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Hi.  Has anyone out there had a craniotomy for a dural fistula?  Mine is the bad kind--retrograde flow--& close to my eye.  I am, of course, terrified and have been unable to find anyone who has had this rare disorder.  I have no symptoms other than hearing my pulse in my head but am told that I need to have the fistula removed soon.

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Have it removed promptly other wise you might face bleeding that could leave you disabled or dead.  I had mine removed which was leaking into my sinuses.  I had never heard of it either.  I suffered alot with severe headaches after the MRA test.  Get your surgery done asap.

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