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Do you have swelling in any of your testicle. Are your having fever?
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Just bringing a fresh comment to this post because I found it very helpful in identifying my own symptoms. I did many hours of research and I hope if you are someone out there suffering these symptoms that you'll find this post and not have to go through so much BS:

1. oral herpes as doctors STILL often ignorantly call it, is not limited to the lips but in most people it causes more milder genital herpes.

2. Herpes spreads extremely easily, including through autoinocculation. You can spread it to almost any place on your body. It can only be transferred to the genitals from mouth to genital contact, however. You may find it in your eyes, fingers, toes, anus, scrotum, glans, knees, elbows, cheeks, back and stomach. Chances are much higher of finding it where the skin is thin (e.g. the penis and lips).

3. Doctors DO NOT perform a herpes test in routine STI checks even though it's the 3rd most common STI in the world. I went in to three doctors with various symptoms all described in above posts and was misdiagnosed every time, with 3 urine analyses and blood work twice as well as blood cultures. They ONLY test for it if you have an open cold sore or lesion on your genitals, and might actually make you pay for it otherwise..

4. From my own research, personal testimonials and the experience of my gf and I and many other friends which subsequently got herpes from this initial event, <<<<<<herpes does not present itself with obvious symptoms in MOST people>>>>>>>. That is, almost everyone reported things like these taken verbatum: "very chapped and dry lips", "white puffiness in cheeks", "slight red rash when in the sun", "eyes vaguely burning, sensitive to light", "weakness in legs, soreness at base of penis". None of us had cold sores or lesions, yet all of us were affected by the virus to varying degrees and were transmitting it readily.

Almost everyone writing on this comment has herpes, I'm sure. I've been told all the other diagnoses I saw written on this board, but I had the same sort of symptoms and it was tested positive HSV1. Doctors are ignoring the epidemic and it is spreading and mutating quickly, acquiring resistances and becoming more invasive. I'm not sure the reason that my Type 1 herpes (and many other ppl's on this board) is not the benign herpes our grandparents may have had, but this disease can no longer be treated just as 'something that happens oh well' because chronic testes pain and a stomach ache for over 4 months now is not just something you toss to the wind. 

Ask to be tested, even if this testimonial may have convinced you that you have it. Good luck to you all, and I hope you'll help me in passing on the word- one less person having to suffer this disease means that much more. None of those claims are faulty !! so please help me in informing people. It's scary how uninformed everyone is about this.
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how u doing with this problem? Any releieve or cure?
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Not sure what to believe. I have seen over 12 doctors including 7 urologists and the idiots cannot find anything. I tested positive for HSV1 which I have never had any herpes symptoms. My problem started when i had unprotected encounter in 2009. Symptoms were very bad then but has subsided over the years. I have had all kinds of antibiotics to no avail. I will also doubt if this is HSV1 'cos i have been viral meds for over 1 month without any sign of relieve. Infact, the symptoms became worse on the viral meds. The only relieve i get is when i am on norflaxacin, one time the symptoms were gone for over a month, i believed i was cured until i had a forceful ejaculation, next day i started noticing the mild pain in my testes and then my urethra discomfort started. It's been a crazy ride of 4 years of discomfort. still counting. Hope we can all get answers to this problem.
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I myself have never had herpes symptoms with HSV1 either, but suffer pain in my abdomen and testes from day to day. Do you also report some of the following symptoms?

Leathery scrotum, literally sticky to the touch esp. in hot weather.
Constant and painful pressure inside the pelvis and at the base of the urethra.
Microscopically small red bumps covering all knuckles, knees, elbows, toes. Appears and sometimes is moist to touch and that worsen upon sun exposure.
Flu-like symptoms and nausea esp. in the morning.
Cold penis and scrotum. Swollen veins in scrotum only.
Sore throat and swollen cheeks.
Lastly, hard to explain but on the tip of my penis in just 2 small locations and also 1 or 2 on each knuckle of my hands: what looks like a reddish light brown spot made from a medium-sized marker. Almost always some irritation occurs or hypersensitivity around the marker spot but never anything else visible aside from mild redness of skin. I think I saw someone else explain this in this thread, too.
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Hey tcl08, give me a similar summary of yourself if you could and we might be able to isolate common symptoms and responses. Here's my recent treatments and results:

many tests conclude that i absolutely do not have: any other STD (technically, including HSV1 but my gf has been confirmed to have it so I know I've been exposed awhile ago) or urinary infection. 40-minute ultrasound of the testicles and base of penis revealed no irregularities. Two prostate exams revealed no irregularities, as did three manual testicular exams by 3 different doctors. Two blood cultures all good. Several detailed physical exams reveal that I'm "exceedingly healthy" altho i couldn't say that's how i feel. Also no family history of anything. Tried 2 regiments of antibiotics.

Just now finished my first high dose 10 day regimen of antivirals, although it was obvious they had no effect 5 days into it. I also started an impeccable diet during this time (no dairy, meat, very few sweets, max 1 cup coffee/day, supplements herbs and tons of water and herbal tea) for over a month to concentrate on the stomach pains with no changes. I don't smoke or drink, although now i smoke non-tobacco to alleviate pain and nausea, which i know will not help in becoming better but without it I'd be vomiting every other day or so, mostly from the nature of testes pain I believe. Also tried baby powder for awhile, wearing loose clothing for 2 weeks, then wearing lots of support for 2 weeks, and bath soaks with salts. And the last thing I tried before the antivirals was meticulous cleanliness (two quick showers daily with a strong washing down there, pat dry infront of a fan, and timed activity with showers so that I was never moist and sweaty).

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did u ask specifically for a herpes test? u have to ask for them specifically or they dont include it in the std exam
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Are antifungals doing anything at all? or Prosed/DS? Let us know about the camera thing!

My symptoms are worsening. It feels like someone is pressing very deeply in the spot between my scrotum and anus. Everything down there is hot to the touch, as is most of my body and especially my feet. The whole body symptoms suck, but this groin pinching and pain at the end of the penis is unreal.

I'm at the very end here..
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Hi College username, my symptoms are quite different from yours. My started out as constant burning sensation in my urethra plus dysuria for a comple of days. The burning continued for about 1 month daily, was on penicillin, flagyl and other meds. Subsided after 1 month, i was so stupid to go back to this b***h, she lied that she had yeast infection and that she had cured herself. This time around we didn't have sex par se, she rubbed her virgina against my penis skin. 2 days after it started again with burning in the urethra. When i ejaculate, my urethra burns for several days and then subsides. My right testes also has discomfort, my rectum itches and burns, my scalp itches also when it flares. I have been on all kinds of antibiotics including virals, i have had several bloodwork and reveals no infection except HSV1. No sores on penis or on lips. I think the problem we all have is either trichonomiasis, candida in the prostate or maybe HSV1 but again many in this forum have tested negative for HSV and they have similar symptoms. I have had antibiotics injected directly into my prostate by a New York doctor, boy i almost died. I will not advise even my enemy to try that nonsense, my heart almost stopped. Like i said the only meds that gives me some relieve is norflaxacin and OTS probiotics . I have these meds ready at home in case it flares up again. So far i have had relieve for several weeks now without any sypmtoms, though sometimes i have some residual symptoms but so far it's ben tolerable and i hope it stays this.
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hey tcl08, I'm glad to hear you've had several symptom-free weeks.

HSV tests aren't terribly accurate, and many people may have gotten swab tests versus blood.

I'm glad you mentioned the scalp and rectum- my gf had joked I had lice the other day because I go into little scratching frenzies. The itching is almost full body now. And my rectum has just now experienced what you describe. It had happened twice before for short periods but I had thought it was just bowel irritation but this is the third time it's happened since the infection without any reason and i've had clean bowel movements my whole life.

It's also interesting you mention the yeast infection bc thats what my gf claimed as well before she knew it was HSV (altho now we believe its me who had it orally and we infected each other genitally).

My gf works neurobio at our university so i perused some papers here and found what is potentially devastating evidence> in mice, (which are often used as models before human testing) there have been 3 independent lines of research into the spreadability and nature of the herpes virus in the brains, genitals and blood. What each study found is that herpes can exist in locations previously understood to not harbor certain strains of the virus (e.g. testes can be inoculated with brain-herp-1 or something). What one study found in 2005 is that the 'virus was endowed with new and novel properties when grown in the testes culture of mice'. That is, the virus becomes more destructive after it has physically traveled the testicular passage- of course, the mechanism of modification is completely unknown. scary.

Lastly, if you take a magnifying glass, you cant see very very fine red bumps on the tip of the penis, scrotum, hands, lips? so fine, it's almost like blood vessels are just tense under the skin.
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You saying this could be HSV1? It's possible, i cannot rule that out bro. It's surprising that despite all the antibiotics even the viral antibiotics, we still experience symptoms. Research also reveals that herpes does not persist for years, there are periods it goes into remission. it's scary, don't know what to think anymore. I just got a flare-up a few days again, decided not to use any antiobiotics, gradually it went away after 4 days but still with mild burning in urethra and the rectal discomfort is mild also but it's still present.
Hopefully we will nail this down one day before it develops into some cancer.
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Hi there I found your posting reflects pretty much the symptoms I have been suffering for the past 1 year.
Did you develop Pudenal Neuralgia? If yes, is it cured by now? Thanks for your time!
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Same problem for over a year. All the obvious tests have come back negative. I also have around 15 (total) small, white dots on my penis and knuckles and a barely visible red rash on penis head.

Does anyone know how this affects women or pregnancy?

How is it that this illness is ruining so many lives, and doctors have not even identified it!

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My belief is that it is herpes. Herpes is a serious situation if an outbreak occurs at the time of birth. it's ruining so many lives bc it's a virus like hiv that has no cure

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About two months ago, I was messing around with a girl for a little while. We would share drinks and she also performed oral on me. One month after all this, I broke out with my first cold sore. There is no doubt she gave me this herpes 1. Two days later, and intense burning sensation broke out on my genitals. I'm convinced this is the same disease from the same girl.

My oral herpes was classic, with a little burn before the apperance of a cold sore. But down south, it's a different story. The burning is worst at night or when I didn't get much sleep the night before. I presume it's the result of my body being run down and the disease taking advantage. If I get a good night's rest, then there are very few symptoms. The only thing I've applied to it is aloe vera gel. If you're in pain from this burning, then use it.

I haven't been tested or even seen a doctor, but I'm certain it's the same thing that caused my cold sore to appear only two days before the symptoms began. There is a lot of misinformation out there, with doctors and people on the internet basing their entire thought process around blisters. This disease is more complex than that. When you mix that with people desperatly not wanting to believe they have something like herpes, then we end up with a lot of confused ppl.

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