I know that you can live without a pancreas because, I lost mine in 1995. I had gallstones lodge into the opening of the pancreas and then my pancreas diegested itself. I has in the hospital for four very painful months. I wanted to die when I was there. I am very happy I didn't. I went on to give birth to two children. I am diabetic and have to take pills to help digest my food. I am wondering if anyone has exsperiened their arm (and my leg too) wants to move on its own once in awhile. This started about a year ago. I would love to talk with anyone that has exsperienced anything like this.
Thank you very much.
Thank you very much.
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Hi. My name is Thom and I have been living without a pancreas for 5 years. It certainly is not fun to say the least. I have experienced very similar side effects. If you have any leads I would love to hear them. My email address is ***this post is edited by moderator *** *** private e-mails not allowed **
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Yes you can live without your pancreas but you become type 1 diabetic. I lost my pancreas , spleen and gallbladder Sept. 2008 , I was in the hospital for two months and on feeding tube for five months. They did six operations in three weeks and I was on full life support because my body shut down from all the problems of the pancreas. A gallstone lodged in the pancreas duke and the enzymes could not get out so they ate my pancreas from the middle. They where only able to save less then 10% of the pancreas , I was taking enzymes but they seemed not to change anything so I decided not to take them and I'm not having any problems. They only gave me 5% chance of living through it so I feel like a miracle. Kootenai Medical in Coeurd'Alene Idaho and Dr. Edward Detar and others saved my life.
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Can I ask which enzymes you take? I am in constant pain since going on them. My pancreas was removed in November 2010 which is when I became a diabetic and had to start the enzymes. The Creon I200 I am taking is made from pigs and I have wondered if I could be allergic to them. I hear though that they are the only ones fda approved. Naaan
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Hi
I was taking Pangestyme MT 16 cap 2 capsules and pancrease MT 4 tab 1 every meal. I have found that it doesn't matter if I take them or not. I quit taking the enzymes and things are going good but I have less then 10% of my pancreas. I take my insulin by a pump and things are going really good with that my last A1C was 6.2 . The insulin pump has been very good for controlling my blood sugars. When I was on shots my blood sugar was all over the place. Also not taking the enzymes makes me not constipated . Funny how all your bodies react to it all different. Exercise has helped a lot also and eating fresh foods and staying away from processed foods (packaged products).
I was taking Pangestyme MT 16 cap 2 capsules and pancrease MT 4 tab 1 every meal. I have found that it doesn't matter if I take them or not. I quit taking the enzymes and things are going good but I have less then 10% of my pancreas. I take my insulin by a pump and things are going really good with that my last A1C was 6.2 . The insulin pump has been very good for controlling my blood sugars. When I was on shots my blood sugar was all over the place. Also not taking the enzymes makes me not constipated . Funny how all your bodies react to it all different. Exercise has helped a lot also and eating fresh foods and staying away from processed foods (packaged products).
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i am a 40 year old female that just had my pancrease and spline removed in april 2011. yes i have diarreah and vomiting. i am limited to what i eat. and sometimes im always in pain. the doctors tell me in one year time things will be normal, right now i cant see that. i stay in the hospital from pain to lacking something in my body.
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I had my pancreas out over ten years ago ,thanks to great doc's & staff at Leicester I look forword to every day.
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My name is steve. I live in Texas . I had my pancreas removed September 25 2009. In dallas They also did a eyelet cell transplant. I am currently 54 years old. I'm not sure I would do the transplant again. It did not work very long. I am on a insulin pump. But my sugars are all over the place.I would like to here from some people who are in the same shape . My pancreas was removed due to a deformity in my spincter muscle that caused about 10-15 pancreaitis attacks. I had 2 stints in my heart. I still put in 10 hours a day in a office job. It is starting wear on me. I would to talk with people who have the same type of condition
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I'm new to this site, I am happily living without a pancreas,spleen,half stomach no Gallbladder could provide some insights but like also to ask some questions to others living without a pancreas. I do look also for a group in Australia where I am thanks
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I am so happy to find others out there like me! Whenever I try to talk to people or explain my condition, nobody understands... even doctors don't understand! I am very new to this, and fighting every day. I lost 98% of my pancreas to pancreatitis, and a pseudocyst. I had a gallstone get lodged in my pancreatic duct, causing the necrotizing pancreatitis. I spent a few weeks in the ICU and 5 months in the hospital, and i'm still in and out of the hospital constantly. It's all very new to me! The pain is unreal, and right now my doctors can't tell me why i'm in the pain that i'm in. Nobody around here is familiar with a case this severe. I will be going to Duke in a couple of weeks. I take 4-5 shots of insulin a day to manage the new diabetes, but even the endocrinologists are taunted by my case. I take the CREON, but unfortunatley lost all of my health insurance do to a job switch and the CREON is SO EXPENSIVE! I've lost a lot of weight, which I needed to, but not this way! It has been incredibly hard trying to eat and figure out what I can and what I can't eat and eat pain free. I'm also a stay at home mom of a 1 and 2 year old. Some days the pain is so bad that I can't even get out of bed. The diarhhea keeps me in the bathroom a lot, and I throw up so much too. I've developed ulcers from pain medicine, and my doctors have discussed removing my spleen, due to a blockage that occured from the pseduocyst and the multiple surgeries I had because of that. I'm still so baffled, and scared and trying to figure out everything day by day. If anyone has any advice, help or doctor referrals, please let me know!
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Has anyone been able to help you with the pain? I feel like i'm always in the hospital for pain management, and I feel like the doctors think i'm crazy. They say things will be better in a year, but i'm 10 months in and still struggling. I'm always sick, with diarhhea and vommitting.
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Very similar story. This happened to me in January of this year. I stayed in the hospital for 5 months, had multple surgeries, spent a long long time on a feeding tube and since then have been in and out of the hospital numerous times. I lost 98% of my pancreas to my pseudocyst, but the 2% that I have is practically useless. Nobody thought i'd survive but I did! I don't know how long it takes to feel good again. How long did it take for the pain to stop??? Do you take enzymes? Insulin? Do you still have lots of pain and problems?
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I got pancreatitis the same way. Lost my pancreas. I haven't had the experiences with your arm and leg that you have, mine fall asleep constantly though. I was told it was part of the diabetes. I was curious though about your pregnancies? How was your pregnancy? were there a lot of risks? I have 2 children, but want another one. I just am still fightin through horrible pain every day. I don't know when it will get better, if it ever will. I spent 5 months in the hospital and had multiple surgeries. I still go in and out of the hospital to help with pain mangement. Please let me know!
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I'd love to talk to you if I could. I recently went through the same thing, and every day is a struggle and a nightmare. I still have incredible pain when I eat. My doctors are sending me to Duke because they have decided there is nothing more for me they can do. I've felt so alone in all of this!
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beingabarnes wrote:
***this post is edited by moderator *** *** private e-mails not allowed*** Please read our Terms of Use
I know that you can live without a pancreas because, I lost mine in 1995. I had gallstones lodge into the opening of the pancreas and then my pancreas diegested itself. I has in the hospital for four very painful months. I wanted to die when I was there. I am very happy I didn't. I went on to give birth to two children. I am diabetic and have to take pills to help digest my food. I am wondering if anyone has exsperiened their arm (and my leg too) wants to move on its own once in awhile. This started about a year ago. I would love to talk with anyone that has exsperienced anything like this.
Thank you very much.
I got pancreatitis the same way. Lost my pancreas. I haven't had the experiences with your arm and leg that you have, mine fall asleep constantly though. I was told it was part of the diabetes. I was curious though about your pregnancies? How was your pregnancy? were there a lot of risks? I have 2 children, but want another one. I just am still fightin through horrible pain every day. I don't know when it will get better, if it ever will. I spent 5 months in the hospital and had multiple surgeries. I still go in and out of the hospital to help with pain mangement. Please let me know!
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