I'm so sorry to read of your pain. Have you found a solution? I'm very surprised a prominent scoli surgeon has not advised you. You do not have to 'deal with it'. Some doctors... no empathy because they've never felt what we do. Shame on yours. Mine is world class and fixed me. Best, Indi
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I'm sorry to read about your pain and problems. I hope you have your solution by now, but if not Please, don't be scared... its the best thing I did and the surgery after the first one is a breeze. Just have the finest scoli doc fix it. Best, Indi
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you now also are suffering from fibromyalgia. You may want to research pain management for that too. I have both of these conditions.
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In reading my old files (my operation was 1971) I was reminded of this brace (Spinecor) which apparently is not covered by OHIP (and other insurers?) but which some people gave them super relief from constant pain. It was invented in Quebec, Canada.
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I had surgery for scoliosis in 2005 when I was 16, I had a 79 degree curve and 5 ribs partially cut out to correct it. it was completely successful and I had no issues up until now. I'm now 27 and over the last few months I've had serious discomfort in the ribs closest to the metal/where the metal ends (ribs which were partially removed) which occurs every time I lay down either on the sofa or in bed which is getting worse by the week making it hard to sleep, it's almost like there is some sort of pressure being put on it? I had it done at a children's hospital so highly doubt I could go back there, has anyone else experienced any similar?
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I had scoliosis surgery in 1960 at the age of 15. The process was part of a research project at University of Kansas Medical Center. I had idiopathic scoliosis with an S curvature. The upper curve in the thoracic region had bone on bone spinal fusion where bone from my hip bone was used to stabilize the vertebrae. I was then placed in a cast for about 7 months. I have no rods or other metal paraphernalia which, I believe, is a blessing. At times I have weakness and/or tiredness mostly at the lower curvature which could not be fused. I less often experience pain at the point of the upper curvature surgery.
I have found no one else who has had this surgery although I know that others did at the time. I would be curious to see if anyone else knows about this surgery.
I have found no one else who has had this surgery although I know that others did at the time. I would be curious to see if anyone else knows about this surgery.
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Amazing! I've heard of surgeons leaving out instrumentation years ago. You are blessed not to have it and still be so good & sound! I wonder if not being instrumented allowed you to continue to grow or if you were done growing, allowed your body to be "natural", if you know what I mean. Can I ask your height then/now? Your curve degrees then/now?
I'm in awe. Hope you write back & keep doing so well!
I'm in awe. Hope you write back & keep doing so well!
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Glad to get a reply. I began at 5'3'' prior to surgery. While in the body cast I was 5'5" but settled in at 5'4" after the cast was taken off. I remained that for many years. I have lost an inch sometime in the past few years as I am now 71 years old. I consider myself very lucky to not to have had to adjust to the rods. The whole thing was traumatic at the time but I understood that my parents were wanting the best for me. It taught me a lot about having a sense of humor about myself and my looks at a time in life when that is such a struggle for all adolescent girls.
I had finished growing at the time of the surgery. That was a requirement. I find it curious that there still isn't a true understanding as to why those of us that have S curvatures are blessed with them.
I can't say that I am without pain, but it is tolerable and isn't all the time.. I only take Aleve if it is bad and have a system of resting with heat that helps. I am picky about my bed and find that a mix of foam and memory foam cradles my back the best. You just learn to adapt. I carried my pregnancy well but struggled with delivery since I couldn't 'crunch" to help the baby out. I can still touch my toes even though I only bend at the waist. I can't walk long distances, but that is okay. My bone density is good and my joints are fine. I consider myself very lucky.
I sent a request to the person who is in charge of the research archives at KU Medical Center to see if I could view the research that was done....if it is available. That person was very supportive and stated that he would look for the information and would also discuss the situation with Dr. Marc Asher who is professor emeritus there. We'll see if I hear anything. Can't hurt to ask.
I had finished growing at the time of the surgery. That was a requirement. I find it curious that there still isn't a true understanding as to why those of us that have S curvatures are blessed with them.
I can't say that I am without pain, but it is tolerable and isn't all the time.. I only take Aleve if it is bad and have a system of resting with heat that helps. I am picky about my bed and find that a mix of foam and memory foam cradles my back the best. You just learn to adapt. I carried my pregnancy well but struggled with delivery since I couldn't 'crunch" to help the baby out. I can still touch my toes even though I only bend at the waist. I can't walk long distances, but that is okay. My bone density is good and my joints are fine. I consider myself very lucky.
I sent a request to the person who is in charge of the research archives at KU Medical Center to see if I could view the research that was done....if it is available. That person was very supportive and stated that he would look for the information and would also discuss the situation with Dr. Marc Asher who is professor emeritus there. We'll see if I hear anything. Can't hurt to ask.
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I had my surgery 6 years ago when I was 13. I ache a lot and get sharp pain after heavy lifting, cardio, and laying in certain positions. I don't remember having this kind of pain until quite recently. I plan to schedule to meet with my orthopedic so I'm hoping he has options that will help me. Everyone's replies seem very similar to the pain I deal with. My back cracks a lot when I move my shoulders in circles and I feel something being pinched at times. I'm hoping I find something that helps because this sucks!!
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Honestly, I was in way more pain before my surgery. My 2 surgeries are the best thing I have ever done. sure, I can't bend as much now, but before i could barely do much without the pain being unbearable so I didn't want to do anything anyways! I can bend at the hips, I just can't SLOUCH. I can do pretty much anything anyone else can do. You'll need help for recovery, but after that everything is fine. in my opinion, surgery is the best thing to do. My back was 110 degrees before I was able to have surgery because I was only 13. I wish I was able to get it sooner but bc of my age, I had to wait until I was almost done growing. I'm so glad I don't have to live with constant pain anymore. The only problem I have now is I have to sit down to tie my shoe, if I sleep wrong then I get a little stiff and I get colder than most people due to the rods.
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I also had ribs taken out for my main surgery as well. I was 13 and had a 110 degree curve! now, I am only 17. I never have severe pain in my back, but I do have discomfort in my ribs. even someone touching my ribs makes me dizzy and uncomfortable. laying on my ribs even make me feel that way! Not too sure why, but I think it's just how our body reacts to it. I'm sure it's Normal and nothing to really worry about. Mine has felt like that since the beginning!
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Yeah my surgery was 25 years ago and like you I have had pain either in my lower back or hips.
Don't know what causes it but my do wants me to go to a spine Dr can't imagine he will tell me what causes it but I can't walk more than a block til I have to go home and there I can't stand more than couple hours before I have to sit down,it's frustrating to me and to my family cause there are a lot of things I can't do because I can't walk much wish someone can just shoot straight with me and tell me what to do to fix it right now I'm living on muscle relaxers and hydrocodine I wish I could get if it but if I do i can't sleep CAN ANYONE HELP ME
Don't know what causes it but my do wants me to go to a spine Dr can't imagine he will tell me what causes it but I can't walk more than a block til I have to go home and there I can't stand more than couple hours before I have to sit down,it's frustrating to me and to my family cause there are a lot of things I can't do because I can't walk much wish someone can just shoot straight with me and tell me what to do to fix it right now I'm living on muscle relaxers and hydrocodine I wish I could get if it but if I do i can't sleep CAN ANYONE HELP ME
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I had surgery 11 yrs ago & still to this day i have back pain everyday. Seem like something pulling in my spine and it feel weird when i touch the left side of my back. My doctor say exercise will help but it dont and i know its something wrong
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I had my operation when I was 16, and again at 23 to re-fuse the smashed fusion. I am now 50 and experience chronic pain on a daily basis. (have done for years but gradually getting worse. They inserted a Harrington rod and fused top to bottom of my spine. I am working in a library but have no idea for how much longer as the pain is worse on some days preventing me from being on my feet. No pain killers work and although I hold it together for the most part there are days where I just have a slight melt down for a short while. I can't have MRI's because of the metal and all the Dr's say is 'it's just your scoliosis.
I have constant lower back pain, leg pain, hip pain and feet pain, some days are unbearable to put my feet on the ground and they are regularly swollen,as well as back spasms and the Dr's are now sending me to a neurologist. I can relate to the majority of the posts on this forum but feel I am at a loss. The Dr's told my father if I didn't have the operation I would be in a wheelchair by 26 if not dead as my spine was crushing my heart and lungs, I was a gymnast before this op. My son and my niece have also been diagnosed with it and are struggling with pain.
I have constant lower back pain, leg pain, hip pain and feet pain, some days are unbearable to put my feet on the ground and they are regularly swollen,as well as back spasms and the Dr's are now sending me to a neurologist. I can relate to the majority of the posts on this forum but feel I am at a loss. The Dr's told my father if I didn't have the operation I would be in a wheelchair by 26 if not dead as my spine was crushing my heart and lungs, I was a gymnast before this op. My son and my niece have also been diagnosed with it and are struggling with pain.
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I know exactly what you're talking about . I've got surgery in 2002 . Been getting regular pain but now it's been sharp pains you are describing for the past few months.
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