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Hello, I am spastic paraplegia sufferer. I have hard time coping with this condition.
I suspect that an 'attitude' is everything though people say that we should think 'positively'. Surviving every day…and I generally wear a smile when out in public, and seldom let my feelings show to those who do not understand. I need some support. I would like to hear from others with spastic paraplegia.

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Hello, I also have spastic paraplegia, but my family is in total denial of my condition. I was accused of being "so negative, and not trying hard enough". I'm over forty and as well as having FSP, I also have Lupus. I've accepted the life I have to live, and I'll be waiting to receive my family through the door. I leave permanently open for them to come through
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