Hello! I was recently diagnosed after years of problems! In the past months my condition has become really bad! How are you doing today?
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hi there I know this post is from a year ago but many people don't know how to treat this syndrome. Iv been diagnosed with it and fly over to Germany to see prof.scholbach Thomas scholbach who diagnosed 5 different compression syndromes for me. He also know what the best plan to take regarding surgery. Taking asprin helps to thin the blood which is the best medication to take for nutcracker apart from surgery. My arteries have become sticky over time due to the compressions and the best way to describe this is - if you have a tube and you try to push honey down it it sticks to the walls of the tube and there for adds to the blockage and inflammation of the artery. If you put milk through a tube it runs through. So I'm currently on an 8 week course of asprin with him to thin the blood which reverses the damage somtimes to. Then going back to see how much it's improved by a colour doplar ultra sound scan then to discuss possible surgery. Hope this helps kind regards emma
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The best option may be Autotransplantation of the kidney. See a Transplant Surgeon.
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My husband has been suffering from left flank pain for about 6 months and an "incidental" note was given on his "unremarkable" CT w/ Contrast scan resutls that he has a Circumaortic Left Renal Vein. He is 42 and was born a very premature twin. I've been doing hours of research and feel that blood thinner seems like the winning option for now as almost everyone who has undergone surgery has not seen a resolution in their symptoms. Has anyone on here A) been born prematurely B) Tried using blood thinners/apsirin etc with any success? Thanks!!
- Searching4Answers
- Searching4Answers
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My daughter is on high blood pressure meds with success which might have a similar affect as blood thinners. She was not premature.Her doctor seemed to think something had changed in her body between when she was well at 16 and early 17 to her pain at late 17 to 18.
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I was just diagnosed with the nutcracker syndrome. I can't believe how hard it was to find a doctor that has any idea what this is.
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My son has just been diagnosed with nutcracker we live in England and not many people know about it!! He only has his left kidney as the other was removed 2016!! Really worried about him and need some advice x x many thanks
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Check out the Renal Nutcracker Syndrome Facebook group. There is a lot of information there that might help.
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Can you all tell me what doctor at Mayo Clinic treated your children? My daughter has Nutcracker as well, considering Mayo Clinic- but not sure where to start
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Check out the Facebook Group called Renal Nutcracker Syndrome. You will find doctor recommendations there. There is a Mayo doctor there that is NOT recommended. University of Wisconsin Madison are the experts in Nutcracker. Search for Dr. Sollinger at UW Madison. Joan
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How is your daughter doing? I have a friend going thru the same thing now. She is looking for a doctor.
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Hi, I hope your daughter is a little better now. I am 22 years old and I got diagnosed with Nutcracker last year. My situation was similar to hers i had surgery done and i still have relapses sometimes of pain. One thing i can strongly recommend, which does help me as well. Is blood cupping, or maybe a private referral to a vascular surgeon for an auto transplant or kidney removal as these issues seem to be reoccurring. I understand just how hard it is as i suffer from the same thing.
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I have Nutcracker. My Dr in Ontario contacted Dr Hans Sollinger at the University of Wisconsin in Madison for a consult. He is very knowledgable and has successfully treated many Nutcrackers.
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