What types of medicine help you. I was dianosed less than a year ago. Any info would help
Thank you
Thank you
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My husband was just diagnosed a month ago. We went to one rheumatologist and he said he will see him in 6 months to see if it gets worse. Did not prescribe him anything. My husband is in excruciating pain every day. We called to get another rheumatologist referralabd nothing has happened yet. What do you suggest we do from this point on?
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I'm on methotrexate and Cimzia for psoriatic arthritis. Only on pain meds-Hydrocodone for pain--do 40 minutes physical therapy exercise each day on my own
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You should see a pain management specialist recommended by uyour GP, and if that doesn't work, get a new GP who can make pain management happen
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I’ve had it since I hit puberty at 11, I’m now 27. What it’s caused is a long list, whatever symptom I’ve pretty much Got it: RA, Rheynauds, sclerodactyly, calcification, finger sores that take literally MONTHS to heal, heart problems that can never be diagnosed, depressive episodes, anxiety. I’m also bipolar so that doesn’t help.,+even more
Now from the drugs: osteopenia, bad eyesight (always worsening), irregular periods, loss of appetite
I’m constantly worried how long the life expectancy is since I’ve officially lived longer with this c**p than without. But a supportive and positive family and moreso positive self esteem and being able to laugh at ANYTHING and every thing I can has literally saved my life I know. The more positive you are the less the pain seems.
Now from the drugs: osteopenia, bad eyesight (always worsening), irregular periods, loss of appetite
I’m constantly worried how long the life expectancy is since I’ve officially lived longer with this c**p than without. But a supportive and positive family and moreso positive self esteem and being able to laugh at ANYTHING and every thing I can has literally saved my life I know. The more positive you are the less the pain seems.
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Pain doc for sure, you’re going to have to see A LOT of specialists so that’ll take some time getting used to. Sometimes you even have to see more than one rheumatologist to find the one that actually cares. I have seen almost all of them in las vegas and Henderson and they’re all rude and awful and don’t seem to want to help because “there’s no cure and we can’t do anything about it for you. Here take some pain pills and, oh btw do you think you’ll want children in the future? Because IF YOU MIGHT, we can easily rule these meds out because THEYLL MAKE YOU INFERTILE!”
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I was on prednisone and methotrexate for most of it and just recently my PAIN MANAGEMENT doc prescribed Enbrel and it’s been a drastic change for the better. There’s a bunch of hoops you might have to jump through with first getting it approved by your ins, then finding coupons for it with the company and your insurance. Also I need pain pills and sleeping pills and anti anxiety because the sclerodactyly has gotten so frustrating.
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Hi, My wife is diagnosed with MCTD and we are being treated in Singapore. She is currently on Plaqunil 200mg, Prednisolone adn Myfotic. she is also diagnosed with Hypothyroid and hence on daily medication for that as well.
she still is not keeping well and having mild fever continuously and we did a follow up visit to the doctor who then doubled the dose of myfotic tablet, it has still not recovered. any lead to share
she still is not keeping well and having mild fever continuously and we did a follow up visit to the doctor who then doubled the dose of myfotic tablet, it has still not recovered. any lead to share
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My daughter aged 9 years is suffering from this desease for the past two years and often she is admitted either for breathing problems or body becoming numb. She is also suffering from Rheumatoid arthritis. Kindly suggest.
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I have sjogrens,raynauds, and a lot of other issues but I just had blood work done and all negative for lupus or rheumatoid arthritis but I did have a positive ANTI-RNP. My provider said it's connected to tissue disease but didnt say if I have it or not. I wanted to Know if you guys can shed some light on this?
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I'm on long island also. We could use a group out here. Maybe we aren't the only ones. I'm Kay Rising finding me is easy!
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hi Kay, I'm also on Long Island, in western Nassau. Would definitely appreciate finding a support group nearby. - Nina Gordon
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