ago

Hi, I am trying to find a good doc and you mentioned yours was really good. Can you give info?

Reply

Loading...

Guest over a year ago

my e mail is misseyeisechrist and I have it too please contact me to talk

Reply

Loading...

Guest over a year ago

l please get in touch with me I also have mixed connect tissue disease

***this post is edited by moderator *** *** private e-mails not allowed*** Please read our Terms of Use

Reply

Loading...

Guest over a year ago

I struggle every day with severe fatigue, pain and just not feeling well overall. I work from home full-time. I care for a 4-year-old son in the evenings. I become so exhausted at night that I literally start crying. Wondering if you still work or qualified for disability?

Reply

Loading...

Guest over a year ago

HI KATHY, I JUST GOT DIAGNOSED A FEW DAYS AGO MYSELF.. AFTER YEARS OF BLOOD WORK AND LEANING TOWARDS LYPUS.THEY SAID IT WAS MCTD. I WAS PERSCRIBED THE SAME MEDICINE YOU TAKE. BODY ACHES AND TIRED ALOT, MIGRANES MOSTLY. ARE A FEW OF MY SYMPTOMS. HANG IN THERE. MADELINE

Reply

Loading...

Guest over a year ago

What do they call a doctor that doesn't graduate at the top of their class? DOCTOR You're right. They aren't all great. Your advise is right on. Don't overdo when feeling better. I'm 58 and have been dealing with Raynauds, Sjorgrens and SLE for 3 decades.

Reply

Loading...

Guest over a year ago

I was diagnosed in 2008 after having symptoms after I had my son. 2 yrs of being poked and used as a lab rat. I'm managing though. Everyone has their good days and rough days. I'm always here if you want to talk.

Reply

Loading...

Guest over a year ago

My life reads exactly like yours! I find it extremely hard, because dr's. Do not like patients with chronic illnesses! Do you mind if I ask where you live and what hospital is near by, is it a teaching hospital?

Reply

Loading...

Guest over a year ago

I was diagnosed with MCTD in 2008. Lucky for me I found these web sites. On these websites you will find more that 200 testimonies that people have written about their recovery. I read the book The Road Back by Dr. Brown. I’m in remission, most of the time I don’t even know that I have a disease. I would love to hear back from you.

***this post is edited by moderator *** *** web addresses not allowed*** Please read our Terms of Use

Reply

Loading...

Guest over a year ago

My wife was diagnosed at age 24. She passed away last May 2015 at the age of 43.
Enjoy every minute because life is short!

Reply

Loading...