I see many of you have been experiencing same awful effects of taste and smell lost/disturbance after tonsillectomy.
And complaining that noone posted anything about being cured eventually, and is it curable at all.
My doctor also claimed that "son, i've never heard of that, you must be one in a million because I took tonsils out from as much as 100 billion zillion patients so far"?! Thanx a lot, good for you doc, bad for me...
Anyway, after I googled it thoroughly, I came to conclusion that because of its location close to tonsils, most of tonsillectomy patients should have their glossopharyngeal nerve affected, which is responsible for taste sensations from the posterior one third of the tongue. But only say one in a thousand have that awful taste afterwards. There are published research papers (very rear, old, and none of our doctors familiar with them), for instance
Joseph M. Bicknell, MD and Robert V. Wiggins, MD, “Taste Disorder From Zinc Deficiency After Tonsillectomy,” The Western Journal of Medicine
identifying that Zinc deficiency in your body, combined with glossopharyngeal nerve injury, make your taste and smell go wild! Because, in a way, zinc is what helps taste being recognized and transferred to your brain. If you have a zinc level moderately low, you would still be able to have senses, but if in addition your glossopharyngeal nerve has a postsurgical trauma, these two combined make you lose you senses. So if you have post tonsillectomy taste disorder, great chances are that you are suffering from low zinc, or having a zinc absorption problem.
One week ago I started a zinc therapy, basically taking 25mg a day. Actually took a double doses first day. Guess what, in 24h I lost that constant awful taste in my mouth! Now, one week later, I feel my situation some 50% at least improved, I can feel sweet (some, not all, and not in full power, but sweets do not feels awful at least!). So guys, would cost you nothing to try this, and in few days I hope you would feel improvements. I read that this disorder could take people to "institutions" eventually, you and I know why, it's difficult to live with this, not knowing will you ever get to normal, or your whole life you will not be able to feel some of your favorite food. So I had to share this with you all....
I wish you soon will have your taste and smell back, and post smthng here if you get to feel any improvements...
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What about you?
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I spoke to my ENT and they have said that they have never heard of such a thing as the taste loss in their 25 years of practice.
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Thanks alot
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Thanks for your post. I am 12 days post-op and I have the same horrible bitter taste sensation at the back right side of my tongue that everyone is complaining of. I think you are right about the glossopharyngeal nerve, as the lingual branch of that nerve is responsible for taste in the posterior region of the tongue. My surgeon told me it wasn't uncommon to experience taste alteration and told me it would be back in 6 weeks. However, from what I've read (and I've read hundreds of posts like this) I'm aware that it could take much longer. I've started taking the zinc so hopefully I'll have some luck from that. Has anyone else got any tips other than zinc?
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Hi - you should ask your Dr for a blood test to check your zinc levels. I started Acupuncture 5 weeks ago and I had my 5th session today and that seems to help a bit- I will post my experience once I have a proper cure - #holdingthumbs
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OMG
I had my tonsillectomy on October 25, 2012
At first I had this wretched metallic taste in my mouth
and as I began to heal I had the funk breath
Now I have basically no taste at all, which leaves me hungry and
frustrated so I do not eat.
Now, I also sound like I am from the Dominican Republic
my voice has this strong accent and it does not even sound like me
I am embarrassed to even speak.
Went to the ENT 3 times so far, and this man told me that I had thrush...
Thrush does not change your entire voice, and it may affect your taste but
I know better than that, I did not have a thrush patch in my mouth at all.
I am going to try the zinc, as this man told me it is never heard of, losing your taste
and on top of the thrush medication he thinks I need to do speech exercises.
First of all, I had no speech problem before you wretch up in my mouth and
yanked my tonsils out, nor did I have a speech problem when you tried to clamp my tongue to the roof of my mouth
nor a speech problem when you cut the adenoids out.
I am so glad other people have had this problem it only makes it easier for me to stick it to
my marvelous Doctor. and the sad part is he toots his own horn.
Going to my Family Doctor to get blood tests and hopefully he can help me out, because the ENT is a quack!!!!
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Don't stress about your voice so much. I sounded like Kermit the Frog for weeks and then I woke up one day and it was much better.
I had my tonsillectomy on 27/9. As everyone can see from my post above I was experiencing some really nasty taste sensations which began about a week after the surgery. When I spoke to my ENT, he also said that he'd never heard of this happening to anyone. He did say however that during the procedure the nerves in the tongue can become stretched and that it's a slow healing process.
But I can happily tell you all that it will get much better. My taste is still not good exactly, but the bitter sensation has ceased and now everything is just tasting a bit bland. Sweet things aren't really pleasant to eat still but before the taste was awful.
I took all the zinc everyone recommended but to be honest I don't think it has had much to do with the recovery. I had my zinc serum levels checked and they were completely normal. What I do recommend are alpha lipoic acid tablets. They promote nerve health and I think they have sped up the recovery for me.
From what I've read, it takes some people months to heal, others weeks. Don't give up hope. I'm 6 weeks since surgery and have seen a huge improvement.
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