I currently am seeing an endocrinologist at the University of Pennsylvania who recommends that I get surgery for the simple fact that I have this disease and am under 50. My serum calcium levels are at the top of or just over normal, PTH normal and urine calcium normal. I just had a sestamibi scan yesterday and will be doing another 24 hour urine calcium/creatinine (after the lab screwed up the results for the one I did a month ago). I do not know the results of my scan yet, and an ultrasound I had was inconclusive.
Is anyone else out there in a similar situation as me? Anyone know of a surgeon who will do the MINI surgery under sedation (like Dr. Norman) in the area?
I have been worrying about this since I was diagnosed, and part of me just wants to get the surgery over with so I don't have to think about it anymore!
I have a similar case where i was diagnosed with having hypercalcaemia/hyperparathyroidism just over a month ago and I'm 20 years old. I feel so unlucky that I have this condition, the specialist was telling me it rarely happens in people under 50.
These are the results that I received after the blood test..
Intact parathyroid hormone - 9.6
Calcium - 2.75
Corrected Calcium - 2.65
Albumin - 48
Both my doctor and the specialist have said that my best option is to get surgery and remove whatever it is in my throat thats causing the increased calcium levels.
The specialist has given me a rough time limit of how long I have before I need surgery which is max 2 years.
Doctor said if I don't do the surgery, increased calcium levels could result in a heart attack :S
I really hate the situation that I'm in, Im afraid of the thought of needing surgery on my throat and being knocked out for it.
I cannot understand how anyone can be diagnosed with hyperparathyroidism if their parathyroid level is normal. 'Hyper' means increased. Elevated calcium is not routinely due to hyperparathyroidism. I would never have this surgery unless all three of these criteria were met: 1) the parathyroid level stayed over 100 AND 2) the calcium level was consistently 10.5 or above AND 3) a tumor was identified on the scan or felt during exam. Calcium levels normally go up and down. One reading does not make a disease. A tumor cannot hide behind a thyroid. The scan material makes the thyroid image go away so only bad parathyroid glands will show. Healthy, normal glands do not show. If someone has this surgery that doesn't need it, the problems they have experienced and complained about will continue. Get second opinions... there are a lot of hungry doctors out there!
Foot note: Bad kidneys do not filter out calcium very well. Kidney patients are often treated differently.