I was 21 when I had my pancreas completely removed. I am in clinical studies because I also had an auto-islet transplant, which they took my cells that produce insulin from my pancreas and injected them into my liver. I was diabetic for about 4 months, but now my liver is producing insulin on its own. They don't know how long it lasts though. I take 5-7 pancrelipase pills every meal. On top of my pancreas being gone, I also had my spleen, appendix and gallbladder removed. My surgery was almost 3 years ago now, but ever since the surgery I have had multiple problems. I have experienced severe chronic pain in my upper left quadrant of my stomach, my stools are diarrhea and fatty, I get so sick when I'm having a bowl movement that I feel I may pass out sometimes. I always feel nauseaus dizzy. I am in pain management and they have yet to come up with anything that works for me, mainly because nobody where I live has ever heard of my condition. I still have nurses at my hospital that argue with me and tell me I can't live without my pancreas. I am only 24 years old and unemployed (which is horrible because I just got through nursing school), I am trying to get on disability. My doctors have pretty much given up and I don't have the funds to get an out of state second opinion. Is there anyone out there that is in this situation or something similar? And if so, does anyone know of anything that helps get you to live your life?