It's been 2 years since my surgery, countless hours of PT, TENS, Injections, Urodynamics, EMG's, MRI's, bouncing from doctor to doctor. Finally found a neurologist(s) who understood and could put all the pieces together....
It's not a good diagnosis, but it's good to know what's going on I guess. I was in a violent car wreck and had brain, neck, arm, and spine injuries. I also broke out with Shingles twice after the wreck. Neuro thinks the severity and duration of the injury to my central nervous system caused CPS when my nerves were decompressed from surgery. It was about a year from the time of the wreck until I had surgery. Symptoms pre-op - Severe (10/10) Right leg sciatica (and everything that came with it), Mild (5/10) Left leg sciatica.
Symptoms post-op - Totally numb and weak left leg, toe to thigh, Random strong stabbing pains all over my left foot, strong burning sensation in my left foot that coincided with bladder filling up.
Aside from the pain and lack of sleep, the most frustrating part about this has been the doctors not believing me.
Good luck to all of you experiencing similar issues.
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I agree it's pretty weird but obviously real if others are experiencing it as well. Sometimes the stabbing pain is one and done while other times, like right now, it will take hours to subside. The eye watering jolts usually come about every minute or two and will only last for a second or two.
There is no question it occurs because of damaged and impaired nerves and unfortunately there is not much one can do to stop it.
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Very similar. For the last week, when I start to urinate my big toe on my left foot gets such a sharp pain that I actually cry out...lasts for 5-10 seconds. Sitting down vs standing up...it doesn't matter. It doesn't hurt at other times...just when urinating. The one idea that I'm wondering about is Aleve's Direct Therapy, which is a TENS device for the lower back. I got one about 2 months ago and used it around 8 times...about once a week for the prescribed 30 minutes. I liked it, but since its nerve stimulation could it be the indirect cause? I haven't used the Alleve device since my toe issue started. My GP is puzzled and prescribed an anti-inflamatory for 5 days. It does seem to be improving, but only slightly. I go back to the doctor in two days to see what is next.
I think its interesting that I'm finding a number of people (all men I believe) with nearly the same symptom. One I found with my exact symptom...left foot, big toe, hurts like crazy when peeing.
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