Morgellons Disease

hey there Judy.... I am a biology major from Illinois and Was curious to learn just a bitt more on this disease.... as for how this forum works  you can post it in a thread like you did hear and you can also submit articles for people to read.... I will give you a like to another "Higher moderator/administrator" and he can help you more.... here is his contact info....

 

go to your "meddages" tab in your navigator pannel on the right side of your home screen and once you are there click on new message. in the "To" box type in  Bobby.N and then add your subject and just introduce your self and askhow you can be moreactive with posting your infor on morgellons disease.

He should get back to you....

Thanks again and looking forward to hearing from you....

Welcome to the forum!!!1 :)

Thank you B.R for your reply. I have learned ways of dealing with this horrible disease and I try to help anyone with info if I can. I only give info and they can do with it what they choose. I just think to not share is holding back from people who are suffering a horrible disease.

I will take your advice about the moderator also.

If you have questions you would like to ask me, please feel free to ask anything about Morgellons. I will be elated when one day Medicine realizes it as a disease and not DOP- Delusions of Parasitosis. I can tell you that there is nothing delusional about it. It is very real and hard to deal with just knowing these awful things are going on with one's own body. Such as being covered with biofilm.

I have my story in a word doc. and after I submit this I will post in in a new post. I am not afraid to answer anything you may have to ask. I'm not bashful and shy and I do not hide the fact that I have this because I know it is real. My family supports me. They know it is real. A posychiatrist even tolod me I was not psychotic.

Ok, I am going to post my story next. Please excuse typos if I have any. I just got out of the hospital with recurring bilateral pulmonary embolisms.

Judy

My Story- Partial:

In 2001 I noticed how my facial features were changing so quickly. I knew I wasn’t 20 anymore but I also know a person does not age overnight. It was just way too fast and I never laid in the sun so I knew that wasn’t causing it. Little did I know it was biofilm growing and spreading all over me. This kept going on for 6-7 years. I would get calloused like skin patches on my face. I had white patches up and down my arms which I did not know where they came from.

I am one of the group who does not get lesions. I don’t understand this but I am glad. However, in late 2008 I felt something moving on my head and face. I have a pain Dr. who is a Dr. of Osteopathic Medicine. he is one of the best. He had told me about a patient of his that had M. Otherwise I had never heard of it. I did not look it up right away for I was fearful I would find out I had it. I did many things to try and kill what was moving ion me. I went to many Drs. who all did not believe me so I finally quit going, knowing full well it would be futile.

Finally I had to do it. I looked up M on the internet and saw everything I had seen on me and in my home. To my horror, all the things hanging around our home were coming from me. I also had some fibers come out of my face and nose but not many. However, there were fibers clinging to our furniture, lamp shades, almost any place in the home. I finally shaved my head after looking at it with a 15 x magnified mirror I had bought at WalMart. I could not stand what I saw on my head and scalp. Once I shaved my head the fibers were no longer in our home once I had gotten the others cleaned up. I also had tiny white nodules all around my chin which could not be removed.

After I first shaved my head I could then see the disfigurement of my scalp along with my face from the biofilm. I used Dermarest Psoriasis products with salicylate acid in them. Most have 3% salicylate acid where otc acne med. has 2%. It worked well. I would be able to peel sheets of biofilm from my head. Where I had mounds I used wart med. with 17% salicylate acid in it. Underneath this film I found short white hairs. Hairs that really were not hairs. I think it is fungal or bacterial hyphae. Before I shaved my hair they would move on my head too. I could feel them on my forehead and by my ears.

BioMajor, I was going ot send you a PM but i have to post a minimum of 5 posts first. This may be the fifth. I was going to give you my email address so we could communicate that way if you were really into learning about M. Anyway, we still can do that. As soon as I can PM you I will send you my email address. I am most willingly to help anyone who wants help and/or info and anyone who is wanting to learn about this dreaded disease.
Judy

Thanks i got your post.....

what you are diescribing sounds fungal especially with the hyphe... if it is fungal it it systemic or just dermal? it if is systemic perhaps it is a dimorphic fungus (a fungus which grows in yeast form at body temperature (98 degrees farenhight but in mold form at cooler temps)

an example of this type of fungus is histoplasmosis.

I went to Allergy Associates once and learned that I was allergic to mold and dust and I had a lagre reaction to yeast.

Tell me something, can a systemic yeast infection cause hyphae to grow on a human body? I am assumimg it can.

before I shaved my head I would have these crazy white things, real coarse, and with no roots, that would grow out of my head. My face was also covered with small fine hairs underneath the skin; which have since grown out from under the skin.

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When I called them to order it they had me speak to a soecial oerson who is handling all the M people who are using their product for M. We do use it on our skin and hair. I just began yesterday and I can see more biofilm that is coming off of my hands.  I will also use it in my laundry. he explained to me how to use it. After the final rinse you do another rinse to be sure all the soap is out. The, if you have a full load you use 8 oz. in another rinse. This lasts for 25 washings. Their site has the research that has been done.

Anything to cure myself short of hurting myself I will try. A Dr. went and talked to them for a few hours about MonoFoil and this Dr. has his Morgellons patients using it.  I kniow a girl whio sees the Dr.  If this really does erradicate M from the body, this company will have created a multimillion dollar product because there are so many thousands of people who have M.

The CDC has just come out withtheir report finally and like all others they say delusional. But it truly is not. I do not understand how they can come up with this. here is the link for their report.

http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0029908

Just as Mayo Clinic in ochestoir, MN said it was DOP. There are many Drs. who know this is real. One is Dr. randy Wymore from Oklahoma State University. he is continuously doing research on it. Iy you go to youtube and do a search for him you will find him in videos acknowledging M. he even had a guy from Tulsa, OK run the fibers through the FBI database of fibers and they matched nothing.

I haven't read the whole CDC article yet because I amm in the beginning stages of quitting smoking, 5th day. and I don't need any triggers. It is a hard thing to quit. I have admitted that I am an addict. I am addicted to nicotine.

You really interest me about this yeast stuff. In past years I have had vaginal yeast infections ans this is the same feeling I have on my face and head. It is more of a tickling feeling. But I can definitely feel it. My husband has seen the sheets of biofilm I have gotten off my scalp but the Drs. have a name for this too when another household member sees it. I forget what it is called but it means that my husband is delusional also.

I like communicating with you and I hope we can keepo this up. Hopefully someone else searching for answers, info., and help will enter into it. I like to be proactive and I have sio  many sites and knowledgeable people I have come to know. Now I have met you and I believe you may have helpful input as well.

Your friend,

Judy

Hi. I landed here because of weird stomach burning (no doubt has something to do with morgellons, I should have known)) so many people are seriously suffering with the same stomach issues, and of course "undiagnosed". I have over a year of constant research, over 1000hrs. and have had several mini-nervous breakdowns. The truth about what this is is so disturbing and incomprehensable no wonder they have to deny it. Just curious about what you have discovered. I went to a therapist with all the scientific documentations, and also took my camcorder with my own evidence. He lost all the color from his face when he realized just how...."global" this was. I hope you are doing O.K., I still fight depression daily. Hope to hear from you soon.

How did you get rid of Biofilm. People have problems with it pouring out of their entire body. It is Tan Orange color and has poured out of body for 6 months. 

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I hear you! It's hell! & why feathers? Blues&Red fibers like the dollar bill? Indestructible! Or playing Medusa, or losing our minds cause we are left like garbage to our very own community! Nanotechnology & black goo(graphene oxide) is taking over, Crispr9 altered our genetic code to mutate us, stuffed us with stuffing and crystals, getting magnetized or vibrations & frequencies. We have opposite of Polar effect, 5g activated, took over our nervous system. "They" have complete take over of our bodies.