I was diagnosed with MCTD in 2012. After trying numerous drugs to which i always had severe side effects with, my consultant stopped all medication apart from Prednisolone. She told me that I should take it at the onset of any inflammation as prescribed, which i do, and I feel so much better without all the other medication. Life for me is so much better now. I still have muscle weakness and joint pain but the swellings are reduced without Methotrexate and all the other auto immune drugs i have tried. The disease doesn`t control me now, I control the disease xx
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I was diagnosed in 2014 and have been in the advanced stages of the disease for over a year. I'm on the highest dosage of Methotrexate along with Plaquinel. I'm only 31. MCTD is a beast and can be as nice or nasty as it chooses. It's overwhelming at times, but, if you take the medications as instructed and go to your visits, it's manageable. There are plenty of us fellow spoonies to help you anyway we can.
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I was diagnosed almost 30 years ago. After about 10 years my symtoms stabilized. Hard to swallow stiil, raynalds. Joint and muscle pain but Im still kickin
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I'm almost exactly the same as you. I was diagnosed 3 weeks ago with scleromyositis which is a form of MCTD. A little cocktail of scleroderma and polymyositis. It started with Raynaud's, I've had that for 2 years and for the most part no other symptoms except my hands and my bloodwork. Their isn't much support or knowledge on MCTD so I also feel completely lost. I also feel like a ticking time bomb but my new daily mantra is "today I'm perfectly healthy and fine". Once you swallow this large pill and accept it just live your day one day at a time. Stress brings on symptoms so try not too worry too much. I know very easy to say not so easy to do but you just have to. This disease is very rare and they have no clue about why, when, and how we get it. They won't know how slow or fast it progresses so you literally just take it one day at a time. Just keep repeating that to yourself until it sticks. Don't stress and God bless :)
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Hi....I was just diagnosed with this...I have a bit of a problem believing it because I am having a super problem with low white blood cells,,,I have to get shots every week to keep white blood cells in my body...I am sick for 2 days after that....Did you have problems with that? Thanks for any help Cheryl
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HI very interested in how you are doing as of today since this was over a year ago. My wife is In the process of being diagnosed with MCTD and has celiac disease as well.
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I was given ciprofloxacin 18 months ago and all my muscle tissue has shrunk - and if I try to exerscise its very painfull do you think its connective tissue disorder ? its only come on since I took the cipro antibiotic for a water infection cheers .
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I was only recently diagnosed with MCTD. I am 60. I have had symptoms for years, but was treated like a hypochondriac. I have had issues with elevated pressured in my right ventricle (higher pressure in my lungs). I have three grandchildren. No one seems to grasp the severity of this condition. I don't "look sick", so it isn't taken seriously. Just feeling alone. Prayers to everyone battling these same feelings.
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I have sjogrens, fibromyalgia, and now lupus. It is true find a good doctor. I saw 2 rheumatologists and both said i had no autoimmune disorders even though a previous doctor discovered it on my labs. So all this time its been untreated. So true once you have one autoimmune disorder you tend to get diagnosed with more. I see rheumy doctor in December and looking at labs they may add Mixed connective tissue disorder that will put me up to 4.
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