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Birth Defect in neck-C-1 fused to skull from birth. My post is under disorders because it is so rare

By kjbe155477 | 46 posts, last post
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Christopher Pavlinec, MD answered this The Most Common Neural Tube Defects: Spina Bifida, Anencephaly and Encephalocele
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I also have c-1 fused to my skull.
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I came upon this string of messages trying to figure out what the heck im dealing with might be called. My C1 & C2 are fused to my skull from birth and I am now 58. Dealing with constant pain, and unfortunately its getting worse...
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