I am really peeved that I still have hypoparathyroidism after a total thyroidectomy. What are the symptoms I have to look for now?
Is synthetic PTH available yet - are thier clinical studies I can partake in and how do I find them? I was sent home after one day and given 900 mg of Calcium to take 3xperday and no calcitrol - I went to the hospital the next day and they took a week to slowly build me up to 1.25 calcitral and 1800 mg of calcium per day. (this has been slowly lowered over the last 4 months to my current .5 calcitral per day). I ended up asking for an endocrinogist one night and when I spook to her the next day she seemed surprised I wasn't sent home with calcitral ( I only had 2 parathyroids after surgery) and was surprised I had to wait in emergency for 9 hours before they gave me calcium the next day - even though I was admitted right away. I need to know could all these problems be why me parathyroids wouldn't kick in? Is thier still a possiblity that they could start to work? I read somewhere that it can sometimes take up to 6 months.
Also will the tightness around my right eye ever go away?
Is synthetic PTH available yet - are thier clinical studies I can partake in and how do I find them? I was sent home after one day and given 900 mg of Calcium to take 3xperday and no calcitrol - I went to the hospital the next day and they took a week to slowly build me up to 1.25 calcitral and 1800 mg of calcium per day. (this has been slowly lowered over the last 4 months to my current .5 calcitral per day). I ended up asking for an endocrinogist one night and when I spook to her the next day she seemed surprised I wasn't sent home with calcitral ( I only had 2 parathyroids after surgery) and was surprised I had to wait in emergency for 9 hours before they gave me calcium the next day - even though I was admitted right away. I need to know could all these problems be why me parathyroids wouldn't kick in? Is thier still a possiblity that they could start to work? I read somewhere that it can sometimes take up to 6 months.
Also will the tightness around my right eye ever go away?
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Hi Jena;
Are you still hypopara, its been a while since your TT.
I like to talk to you since I have the same problem since my TT in may. I still hypopara but I tried to slow my meds to see if my para are awakening. Please let me know you status to tried to exchange ideas
Are you still hypopara, its been a while since your TT.
I like to talk to you since I have the same problem since my TT in may. I still hypopara but I tried to slow my meds to see if my para are awakening. Please let me know you status to tried to exchange ideas
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