Thankyou Hollie for getting back to me your reply was very useful and I am very sorry to hear how badly CRMO affects you. My daughter has now been confirmed with CRMO after a visit to Dr Rooney in Musgrave hospital in Belfast last week. She is going into hospital on Wednesday for 3 days pamidronate treatment which she has never had before. Is this something you have had? Can I ask did how you felt during and after, did you experience any side effects?
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Hi there, was this intended for another thread? I just thought I'd point this out to you if this needed to be posted elsewhere. Is that the case?
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