mixed connective tissue disease and life expectancy

Dear Guest,
Your chances of remission are very high because you've had the disease a short time but you need to get the book The New Arthritis Breakthrough by Henry Scammell and read the book inside it,The Road Back by Dr Thomas McPherson Brown. Dr Brown treated hundreds of patients with antibiotics such as Minocycline and they got better!!! Next go to your doctor and give him/her the book and tell him/her that you want to try Minocycline (after all it is used on many people for achne for unlimited lengths of time). It can't hurt you unless you are allergic to tettracycline. I did this and I am in remission. I've had the disease for approximately 10 years. My doctor is very supportive of me. The rheumatologist may not ever see the light, but I'm working with her. I really hope you can get the antibiotic treatment and get better. Carol

Dear guest,
I have 2 web sites that I recommend, one is with the Rheumatic organization, they have information on the life and work of Thomas McPherson Brown. The other one is the Roadback organization, they also base their web site on Dr. Brown’s antibiotic therapy. With antibiotic therapy the life expectancy is no longer an issue because the antibiotic of the family of tetracycline puts patients into remission. The proof is that there are hundreds of testimonies of remission. Of course I am one. My disease actually began in 2008 or earlier and I am still in remission but I continue to take minocycline so that I remain in remission. I hope that you will get into remission too…Carol

Hi Lizardqueen,
I have MCTD and have been studying autoimmune diseases. I was a nurse. I'm

Hi lizardqueen,
I’ve had MCTD for 9 years, I was a nurse. I am studying autoimmune diseases. I do have a lot of hair loss but it might be from aging. My doctor told me that his wife lost her eyelashes too! My doctor told me that the RNP is the major lab test to gage MCTD with. My ANA, RNP, and Smith antibody were high in the beginning. I think that the symptoms of scleroderma can be similar to MCTD. I have MCTD only but I have symptoms of lupus also. I did have some arthritis in the beginning. I think you should go to internet and find websites, the road back.org and rheumatic.org for more information. I follow Dr. Thomas McPherson Brown who has passed away but he studied these diseases over his lifetime and his antibiotic treatments have put many people into remission. There are hundreds of testimonies of remission from autoimmune diseases. I am in remission because of taking minocycline. I wish you well. Carol

Hi Carol, I have changed my name now. I am actually managing it very well these days wth my Rheumatologist and meds. My ANAs have come down quite dramatically and feel pretty good, mine is RA dominant with lupus rashes but my blood tests normal and hair loss. I have recently found a lump on my left upper arm that looks like it is muscle or tissue related, just waiting for an u/s. I take plaquenil and low dose methotrexate weekly for management. I appreciate you getting back to me after all this time. Great to hearthat yours is also managed well.

Dear krzeminskik
I can’t imagine what you are going thru. I describe MCTD as a cousin of many of the autoimmune diseases such as RA, PA, Lupus, and Scleroderma. I’ve had MCTD (without any others) since 2007. I’ve been studying MCTD since then on the internet. The only doctors that I am sure that could help you would be Dr S Sinnott from Ida Grove, Iowa; Dr Robert Franco from Riverside, California; and Dr David Trentham from Boston, Massachusetts. I’m sure there are a few others. These doctors use antibiotics to rid the body of infectious agents. To understand this, get the book The Road Back by Dr Thomas McPherson Brown. It is included in the book, The New Arthritis Breakthrough by Henry Scammell. The two web sites that I go to are rheumatic.org and roadback.org. I do hope that you get well!!! Carol

Hi Jada’s mom,
I’m glad to hear from you and that you are doing well. I was hoping that you would do some research on the internet about The Road Back. Certain antibiotics can put you into total remission. I am in remission! I had some bad side effects from Plaquenil in 2008. I got permanent floaters in my eyes, it caused head ache, and rash on my legs. Pay close attention to any side effects that you get. Take care and keep in touch! Carol

I was just told I have this and could use some advice

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Hello, I was diagnosed with MCTD 4 years ago but was just told about it 2 weeks ago! Was never put on meds until this week. Was wondering what my prognosis is after not being on meds. In pain constantly!! Please answer!

I was diagnosed with M.C.T.D, 3 month ago. But, I got erythema Nodosum year and half ago. He had 9 surgeries since 2008, mostly fusions. 5 on foot joints but bones died now in permanent brace. I'm proactive in my health but everything seems to separating, collarbone, thumb joints, I am constantly seeking a decent primary. Last one didn't talk to my R.A. Specialist, in his mind, I just had fibro... so takes me off my Effexor, which is prescribed by my psychiatrist, and put me on Savella. I bottomed out, withdrawals severe, seizures, vomiting, just 4 days after he promised me I would be ok. I realize Medicare pays what they pay, but doctors, I thought, went to medical school to help people. So far, other than my shrink, and R.A. Doc, I trust no one else. I'm scared enough, don't need doctor making it worse. On 400 mg Plaquenil seems to slow up the flares with a mild muscle relaxer.

I'm not exactly sure because there have been several studies completed. My doctor gave me information from the website of "filters & cute". On the page it says between 8-15yrs after diagnosis. It depends on how progressive your disease is and how many of the other complications arise. The one that's going to kill faster is " Arterial Pulmonary Hypertension".

hiii, my wife i\has been recently diagnosed with MCTD ,can you please tell me, if it is life threating,and are there proper cure for it.our doctor has advised us against having any kids now.please help with some information

Hi Raquelle! I was diagnosed with MCTD about a year ago. Mine started after I got Bell's palsy as well. Is Bell's palsy caused by the disease?

Eldora This is what I have n have been dealing with my insurance is alsi a hmo n doctors arent treating it im sick alot n noone understands this that i talk to do to arthritis pain n fibromyalgia some docs are making me look bad from the steriods adrenaline n opoids they gave me for my asthma n myalgia for so long before the being diagnosed with CDD n hoshmotis .. They try to cover up all the bad side effects ftom these drugs they gave me for my asthma and allergies that lowered my Immunity n caused these virals and dibilitating diseases they want to niw blame a chemical imbalance or addict u are

I was just diagnosed mctd. Can you tell me more about it. My body aches all day and night I feel exhausted my legs hurt more my hair is falling. Thanks