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I feel sorry about your father..But it a good thing he stop, BUT now he have to stay away from smoking, and all the other stuff I have one lungs AND was born with it
I am Carl DeForest and i am 18 year old. I was born with one lung. if you don't belived me it alright, my real mother was/is drug addivct with cocaine. I have not seen her for 18 year. but let me get back to the point. At frist it a HUGES problem.. have to breath harder, have to be a machine to breath.. it might take year.... i got use to it and look at me now I am doing everything as a normal as a person with two lungs. would do... I run track, lift weight, play basketball, i do all other stuff to prove doctors thatone lung is not dangous only for breathing but you will get use to it.. P.S. I am going to write a book about my life.. (it is very sad,mess up life)
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The Plante Family.
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I can tell you everything from what I have read about having the one lung to live with, I have been there and still am. Like the father who thinks he can't get enough air. That is true because our brain doesn't quite get it yet. I went thru the anxiety, thinking I can't breathe. But once I just took a slow, deep breath and slowed down my walking,ect, your finally giving your brain a chance to catch up. Then and only then did it seem like I was breathing normal and I got use to it even though I wasn't.
But you are daily reminded when you try to take on activities you once did. Again, your body and mind gets use to it.
However the flipside is if you had some type of chemo or radiation like I had and NO rehab then you can add a BIG Plus onto your end results. Plus as adding more to your problems...
No one told me the side effects of radiation treatment and I have been going to doctor to doctor, phycial therapy after therapy and many pain mangement centers for 20 years.
The plan truth is there is often long tern side effects that come with radiation. A doctor just know told me 1 year ago that it can show up 20 years down the road. So in other words if you are not one of the lucky ones then be prepared ahead of time and do your research on long term side effects of radition. Have it ready for your doctors so you won't be going around in circles like I have the last 20 years in pain.
I do believe I am very blessed and thank God everyday for me being alive. In the beginning I fought the effects of meds. the doctors put me on for pain. I kept going and even though I had upper muslce and nerve damage I would push to my limit till I had to lay down. I tried to work after surgery but the pain and spasms were to much and still are today.
Now that I have been unactive, not working for 20 years I have gotten a new list of diseases to add to the list. Some of which I have been told is related to surgery and radiation. The other part is probably herditary and age 54, wow that is still young..
I have been diagnosed with osteopeonia in the hips and have taken IV bonvia for 1 year, degenerative disc disease with ongoing pain in back and neck, low thyroid, COPD and have to use a bi-pap at night along with oxygen which made a big difference in how I feel. I use to get up in the morning and could barley catch my breath and it seemed it took all morning till I could function. This bi-pap made a BIG difference on how I breathed during the day. I would suggest anyone who thinks they can not get enough air espicially when waking up to go to a pulmunoary doctor and suggest to do a sleep therapy.
The main thing I wish I had was a doctor who would of gotten me the right kind of help I needed and get me into rehab to get back into shape. However that didn't happen and I didn't know things like I know now.
It is really too late but if I can get feeling better I will try to get some form of excersie. If you don't stay active you will be in more pain than you started out with. Hey I am 54 now so its still not too late...
I may have to go to the Mayo Clinic or the John Hopkins to get down to getting some doctors to fix me. I hope sharing my experiences have helped someone. I am not saying being born with one lung is a piece of cake but at least you had your whole life to get use to it and for most they can carry on normal activites and they know how to cope. To all God Bless and have a Blessed Day! :-) :-)
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