Hi, I have a baby girl that was born with Pierre Robin sequence and a cleft palate. She has been in the hospital since she was born (Childrens Hospital from Birmingham ) now they said that she has golden har syndrome she was born with a right eyelid defect, a skin tag and malformed ear, cleft palate, small lower jaw..... She alredy had a lot of serguries and needs a few more... But she is here and we love her so much ... its our baby, she also has a trach but we hope they can take it out soon.....Thank GOD we live close to the hospital and she is in good hands with some Doctors from UAB and the others from Children's...... :-)