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Leathery scrotum, literally sticky to the touch esp. in hot weather.
Constant and painful pressure inside the pelvis and at the base of the urethra.
Microscopically small red bumps covering all knuckles, knees, elbows, toes. Appears and sometimes is moist to touch and that worsen upon sun exposure.
Flu-like symptoms and nausea esp. in the morning.
Cold penis and scrotum. Swollen veins in scrotum only.
Sore throat and swollen cheeks.
Lastly, hard to explain but on the tip of my penis in just 2 small locations and also 1 or 2 on each knuckle of my hands: what looks like a reddish light brown spot made from a medium-sized marker. Almost always some irritation occurs or hypersensitivity around the marker spot but never anything else visible aside from mild redness of skin. I think I saw someone else explain this in this thread, too.
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Hey tcl08, give me a similar summary of yourself if you could and we might be able to isolate common symptoms and responses. Here's my recent treatments and results:
many tests conclude that i absolutely do not have: any other STD (technically, including HSV1 but my gf has been confirmed to have it so I know I've been exposed awhile ago) or urinary infection. 40-minute ultrasound of the testicles and base of penis revealed no irregularities. Two prostate exams revealed no irregularities, as did three manual testicular exams by 3 different doctors. Two blood cultures all good. Several detailed physical exams reveal that I'm "exceedingly healthy" altho i couldn't say that's how i feel. Also no family history of anything. Tried 2 regiments of antibiotics.
Just now finished my first high dose 10 day regimen of antivirals, although it was obvious they had no effect 5 days into it. I also started an impeccable diet during this time (no dairy, meat, very few sweets, max 1 cup coffee/day, supplements herbs and tons of water and herbal tea) for over a month to concentrate on the stomach pains with no changes. I don't smoke or drink, although now i smoke non-tobacco to alleviate pain and nausea, which i know will not help in becoming better but without it I'd be vomiting every other day or so, mostly from the nature of testes pain I believe. Also tried baby powder for awhile, wearing loose clothing for 2 weeks, then wearing lots of support for 2 weeks, and bath soaks with salts. And the last thing I tried before the antivirals was meticulous cleanliness (two quick showers daily with a strong washing down there, pat dry infront of a fan, and timed activity with showers so that I was never moist and sweaty).
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My symptoms are worsening. It feels like someone is pressing very deeply in the spot between my scrotum and anus. Everything down there is hot to the touch, as is most of my body and especially my feet. The whole body symptoms suck, but this groin pinching and pain at the end of the penis is unreal.
I'm at the very end here..
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HSV tests aren't terribly accurate, and many people may have gotten swab tests versus blood.
I'm glad you mentioned the scalp and rectum- my gf had joked I had lice the other day because I go into little scratching frenzies. The itching is almost full body now. And my rectum has just now experienced what you describe. It had happened twice before for short periods but I had thought it was just bowel irritation but this is the third time it's happened since the infection without any reason and i've had clean bowel movements my whole life.
It's also interesting you mention the yeast infection bc thats what my gf claimed as well before she knew it was HSV (altho now we believe its me who had it orally and we infected each other genitally).
My gf works neurobio at our university so i perused some papers here and found what is potentially devastating evidence> in mice, (which are often used as models before human testing) there have been 3 independent lines of research into the spreadability and nature of the herpes virus in the brains, genitals and blood. What each study found is that herpes can exist in locations previously understood to not harbor certain strains of the virus (e.g. testes can be inoculated with brain-herp-1 or something). What one study found in 2005 is that the 'virus was endowed with new and novel properties when grown in the testes culture of mice'. That is, the virus becomes more destructive after it has physically traveled the testicular passage- of course, the mechanism of modification is completely unknown. scary.
Lastly, if you take a magnifying glass, you cant see very very fine red bumps on the tip of the penis, scrotum, hands, lips? so fine, it's almost like blood vessels are just tense under the skin.
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Hopefully we will nail this down one day before it develops into some cancer.
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Hi there I found your posting reflects pretty much the symptoms I have been suffering for the past 1 year.
Did you develop Pudenal Neuralgia? If yes, is it cured by now? Thanks for your time!
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Same problem for over a year. All the obvious tests have come back negative. I also have around 15 (total) small, white dots on my penis and knuckles and a barely visible red rash on penis head.
Does anyone know how this affects women or pregnancy?
How is it that this illness is ruining so many lives, and doctors have not even identified it!
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My belief is that it is herpes. Herpes is a serious situation if an outbreak occurs at the time of birth. it's ruining so many lives bc it's a virus like hiv that has no cure
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About two months ago, I was messing around with a girl for a little while. We would share drinks and she also performed oral on me. One month after all this, I broke out with my first cold sore. There is no doubt she gave me this herpes 1. Two days later, and intense burning sensation broke out on my genitals. I'm convinced this is the same disease from the same girl.
My oral herpes was classic, with a little burn before the apperance of a cold sore. But down south, it's a different story. The burning is worst at night or when I didn't get much sleep the night before. I presume it's the result of my body being run down and the disease taking advantage. If I get a good night's rest, then there are very few symptoms. The only thing I've applied to it is aloe vera gel. If you're in pain from this burning, then use it.
I haven't been tested or even seen a doctor, but I'm certain it's the same thing that caused my cold sore to appear only two days before the symptoms began. There is a lot of misinformation out there, with doctors and people on the internet basing their entire thought process around blisters. This disease is more complex than that. When you mix that with people desperatly not wanting to believe they have something like herpes, then we end up with a lot of confused ppl.
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