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Hi there not sure it this is the place to add the topic but as it's giving me havoc with my nerves it might as well be a good place to start.

  

I would love to see if any one out there has an opinion and that it’s worth it getting worried about it or not.

 

To start I work in a hotel and do a lot of physical work on a day to day basis.  In January my feet started feeling numb and tingling feeling.  Like having no delayed sensation but being hipper sensitive at the same time.   

 

Did not think much of it at that stage as I had done a late shift with about 4 hours rest and was in my next early shift.  It’s pretty normal to have a few pains every now and then as I’m not 18 years any more.

 

 I did get worried after 3 days when all my lower body was having the same sensations.  Spoke to my GP that told me to go to A&E as it would be the fastest way to get the test done that I needed. 

 

Went to A&E and got an x-ray taken to confirm that my back and neck was OK.  He sent me home with some inflammatory tablets and told me it should be gone in a week.  A week later with not changes in my condition I went back to A&E.  Was seen by neurologists that had a lumber punch, MRI’s and some blood test done.  All my blood work came back clean and there was no problem with my spinal fluids.  3 x MRI’s later they were able to tell me that I did not have MS but that there was inflammation on my spinal cord around my neck area. 

 

I was sent home with a prescription of Neurotin to drink once a day.  I found that this made my very sleepy, extremely hungry and a little forgetful but if it was going to make me feel better I was going to take it.  After a few weeks with no improvement my right arm started to go numb as well.  Not all the time more off and on type of way.  It was more or less at this stage that I started feeling “electricity” trough my body every time I bent my head down. 

 

I went back to the hospital and was told I would have to get the extreme option of steroids to help fight the inflammation.  Stayed in hospital for 3 days and got a strong dose ever day and a 16 day weaker version for home after that.  On the 3rd day of the strong course I started getting spasms throughout my body but was still send home that day with the assurance that it was normal. 

 

Since then I have had a follow up MRI (Still waiting for the result to come out), a test to check my nerve pathway to my brain and a follow up visit to the neurologists that could only say he is really sorry that it’s taking so long to heal. 

 

I now still have all the symptoms as I had before.  The spasms is not as frequent as the first week and with time not as painful (or I’m getting use to them) but they are still there with my lower body (the original problem) still the same as it was before.        

 

At this stage (4 months later) I’m not sure if I should be getting worried that this is not only inflammation but something more.  The neurologists have increased my doses of neurtin to 3 at night to help me sleep and 1 in the morning and 1 in the afternoon.  They were not able to say for clear how I got the inflammation in the first place but their best guess would be a virus.            

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Hi there

Just picked up this message - I need to have a think about it and look up a few things in the text books after work! I will try to get back to you later today or tomorrow

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Everything you just described I am going through the same thing. I also have an inflammation on my spine and for the past month have had numbing and tingling in my left thigh up to my knee and a heavy stiff feeling. I also have a numbing and tightening in my lower back had 2 mris of the spine and one MRI of the brain My brain MRI came back fine no lesions or abnormalities. And the only thing found was on the MRI of the spine which was the inflammation. I saw one neurologist and was diagnosed with MS. Got a second opinion from another neurologist and was told there is not enough supportive information to prove I have MS since the brain MRI came back fine and there was only one lesion/inflammation. I am repeating the MRI of the spine to check on the inflammation to see if anything has changed but in the last month and still till today I still have all the same symptoms I am also on neurontin for the nerve pain sometimes I feel like it helps and sometimes I feel like it makes that electrifying feeling even worst and more constant. I get these pulses of stinging pains all throughout my left side from under my rib down to my stomach. Did you find out any more information I would really like to see what others drs had told you. I feel your pains and know exactly what you are going through I am mostly afraid that this is never going to end progressively get worst and not be reversible Hope you feeling better !!!!! Denise
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