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Hello Guys,
First of all thanks for this thread, I hope it will be kept alive. It helps a lot to know we are not alone, it's reassuring, some post are nicely written and give a smile :)
My situation: blood when sex, all the time big clots and mandatory to go to hospital to get the thing in and get the blood out - no pain at all, and then all is ok 6 hours after. No blood while masturbating, and no blood during night time sperm (don't know how to say it in english, but if you dont do anything for a week - then sperm has to come out ... usually during night).
I give below the feedback I received from various eminent and well known urologist in France, Canada and Switzerland (I'm French native). I repeat it's the feedback I RECEIVED - thus might be not at all inaccurate for you ... or might be :)
It started age 24 for me - blood after sex. Did all possible check up in the world (MRI, CT, SCAN, cystoscopy, endoscopy ... ) i have a small kist on the prostate and a really really tiny black thing in the baller (kind of mark).
They have run crazy tests on my (like getting the camera up inside the baller while getting exited to see where blood comes and so) but nothing.
They also tried to cauterise the mucus of the urethrae in hope it will help.
All those lasted 3 month in total during which my fiance left me - thus when i was suppose to be cured - I could not try sex anymore. And i'm not the kind of guy to go for pickups or one night stand, so it took me 2 years and half to find another girl to have sex with. 2 first times we had sex, no blood (forgot i had this f..... thing) and third time, it came back.
All experts consulted again - they all agree that we could run other tests, try other things (like going around prostate to catherine and so) but what they all accord on is: it's life, too bad it's on you, we can't cure it because most of the time, it's a tiny f.... vessel that is super weak, and when it burst on specific occasions (remember, I have no blood while masturbating nor night time sperm) it create blood until it stops by itself.
I tried to summarise what you all guys have written as possible solutions and brought it to those experts, they think vitamin will not help, and the best is to leave with it. If you are lucky blood is not WITH the sperm so you can still have kids - if not, then on my case i can masturbate and think about IVF ...
They gave me pills that reduce the blood that would come from down there - so at least i would not be stuck with clots and could maybe enjoy my life (i'm now 30...) - 2 pills before sex, 2 after sex - they also recommended drink a lot BEFORE and AFTER - so the blood can't really make clots as it's all wet everywhere ... and to go straight to the WC after sex. Also, sex should not be long, the longer it last, the more clots there will be.
I can't tell if pills will work ... as I said i'm not on pick ups or one night stand and as you probably know it's a nightmare with that illness to get a girl that would understand ... so if im lucky within a couple of years i will find someone and then try the pills - and will let you know.
good luck to all - life is a b***h but we have to deal with it :(
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