Hi, I'm glad to find you...been looking for information, but none out there. Last month I went to see an
atlas chiropractor for neck pain, after he saw the xrays he said he could not help me because my atlas was
fused to my skull. I was shocked, he said to see a neurologist, but I have been putting it off. I'm too
scared to find out what the heck is going on. Donna
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My Little boy has the same problem and he is only 7, we do see a chiropractor that does help and does adjust him.
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I would get at least 3 different doctors opinions on it, my son is only 7 and he has this as well. I'm afraid of it as well and what to expect for him. Looking at him from the outside he looks fine. We took him to the chiropractor our family has seen for years and who is very good at adjusting the atlas. My son woke up with a kink in his neck having trouble turning his head to one side. An x-ray was done showing C1 fused to his skull. This did concern me because, I believe in was in the way of where the passage for blood supply to the brain and where some major nerves to the spine are. We will have to research this further and see a few neurologists as well. We do think it could be a birth defect or from a blow to the head by a fall when he was a baby.We'll see, I wish you the best in your research and with your comparing opinions with the neurologists. Don't forget to have faith and pray about it. We believe in miracles.
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Hi, I just saw this post and thought I'd give you a little information that I have gained. My mother has this, top 3 vertebrae fused to skull. It's called Klippel-Feil Malformation and can be inherited, mine is. It causes pain, lack of movement in neck and lots of other symptoms that you have mentioned. I myself am learning more so that I can deal with the debilitating affects of this rare disease. Good Luck.
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Since the accident, I've gone through physical therapy on two separate occasions, which only offered minor temporary relief.
Lately, my vision has been declining, becoming more blurred. I've had constant neck pain and muscle tension in my neck/shoulder area. Also, a new development is my throat feels like it's swelling and I have times where I feel as if I'm being choked.
As far as I know, I very well may have had this fusion from birth. Anyone else have similar symptoms?
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I have it to. C1 fused to my skul and c2 deformed and asymmetrical .
I have never met anyone else will it.
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We had a x Ray to find out the results were my c1 is fused to the base of my skull & I have bad scoliosis.
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