To join in on your comments about Narcolepsy and Adderall! I have been taking this drug for over 5 years, at times have been off of it due to I did not have the money to buy it! I take it for Narcolepsy without Catoplexy. Which I had been complaining of symptoms for 20+ years before the diagnosis. I too was accused of being depressed, and each and every time would say “No, but I could be getting there, cause I am tired of being tired, tired of hearing that and tired of not getting done what I want to or what I use to”. I had complained of tiredness, no motivation, no being able to understand things as I use to, feeling like I slept all the time but was still tired, just not being listened to! I was only diagnosed 5 years ago after 20+ years of going to doctors, with same complaints, them running the same tests, tests coming up as boarder line or normal and being told I was crazy, just did not want to be well or did not want to do anything! All so they could make me poor with the expense of it all. Then I would stop going until I would eat worse, the would try new doctors, that would run the same tests over and over again and charge me over and over again till I could not afford any more! I was a single parent, the expense drove me crazy! Also during the entire time asking does this have anything to do with the fact that a hospital intern in learning, OD’d me on 9 different antidepressants at the same time, when in the hospital for a Keflex drug reaction and it causing several illness, being sent home and back to hospital as a relapse while my immune system was down with Shingles on my brain. The Intern said she was giving me all the drugs for the Shingles pain! When I finally went home was sent home with all the drugs, I could not see, with glasses or contacts, I could not talk, could not think, I could not walk, and I was a single parent of two. Luckily, my parents live just down the street a block, so came over constantly. My mom went to the family doctor complaining the he needed to do something and he just said, “I can not do anything, I did not give her the drugs”. Finally he agreed to see me after my mom’s persistently bothering him. Went up there, he cold turkey me off of all 9 drugs. It took me 9 weeks to recover enough to go back to work. I could not function at my job I had for years. I had to relearn my job and it took me months! This is when my life changed. I was not the same after the Doctor induced OD! However, though out the years every time I brought it up, other doctors would just say, “There is no way”! I kept asking why, when an OD of any other kind effects the brain, why not this doctor induced! The doctors never wanted to admit when they or any doctor make any error! I also went on U-Tube and looked up Narcolepsy, saw a young man that said the same thing that when he had a drug reaction, that is when his life changed! The doctors keep saying they do not know but, if all of you go back in time when your lives changed if you were not born with it and you will see, even if it was just a cold medicine! I hate the thought of taking Adderal my entire life just to be able to get anything done and do my favorite things! I still struggle with motivation after all the year of struggling prior to the medicine. Others that do not have Narcolepsy, never understand, family even do not give you any breaks! Except my current husband and my children, as they are around when attacks happen, so they realize what I go through. My signs are getting this inner freezing feeling in my legs, like a freezer was put inside, then my eyes get really heavy, then my head, so I know when I have to lay down! I can be out for 5 minutes or several hours. Prior to and after, I am listless, can not talk clearly, do not ask me a question, I can not think, and will not remember, I feel like I went on a three day drunk! I have not had a drop to drink in over 25 years!! I can not work a full time job and sometimes just wish I could be my old self, completely organized, having it all together, clean home, back to my weight lifting and loving life! Never use to have trouble with my weight, been fighting it this whole 28 years, My hair is falling out, due to Adderal, my skin is extremely dry, even though I use coconut oil, and I eat healthy! Organic, clean, do cleanses, and still have weight issues. I have been 40 lbs more then I ever was prior to the doctor induced OD! I believe that it is the cause of my life changing and ending up with Narcolepsy. I believe that there should be a support group for Narcolepsy in ever area, there are some but not in all areas, so that we all know that we are not alone and so we have others that understand, we do not want to be lazy, tired, not think straight, feel drunk, have a dry mouth, that this most the time causes a tick of sorts to retain some sort of moisture in the mouth and lips! Itch all the time all over due to the dry skin, which is also a side effect of the Adderal! That we all hate this and would love to just give it away anything! Thanks for listening
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